30/10/2026
Just a few hours to go! It’s not too late to get your nominations in for our Alex Demain Young Fundraiser of the Year Awards. The deadline for entries is today at 5pm.
Our young fundraisers inspire us every day, and we wanted to take the time today to share Libby's story. Libby was just 10 years old when she was diagnosed with Crohn’s Disease. After completing a six-week liquid diet as instructed by her IBD Team, she started fundraising for Crohn’s & Colitis UK to celebrate.
Libby’s first fundraising activity included a trampoline party, bringing her loved ones together while raising money for Crohn’s & Colitis UK. From there, Libby’s fundraising grew. She encouraged friends and family to give something up for January, spoke about her experience with Crohn’s at her mum’s work conference and, alongside her family, organised bake sales, football matches and a pantomime.
Knowing that raising that money would help other children or people going through the same thing made a real difference to Libby. When Libby spoke about Crohn’s at her mum’s work conference, one member of the audience recognised the symptoms she described. He went to his doctor armed with the knowledge Libby had shared and was later diagnosed with Colitis, after years of not knowing what was wrong with him.
By 2017, Libby had raised £7,022.90 and was invited to attend the Alex Demain Awards. The awards were a special moment for Libby and her family. At a time when so much of her life revolved around her conditions, it gave her the chance to celebrate what she had achieved and to see the difference her fundraising could make.
Libby’s relationship with Crohn’s & Colitis UK continued after the Alex Demain Awards. Libby took part in purple events at school, her brother’s football team got involved, and she created an Instagram page called ‘Libby’s Crohnies’ to raise awareness and bring people together.
Around 50 people took part in a local fun run she organised, and sharing her experiences online led to messages from people who recognised symptoms in themselves. Some subsequently went on to be diagnosed with Crohn’s.
And now, almost a decade after she attended the Alex Demain Awards, Libby is taking on her biggest fundraising challenge yet: the London Marathon.
For her, the marathon is another opportunity to do what she has been doing since she was 10 – raise awareness, support others and show what is possible when you are living with Crohn’s.
“There’s a light at the end of the tunnel. Life does get much better.”
Libby hopes that by sharing her story, she can help younger people living with Crohn’s or Colitis feel less alone and give them hope for the future.
Nominate your inspiring young fundraiser before 5pm today!
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