(Charity registration: 1127861) Welcome to the official page of the Fragile X Society! Through this page we will to keep you up to date with news from the Fragile X Society, as well as Fragile X research news and other information relevant to Fragile X Syndrome. Fragile X Syndrome is the most common inherited cause of learning disability and the leading known single gene cause of autism.
We also have a community group which you can join, where families affected by Fragile X Syndrome can meet and discuss together https://www.facebook.com/groups/270376961522/?fref=ts
The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome. At that time there were no facilities to support and inform families about any aspect of fragile X, and so the Society came into existence. Discovering that your child has fragile X can be a devastating experience. We want families to have the opportunity of support from others who know the problems, and to have access to full information about the syndrome, including the latest medical, psychological and educational research findings. With a fuller understanding of the condition, parents can be far more constructive and effective in helping their children to reach their full potential. As well as finding information on this page, why not visit the UK Fragile X Society website www.fragilex.org.uk, where we have lots of information and free resources available.
