FND HBH

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FND HBH A safe, supportive community for people living with functional neurological disorders ( FND )

03/08/2026

To everyone in the FND HBH community,

Firstly, I want to apologise for being quieter than usual over the past month. I also want to say a huge thank you to every single one of you. Despite everything, we’ve still managed to hold some lovely meet-ups, and thanks to your incredibly kind donations we’ve been able to provide cooling blankets, fans, and ice face masks to help people stay safe during the recent heat. Seeing the community come together like that has meant more to me than you’ll ever know.

Creating FND HBH has been one of the most rewarding things I’ve ever done. Being able to support others, offer a listening ear, and build a place where people felt understood has been a privilege.

However, the month I’ve spent away has given me time to reflect. I realised that while I’ve dedicated so much of myself to supporting everyone else on their journeys, I’ve neglected my own. The truth is that I’m still very early on in my own FND journey, and I’ve been trying to carry everyone else’s struggles while not properly dealing with my own.

Unfortunately, alongside the positives has come negativity, criticism, and personal attacks. When you’re giving everything you have to help others, only to have your character questioned or torn apart, it becomes incredibly difficult. It has affected me far more than I ever admitted, and instead of moving forwards in my own recovery, I’ve found myself going backwards.

Because of that, I’ve made one of the hardest decisions I’ve had to make.

As of 8:00am tomorrow, I will be closing the FND HBH WhatsApp group and page.

My TikTok account will remain open, but from now on it will focus on my own personal journey, raising awareness through my own experiences, and simply being myself. If anyone would like to stay in touch, you’re more than welcome to keep me on Facebook, keep my number, or follow me on TikTok.

I know this decision may disappoint some people, and if you feel I’ve let you down, I am genuinely sorry. Please know this hasn’t been an easy choice, but I have to start putting my own health and recovery first.

This isn’t goodbye forever.

FND HBH isn’t ending it is simply being put on pause. I truly believe it will return one day, but only when I’m in a stronger place mentally and physically and able to give it the time and energy it deserves.

Thank you for every conversation, every message, every meet-up, every donation, every laugh, and every person who helped make this community what it became. I will always be incredibly proud of what we’ve achieved together.

Take care of yourselves, and thank you for being part of this journey.

❤️ Jordan

09/06/2026

💛 Important HBH Update 💛

Hello everyone,

After a lot of thought and discussion, we wanted to share an important update with our HBH community.

Due to personal health and mental health challenges, HBH will be focusing on virtual support groups and events for the foreseeable future. These sessions may be hosted by myself, my husband Skye, or one of our amazing admin team members.

As many of you know, we have always tried to be open and honest with our community. Right now, we have reached a particularly difficult period in our personal lives that requires our attention, time, and energy. While we navigate this, we need to focus more inwardly and prioritise our home life, health, and wellbeing.

For this reason, all in-person HBH events will be paused for the next few months. This has not been an easy decision, but it is the right one for us at this time.

However, HBH is not going anywhere.

We remain fully committed to supporting our community and ensuring that people continue to have access to support, understanding, friendship, and connection. Over the next few days, we will be releasing a calendar of virtual support meetings via Google Meets, along with online events and social media activities that everyone can take part in from home.

We understand this news may be disappointing for some, and we truly appreciate your understanding. Please remember that, like many of you, we are also living with our own symptoms, flare-ups, health challenges, and personal circumstances. We are doing the very best we can while balancing those things alongside supporting others.

Everything we do at HBH comes from a place of genuine care. The decision to continue virtually is because we firmly believe that support should remain available, even if it looks a little different for a while.

Thank you for your patience, kindness, and continued support. It means more than words can express.

Please be kind to yourselves, look after one another, and remember that asking for support is a strength, not a weakness.

💛 Together We Heal. Together We Grow. 💛

Jordan, Skye & The HBH Team
Healing • Belonging • Hope

On a personal note, I would like to thank everyone who attended the support group this morning/afternoon and for having ...
09/06/2026

On a personal note, I would like to thank everyone who attended the support group this morning/afternoon and for having the courage to open up, share your experiences, and support one another.

One important thing to remember is that no matter how far along we are on this journey, or how long we have been living with these challenges, we are not alone. We have each other, and together we are stronger than we often realise.

Our minds and bodies have adapted, endured, and overcome so much more than we give ourselves credit for. Every day, we continue to face challenges that many people will never fully understand, yet we keep going.

I want to say how incredibly proud I am of every single person who is walking this path. Whether today was a good day, a bad day, or somewhere in between, you are still here, still fighting, still learning, and still growing into a new version of yourself.

That takes real strength.

Keep believing in yourself, keep showing yourself kindness, and remember that even on the days you feel weak, your resilience shines through.

You are stronger than you know. ❤️

Join our virtual support meeting meet.google.com/axk-fvup-jju Or dial: (GB) +44 20 3957 3571 PIN: 152 509 045 # More num...
09/06/2026

Join our virtual support meeting

meet.google.com/axk-fvup-jju
Or dial: (GB) +44 20 3957 3571
PIN: 152 509 045 #
More numbers: t.meet/axk-fvup-jju

06/06/2026

🧠🏆 TONIGHT'S THE NIGHT! 🏆🧠

Who will be crowned the FND-HBH Brain Box Champion? 👑

Join us tonight for our FND-HBH Quiz Night where we'll be putting your knowledge to the test with a mix of general knowledge, music, TV, film, entertainment, and more!

📅 Tonight ⏰ 7:00pm – 9:00pm 📍 Google Meets

🎯 How it works: ✋ Be the quickest to raise your virtual hand. ✅ Answer correctly and score a point. 🧊 Answer incorrectly and you'll be iced out for the next question. 👑 The person with the most points at the end will take the crown!

