Tbpi-Uk

Tbpi-Uk The TBPI Group has been set up to help those with the injury, While posting here is welcomed please Stretch
The nerve has been damaged but not torn.

The Brachial Plexus is an intricate collection of nerves originating in the spinal cord at the neck and shoulder. These nerves supply the whole of the upper limb with movement and sensory perception. Any damage sustained through injury to this vital collection of nerves may have far reaching consequences and symptoms may include a limp or paralyzed arm, lack of muscle control in the arm, hand, or

wrist, and lack of feeling or sensation in the arm or hand. Although injuries to the brachial plexus may be many and varied, they are usually classified into one or more of the following types of injury. Depending on the degree of injury to the nerve, scar tissue may cause a neuroma, which prevents the nerve from conducting signals to the muscles. Rupture
The nerve is torn but not where it attaches to the spinal cord. Avulsion
The nerve is torn from the spinal cord. This is the most severe type of injury. Throughout the U.K. and the rest of the world there are many hundreds of people who have a brachial plexus injury, usually the result of a traumatic experience such as a road traffic accident. Although these injuries are relatively rare, their effects and severity can be very wide ranging, from mild reduction in function or feeling in the arm, shoulder or hand to total paralysis of the upper limb. In every case, there is a great need for sympathetic understanding along with moral and practical support. The purpose of the group is to share support and information with adults with a TBPI and their families who are trying to cope with the effects of these injuries, and to achieve a better understanding of their potentially life altering impact. At first, most people who have these injuries feel isolated and alone, unaware that our group exists. This page has been compiled with this in mind by people who have a TBPI and who are more than willing to listen, share experiences and help to solve common problems such as going back to work, driving and resuming sporting activities, to name but a few.

03/06/2026

I've received the following from Stuart Baldock, founder of AdaptAbility Solutions Ltd.

Hi Neil,
Firstly, thank you for taking the time to explore AdaptAbility yourself and for offering to share it with the TBPI-UK community and your wider contacts.
As promised, I've attached a short information sheet and a draft post that you are welcome to use, adapt, or share in whatever way works best for the group.
AdaptAbility has grown out of my own experience of living with a brachial plexus injury following a motorcycle accident in 1999. Over the years I've become increasingly interested in the difference between a diagnosis and the practical reality of everyday capability – the things people are trying to do, the barriers they encounter, and the adaptations they develop along the way.
The platform isn't designed to diagnose, assess, or replace professional advice. Instead, it's intended to help people explore their own experiences and generate a structured summary that may help them better understand what is working well, what is difficult, and where adaptations may already exist.
Following recent feedback, I've also completed a number of improvements to the onboarding experience to make it clearer for people exploring everyday life, hobbies, independence, fatigue, driving, sleep, and other personal situations outside of a workplace setting.
At this stage I'm looking for approximately 20 volunteers who would be willing to try the platform and provide honest feedback through the short feedback form at the end of the exploration.
Positive feedback is always nice to receive, but constructive criticism is equally valuable. The aim is to learn from real users and continue improving the experience.
Thank you again for your support. It genuinely means a lot to have the opportunity to share the project with a community that understands adaptation through lived experience.
Kind regards,
Stuart Baldock
Founder
AdaptAbility Solutions Ltd


ADAPTABILITY™ COMMUNITY PILOT What is AdaptAbility? AdaptAbility is a capability exploration platform designed to help people explore everyday activities, routines, hobbies, work, independence, fatigue, and life adaptations. It is not: • A medical assessment • A diagnosis • A fitness-for-work assessment • A test with right or wrong answers Instead, it provides a guided exploration focused on: "What are you trying to do, and what is getting in the way?" Who might find it useful? People living with: • Brachial Plexus Injuries • Limb differences • Chronic pain • Fatigue-related challenges • Neurological conditions • Long-term health conditions • Life-changing injuries or adaptations What happens? • Choose a pathway relevant to you • Explore a topic through guided conversation • Respond using options, free text, or a mix of both • Receive a personalised Capability Summary What am I looking for? Honest feedback. I am currently inviting approximately 20 volunteers to help test the platform and provide feedback on: • Ease of use • Clarity • Relevance • Usefulness • Overall experience How long does it take? Most explorations take between 10 and 30 minutes depending on the topic and depth of discussion. Privacy AdaptAbility is designed as a private, user-controlled exploration experience. The platform does not provide medical advice, diagnoses, or treatment recommendations.

If you would like to participate, please send Stuart an email expressing your interest. ([email protected]) Pilot participants will then receive:
• Access instructions
• Pilot information
• Exploration access code
• Feedback form details
Thank you for helping shape a community-led project built from lived experience.
Stuart Baldock Founder – AdaptAbility Solutions Ltd

02/06/2026
18/04/2026
29/03/2026

Thank you very much to those who were able to make it to the March NIRA meeting. It was great to see you all and hear what you think could be done to improve recovery and regain of function following nerve injury.

