CDH UK - The Congenital Diaphragmatic Hernia Charity

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CDH UK - The Congenital Diaphragmatic Hernia Charity Welcome to our registered Charity, leading the way in supporting families and helping to improve outcomes for CDH through education and research.

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when the diaphragm does not fully form, allowing abdominal organs to enter the chest cavity, and preventing proper lung growth. CDH affects around 1 in every 2500-3000 babies, of all races, religious backgrounds, and financial status - no matter how good the antenatal care. The cause is not yet known. Around 50% of babies do not survive and sometimes those that do can have to overcome various medical complications. Many CDH babies have minor lasting health problems such as feeding aversions, asthma, scoliosis, or short-term oxygen dependency. A small number have major lasting health problems such as ventilator dependency, brain damage, or hearing problems. Many patients have no long-lasting medical problems at all other than a scar from the CDH repair. CDH can occur alone or with other birth defects, and, rarely, it occurs as part of a syndrome. Every CDH baby is different; there is no way to predict the outcome of any patient 100%. Some babies with no diaphragm and little lung growth survive, while some babies with good lung growth do not. These children are very different, requiring different treatments, and varying amounts of medical support. Our aim is to raise awareness of CDH and to offer support and advice to all affected by CDH and to educate on this condition. We are constantly looking for ways in which we can contribute to study and research programmes and hope that one day we can assist in finding a cause and prevention of CDH. For further information on CDH & our charity please visit our website www.cdhuk.org.uk

It’s Halloween weekend and we would love to see your scary efforts! Please send in your pics to our inbox for posting on...
30/10/2026

It’s Halloween weekend and we would love to see your scary efforts! Please send in your pics to our inbox for posting on our page use the hashtags and when reposting

Have a frightfully good weekend 👻

Here’s to that Friday feeling and to Lwcasz age 5 who raised £170 for CDH UK by doing the Cardiff fun run the other week...
23/10/2026

Here’s to that Friday feeling and to Lwcasz age 5 who raised £170 for CDH UK by doing the Cardiff fun run the other week 😍, he is so proud and so he should be!
🩷🩵
WELL DONE 👏

Please show your support for all those who have suffered baby loss by lighting up a candle or lamp to acknowledge and ra...
15/10/2026

Please show your support for all those who have suffered baby loss by lighting up a candle or lamp to acknowledge and raise awareness for

Today is the start of Baby Loss Awareness Week or   if you would like to share your story for our social media and The C...
09/10/2026

Today is the start of Baby Loss Awareness Week or if you would like to share your story for our social media and The CDH Magazine 2026 to help raise awareness please send to our page inbox or email to [email protected]

It’s nearly that time of year again   where we invite you to share your stories, experiences and fundraising activity wi...
01/10/2026

It’s nearly that time of year again where we invite you to share your stories, experiences and fundraising activity with us for our annual publication ‘The CDH Magazine’. This has been going nearly as long as our organisation first as a newsletter and later as a please email any content to [email protected] with the subject of your name followed by newsletter. We can’t wait to receive them!

14/09/2026

‘Our darling son Quinn turns 10 today. We are in awe of how far he’s come in life, how happy and active he is and are forever grateful for your support during the darkest hours of my pregnancy diagnosis. I wondered if he could have a birthday shout out this year with him being the Big 10 as he calls it.
Thank you ☺️’ ~ Mum

HaPpY Birthday Quinn! 🎂🎈welcome to double digits 🤩

We would like to give a HUGE shoutout to Chris, Maria, Georgia and everyone who took part and donated or supported this ...
10/09/2026

We would like to give a HUGE shoutout to Chris, Maria, Georgia and everyone who took part and donated or supported this amazing Golf Day! The amount so far has exceeded £16,000 🤩 Also thanks to our Family Liaison Volunteer Jo and her Daughter Erin for attending 🙏

‘Ten weeks ago, our Director, Chris Carcary, and his wife, Maria, welcomed their beautiful little boy, George, into the world.



At their 20-week pregnancy scan, Chris and Maria received the devastating news that their baby had a rare and life-threatening birth defect called Congenital Diaphragmatic Hernia (CDH). They were told that George had a 50% chance of survival.



Thankfully, after undergoing surgery and spending three weeks in the NICU at King’s College Hospital, George pulled through - and he is now doing amazingly well.



Like so many families who suddenly find themselves facing a CDH diagnosis, Chris and his family experienced first-hand the uncertainty, fear and emotional challenges that come with it. They also discovered just how important it is to have access to the right information, support and community during such an incredibly difficult time.



That is why Chris has chosen to support CDH UK at our upcoming Charity Golf Day’. Georgia- CJC recruitment

05/09/2026

Remembering Jakub on what would have been his 26th birthday 🎈

Thinking of his family always 🩷🩵

Address

The Denes, Lynn Road, Tilney All Saints
King's Lynn
PE344RT

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