📱 To take part, please make sure you're in our WhatsApp Community.

🔗 The Google Meets link will be posted in the WhatsApp group approximately 15 minutes before the quiz begins.

Most importantly, come along, have a laugh, meet new people, and enjoy an evening of Healing • Belonging • Hope with our amazing community. 💛

Good luck everyone!

🧠 Who will take the crown?

LET'S FIND OUT! 👑

🧠🧡 FND-HBH Quiz Night is Here! 🧡🧠Think you’ve got what it takes to be crowned the Brain Box of the Community? 👑Join us f...
05/06/2026

🧠🧡 FND-HBH Quiz Night is Here! 🧡🧠

Think you’ve got what it takes to be crowned the Brain Box of the Community? 👑

Join us for an evening of laughter, friendly competition, and community spirit as we put your knowledge to the test! Whether you’re a quiz master or just joining for the fun, everyone is welcome.

📅 6th June
⏰ 7:00pm – 9:00pm
📍 Google Meets

💬 To take part, make sure you’re in our WhatsApp community group. The Google Meets link will be shared 15 minutes before the quiz begins.

🎯 How it works:
✋ First virtual hand up gets the chance to answer.
✅ Get it right and score a point.
🧊 Get it wrong and you’ll be iced out for the next question.
🏆 The person with the most points at the end takes the crown!

At FND-HBH, it’s never just about the quiz. It’s about bringing people together, creating friendships, and having a few laughs with people who truly understand the journey.

Who’s taking the crown this month? 👀

Let’s find out!

04/06/2026

Anyone else need a full committee meeting before their body agrees to wake up? 😂

Every morning feels like a roll call…

🧠 Brain: “Present… but give me 20 minutes.”
👀 Eyes: “We’re open, but we’re not focusing.”
🦵 Legs: “Absolutely not.”
💪 Arms: “Maybe after a coffee.”
🚶 Body: “Let’s just lie here and think about going to the toilet.”

Honestly, some mornings it can take me up to an hour just to get all the body parts communicating with each other and functioning enough to attempt the basics! 🤣

Please tell me I’m not the only one? Does anyone else with a chronic illness, FND, fibromyalgia, or other conditions feel like their body wakes up one part at a time?

Drop a comment and let me know your morning routine (or struggle!) 👇❤️

🧡 Thank You Everyone 🧡A huge thank you to everyone who attended yesterday’s FND-HBH event.Whether you joined to share yo...
31/05/2026

🧡 Thank You Everyone 🧡

A huge thank you to everyone who attended yesterday’s FND-HBH event.

Whether you joined to share your experiences, listen, learn, support others or simply spend time with people who understand, your presence helped make the event special.

One of the things we are most proud of at FND-HBH is seeing people come together, build friendships, support one another and realise that they are not facing this journey alone. Every conversation, every smile and every shared experience helps strengthen our community.

We hope you found the event welcoming, supportive and enjoyable, and that you left knowing there is a whole community standing beside you.

We would also like to thank everyone who continues to support FND-HBH behind the scenes. From attending events and sharing posts to offering encouragement to fellow members, you all play a part in making this community what it is.

👀 Keep your eyes peeled over the coming weeks!

We have plenty of virtual events planned throughout the month, including wellbeing sessions, social activities, games, support meetings and opportunities to connect with others who truly understand life with FND and chronic illness.

We’ll be announcing dates and details very soon, so keep an eye on the community chats and social media pages.

Thank you once again for being part of FND-HBH.

Healing • Belonging • Hope 🧡

You are valid.
You are strong.
You are enough.

Important AnnouncementDue to ill health, we have made the decision to postpone the upcoming FND-HBH Fundraising Battle u...
31/05/2026

Important Announcement

Due to ill health, we have made the decision to postpone the upcoming FND-HBH Fundraising Battle until further notice.

As many of you know, living with chronic illness and FND can be incredibly unpredictable, and sometimes health needs to take priority. The wellbeing of everyone involved is far more important than any event, and we fully support the decision to take the time needed to focus on recovery.

We would like to thank everyone who has supported the event, shared the posters, and planned to join us. Your kindness, understanding, and continued support mean so much to us.

This is not goodbye to the event—just a pause. We hope to bring the Fundraising Battle back in the future when the time is right and everyone is feeling well enough to enjoy it.

In the meantime, please join us in sending love, support, and understanding to those affected. Health always comes first.

Thank you for your patience and for continuing to support the FND-HBH community and our mission of Healing, Belonging, and Hope.

Much love,

Jordan, Skye & The FND-HBH Team 🧡

Healing • Belonging • Hope

🔥 FND-HBH FUNDRAISING BATTLE IS ON! 🔥It’s time for an epic showdown as (Skye) takes on in a fun-filled fundraising bat...
30/05/2026

🔥 FND-HBH FUNDRAISING BATTLE IS ON! 🔥

It’s time for an epic showdown as (Skye) takes on in a fun-filled fundraising battle to raise awareness and support for those living with Functional Neurological Disorder (FND)!

🏆 One Night. Two Creators. One Cause.
💜 You decide the winner!

📅 31st May
⏰ 6:00pm – 7:30pm
📍 LIVE on TikTok

Get ready for:

🦖 Character Battle: Spider-Man vs Dinosaur
💦 Don’t Laugh Challenge (with water!)
🌶️ Hot Sauce Challenge
🧁 Attack of the Cream!
❓ The Flour Shower Quiz (hosted by Becky)

Every like, gift, share and donation helps us continue spreading awareness, providing support, and growing the FND-HBH community built on our core values of:

💜 Healing
💜 Belonging
💜 Hope

Bring your friends, pick your team, and join us for an evening of laughter, chaos, challenges, and community spirit — all while supporting an incredible cause.

Team or Team … who are you backing? 👀

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