March Meeting Summary

The NIRA March meeting focused on the topic of recovery and regain of function following nerve injury. The questions below capture the highlights of the discussion among the 14 attendees on what research could be done to improve recovery and functional outcomes:
How can stem cells and cell-based therapies be made more widely available in nerve injury treatment?
How long post‑injury can recovery still occur?
Could improving neuropathic pain management improve engagement with physiotherapy and therefore recovery?
What can be done to increase the speed of regeneration?
How can muscle function be preserved in the window between surgery and physiotherapy?
In addition to these questions, the group highlighted the value of a longitudinal study examining physiotherapy options following nerve injury, particularly to understand how rehabilitation regimes should evolve over the years and decades post‑injury to minimise long‑term impact and maximise recovery.

If there are any other ideas/comments this summary sparks contact this online message board: https://app.sli.do/event/uewr6a9zyyGuiEWMEXU1Zj

Next meeting is Thursday 23 April at 6pm

Thank you very much to those who were able to make it to the March NIRA meeting. It was great to see you all and hear wh...
29/03/2026

Thank you very much to those who were able to make it to the March NIRA meeting. It was great to see you all and hear what you think could be done to improve recovery and regain of function following nerve injury.

March Meeting Summary

The NIRA March meeting focused on the topic of recovery and regain of function following nerve injury. The questions below capture the highlights of the discussion among the 14 attendees on what research could be done to improve recovery and functional outcomes:
How can stem cells and cell-based therapies be made more widely available in nerve injury treatment?
How long post‑injury can recovery still occur?
Could improving neuropathic pain management improve engagement with physiotherapy and therefore recovery?
What can be done to increase the speed of regeneration?
How can muscle function be preserved in the window between surgery and physiotherapy?
In addition to these questions, the group highlighted the value of a longitudinal study examining physiotherapy options following nerve injury, particularly to understand how rehabilitation regimes should evolve over the years and decades post‑injury to minimise long‑term impact and maximise recovery.

If there are any other ideas/comments this summary sparks contact this online message board: https://app.sli.do/event/uewr6a9zyyGuiEWMEXU1Zj

Next meeting is Thursday 23 April at 6pm

Arising from the recently formed NIRA this is a new group set up be Conor Todd whereby BPI’s can get together online for...
29/03/2026

Arising from the recently formed NIRA this is a new group set up be Conor Todd whereby BPI’s can get together online for an informal chat about anything and everything nerve injury related.
Conor’s message to you all is below;

‘Nerve Connections is a welcoming, informal space for those living with nerve injury, and their loved ones, to come together over a cuppa and get to know one another.

I plan to host this meeting on the 1st Thursday of every month from 18:00 to 18:40. I currently have a standard zoom account so will be limited to 40 minute meetings but I can start another meeting if we want to talk for longer.

The first meeting will be on Thursday 2nd April, Details for the Zoom meeting are below:
https://us04web.zoom.us/j/77668635791?p ... EV6sIKGf.1

Meeting ID: 776 6863 5791
Passcode: 527194

I will send out a reminder with the meeting info on Wednesday.’

Arising from the recently formed NIRA this is a new group set up be Conor Todd whereby BPI's can get together online for...
29/03/2026

Arising from the recently formed NIRA this is a new group set up be Conor Todd whereby BPI's can get together online for an informal chat about anything and everything nerve injury related.
Conor's message to you all is below;

'Nerve Connections is a welcoming, informal space for those living with nerve injury, and their loved ones, to come together over a cuppa and get to know one another.

I plan to host this meeting on the 1st Thursday of every month from 18:00 to 18:40. I currently have a standard zoom account so will be limited to 40 minute meetings but I can start another meeting if we want to talk for longer.

The first meeting will be on Thursday 2nd April, Details for the Zoom meeting are below:
https://us04web.zoom.us/j/77668635791?p ... EV6sIKGf.1

Meeting ID: 776 6863 5791
Passcode: 527194

I will send out a reminder with the meeting info on Wednesday.'

Zoom is the leader in modern enterprise cloud communications.

In next week’s NIRA meeting, we will focus on what research you think could be done to support recovery and regain of fu...
13/03/2026

In next week’s NIRA meeting, we will focus on what research you think could be done to support recovery and regain of function following a nerve injury. Please share any questions/comments you have around this topic using the link below:
https://app.sli.do/event/nE7t2BCaHSjaZBPY9dyKkA

To make sure it is the voice of those with lived experience and their loved ones that is the loudest, we ask that researchers and clinicians without a nerve injury refrain from suggesting research questions at this early stage.

Our March meeting will be on Thursday 19th March 6 pm - 7.30 pm. The joining details are below - these will be circulated again the day before in the reminder email.
https://ucl.zoom.us/j/93320545221?pwd=L ... Bu0GMOOj.1
Meeting ID: 933 2054 5221
Passcode: 068746

If you have any questions or suggestions on how to improve NIRA, please send us an email and let us know. We are keen to make sure NIRA evolves into a group that works for all its members.

Thank you all very much for your support.
Looking forward to meeting next week.
Best wishes,
Mel, Neil, Conor & Poppy
The Nerve Injury Research Alliance Team

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