British Thyroid Foundation

17/06/2026

Unhappy at the prospect of becoming hypothyroid after definitive treatment for his Graves' disease, Chris was treated as part of a research trial looking at personalised radioiodine doses.

He shares his experiences of this treatment 30 years on 🔗https://www.btf-thyroid.org/chris-story-graves-disease or read from our homepage

16/06/2026

📢 Have you filled in our survey yet?

⏱ The deadline to let us know which unanswered questions you would like future thyroid research to address is this Monday 22 June.

🗣Whether you live with a thyroid condition, care for someone who does, or treat patients with thyroid conditions, your views are important to us.

Every voice counts and will help to decide the top 10 research priorities for thyroid disease.

Please tell us your thoughts today 🔗https://www.btf-thyroid.org/tell-us-your-research-priorities or from our homepage.

14/06/2026

🗣 'I'm sharing my story today because I want to give hope, validation, and courage to other women and mothers who might currently be suffering in silence and feeling dismissed by their doctors.’

Jannette's hypothyroidism went under the radar until she became extremely unwell. She's sharing her story to encourage others to go back to their GP if their symptoms are being dismissed.

Read Jannette's story 🔗 https://www.btf-thyroid.org/jannettes-story-hypothyroidism or from our homepage.

09/06/2026

True thyroid emergencies are thankfully extremely rare BUT it's important to know:
✅What symptoms to look out for
✅ Causes
✅ Who's at risk
✅ How they should be treated
✅ The best way to prevent them

Our article guides you through the following thyroid emergencies:
- agranulocytosis
- thyroid storm
- myxoedema coma
to help you recognise symptoms and get the appropriate medical help quickly.

Learn more https://www.btf-thyroid.org/thyroid-emergencies-explained or from our homepage

07/06/2026

🤔Trying to unpick what's related to your thyroid condition, and what might be due to other things can be challenging at times.

💡We've put together some tips shared with us by endocrine nurses about looking at the bigger picture, and how to get the most out of your consultations.

🔗Explore their tips https://www.btf-thyroid.org/endocrine-nurses-perspectives-on-thyroid-health or from our homepage.

05/06/2026

🙋A big Volunteers' Week shout-out to all our amazing volunteers who give so much to make a difference to the thyroid community.

🦋From offering a listening ear and peer support to guiding our work as trustees, our volunteers give their experiences, time, skills and passion to make our work possible.

✨Thank you for everything you do ✨

04/06/2026

❓Questions about research into Graves' disease?

🎬 You can now watch the recording of our recent webinar exploring research and potential future treatments for Graves' disease.

🔗

Watch the recording of our webinar discussing research into Graves' disease

01/06/2026

A big shout out to Parathyroid UK this World Hypopara Awareness Day for all they do to raise awareness of parathyroid disease and support the parathyroid community.

The most common cause of hypoparathyroidism is following head and neck surgery, as the parathyroid glands can be accidentally damaged or removed. And around 30% of people having thyroid surgery will experience temporary symptoms of low calcium and may require treatment. In most cases, the parathyroid glands typically recover in around 6-8 weeks.

However, it's estimated that up to 6% of people develop permanent hypoparathyroidism following total thyroidectomy.

If you've been advised that surgery might be an option to treat your thyroid condition, your medical team must explain all the risks to you, including damage to the parathyroid glands. They should also provide information on the number of thyroidectomies they have performed.

Our thyroid surgery resources explain more and include a checklist of questions to ask your surgeon or doctor: https://www.btf-thyroid.org/about-thyroid-surgery

You can find lots of information and resources for hypoparathyroidism on Parathyroid UK's website: https://parathyroiduk.org/hypoparathyroidism/

Today is World Hypopara Awareness Day! 💙
Hypoparathyroidism (Hypopara) is a rare endocrine condition where the body doesn't produce enough parathyroid hormone. This leads to low calcium levels, causing a wide range of challenging, daily physical and mental symptoms.
Living with a rare disease can feel incredibly isolating, but today is a reminder that no one has to fight alone. By sharing our stories, we raise vital awareness, push for better treatments, and strengthen our community.
Let’s stand together to make Hypopara visible! 🦋✨
Join our World Hypopara Day Party and share your story!

31/05/2026

As International Thyroid Awareness Week comes to an end, watch Dr Salman Razvi’s plea for the thyroid community to take our survey to help shape the future of thyroid research.

Whether you have a diagnosed thyroid condition, care for someone affected, or are a medical professional, we want to hear what unanswered questions you’d like future thyroid research to address.

Please make your voice count and complete our survey today https://www.btf-thyroid.org/tell-us-your-research-priorities

28/05/2026

Thyroid research is often referred to as the ‘poor cousin’ of research into other autoimmune conditions.

While thyroid research is frustratingly scant, we wanted to highlight some of the research going on in the UK into hypothyroidism.

This includes a planned trial taking place at Cardiff University of slow release T3 in people with the DIO2 gene, which affects thyroid hormone metabolism.

You can hear team member, Prof Onyebuchi Okosieme, talk about this trial and other research into hypothyroidism 56 minutes into our recent webinar. https://youtu.be/OoQ_eACK0e8?si=ugUv-dZmMF-pcWvM

It’s well worth watching the hour-long webinar to hear our speakers discuss patients’ questions, including when it might appropriate to have a trial T3 (liothyronine) in people with persistent symptoms.

Website http://www.btf-thyroid.orgTwitter: : http://www.justgiving.com/btf/donate