The Neurological Alliance of Scotland

25/08/2026

The Scottish Head Injury Forum are hosting a brain injury exhibition and networking event on the 3 September in Aberdeen.

Across the day you'll hear from SHIF Convenor Paula Gribben, SAMH – The Nook Aberdeen, the Brain Injury Group (BIG), a survivor sharing their own story, advice.scot, neurophysiotherapist Hamza Godhrawala, and road safety charity Brake.

Spaces are free for brain injury survivors, families, carers, NHS, Local authority, small charities and students.

Register below ⬇️

📍 Still time to book — Aberdeen Brain Injury Exhibition & Networking Event

Join us on Thursday 3 September 2026, 10am–4pm at the Civic Rooms, Town House, Union Street, Aberdeen, AB11 5BU.

It's a relaxed, welcoming day for anyone affected by brain injury — survivors, families, carers, professionals and organisations. Browse exhibition stands from local and national services, hear from experts and people with lived experience, pick up practical resources, and connect with others who understand.

Come for the full day or drop in whenever suits you. To attend, simply register for SHIF membership — free for ABI survivors, families, carers, NHS and local authority staff, and small charities.

👉 Register now: https://www.zeffy.com/en-GB/ticketing/scottish-head-injury-forums-memberships

24/08/2026

If you're caring for someone with a neurological condition, you don't have to navigate it alone. Whether you're new to caring or planning ahead for the future, our resources can help you access information, support and practical guidance.

Co-produced with our charity members, our resources include an A-Z of neurological conditions and relevant support from Neurological Alliance of Scotland members and carers organisations, practical factsheets on self directed support, and guides on what to expect when you're new to caring, working with advocacy services, and planning ahead.

Explore our resources for carers today: https://www.scottishneurological.org.uk/information-and-resources/

19/08/2026

New member announcement 📣

We are delighted to welcome the Batten Disease Family Association as our newest member of NAoS.

The Batten Disease Family Association (BDFA) CIO is the UK’s only charity dedicated to supporting families affected by Batten disease, a rare, life-limiting neurodegenerative condition. Batten disease primarily affects children, with most dying in childhood or early adulthood, depending on the subtype. BDFA provides information, practical and emotional support, raises awareness, advocates for improved care and access to treatments, and promotes research to improve outcomes and ultimately find a cure. Their mission is simple: to ensure that no family affected by Batten disease walks this journey alone.

Find our more about their work and the support they offer on their website: https://www.bdfa-uk.org.uk/

We look forward to working together!

27/07/2026

Registrations are open for our upcoming webinar: 'Bridging the Gap: Understanding neurological conditions and mental health in children and young ​people'.

This webinar is designed for professionals working with children and young people impacted by neurological conditions and those responsible for planning services and support for young people.

📆 Monday 7 September, 4-5pm

Find out more and register here: https://bit.ly/4fraVP5

23/07/2026

Do you work for a UK charity which supports people impacted by neurological conditions?

As a member of the Neurological Alliance of Scotland, you'll be able to:
➡ Influence Scottish Government policy and priorities affecting neurological care and support
➡ Raise awareness of issues important to your community with key decision-makers and wider audiences in Scotland
➡ Connect and collaborate with a network of organisations facing shared challenges
➡ Gain insight into emerging issues affecting people living with neurological conditions and their families in Scotland

Become a member of the Neurological Alliance of Scotland by completing the 'Join Us' form on our website: https://www.scottishneurological.org.uk/join/

Full membership is open to any not for profit organisation who is interested in furthering the objects of the Alliance.

A special thank you to Kripen Dhrona from British Polio Fellowship for this kind testimony.

22/07/2026

Many young people provide care and support for a parent, sibling or family member living with a neurological condition.

The experiences, insights and priorities of young carers are invaluable, and it's essential that they are included in conversations about improving support. We encourage young carers across Scotland to have their say through the survey below.

📢 Young carers - we want to hear from you!
What would you change to improve life for young carers in Scotland?

The Young Carers Voice Survey 2026 is now open and we'd love to hear your views. Your feedback will help shape discussions at this year's Scottish Young Carers Festival and inform our work to improve support for young carers.
✅ Takes around 5 minutes
✅ Anonymous
✅ Open to all young carers in Scotland
Take part here: https://carerstrust.surveymonkey.com/r/7NF3FYM

20/07/2026

Do you have a passion to support the neurological third sector?

Applications are currently open to become a NAoS trustee.

This is a fantastic chance for candidates to develop their career and contribute to the wider neurological community by sharing expertise.

To be eligible to be a trustee, you must work for a NAoS member charity.

If you would like to find out more about the role and how to apply, please email [email protected].

Applications will close 1 September 2026.

17/07/2026

Registrations are open for our upcoming webinar: 'Bridging the Gap: Understanding neurological conditions and mental health in children and young ​people'

📆Monday 7 September, 4-5pm

This webinar explores the often-overlooked mental health impact of neurological conditions on children and young people. Aimed at professionals working with children and young people, the session will highlight how neurological conditions can affect emotional wellbeing, behaviour, and daily functioning, often in ways that are not immediately visible.

Drawing on evidence and case studies, we will examine the challenges children and families face in accessing appropriate support, including gaps in understanding and service provision.

We will also share practical insights, recommendations, and sources of support to help professionals better recognise need, respond effectively, and work collaboratively to improve outcomes for children and young people.

About the speakers:

Gillian Mathewson is the Founder and Chair of PANS+ Scotland, a not-for-profit organisation working to improve understanding, recognition and rights‑based support for children, young people and adults in Scotland affected by Paediatric Acute‑onset Neuropsychiatric Syndrome (PANS) and other immune‑mediated neuropsychiatric conditions. Gillian is GTC registered teacher and a parent of a child impacted by PANS.

Alison Phillipps is Head of Quality, Partnerships and Innovation at The Scottish Centre for Children with Motor Impairments (Craighalbert) and Chair of the Neurological Alliance of Scotland's mental health subgroup. Alison has over 30 years' experience supporting children and young people with complex neurological conditions and their families, working across education, therapy, and care services in mainstream, specialist, private, and third-sector settings.

If you work with children and young people, we encourage you to register using this link: https://bit.ly/4fraVP5

03/07/2026

Do you work for a UK charity?

As a member of the Neurological Alliance of Scotland, you'll be able to:

➡ Influence Scottish Government policy and priorities affecting neurological care and support
➡ Raise awareness of issues important to your community with key decision-makers and wider audiences in Scotland
➡ Connect and collaborate with a network of organisations facing shared challenges
➡ Gain insight into emerging issues affecting people living with neurological conditions and their families in Scotland

Become a member of the Neurological Alliance of Scotland by completing the 'Join Us' form on our website: https://www.scottishneurological.org.uk/join/

Full membership is open to any not for profit organisation who is interested in furthering the objects of the Alliance.

A special thank you to Rich Collins at Inflammatory Neuropathies UK for this kind testimony.

02/07/2026

Looking for information and resources on how best to support someone living with neurological conditions and/or their carers?

If you work in health and social care, education, housing, employability, community services, the voluntary sector, or provide unpaid care, our website offers a range of free resources designed to help you better support people affected by neurological conditions.

Our resources include:
✅ Guidance for professionals on how best to support people who have a/multiple neurological conditions
✅ Information for carers and an A-Z of specialist support organisations
✅ A toolkit for people working with children and young people on how best to support their mental health
✅ Self-Directed Support factsheets
✅ Information on neurological care standards in Scotland

Explore our information and resources here ➡

These are the most recent standards of care for neurology which aim to ensure consistency in the approach to neurological care and support services across Scotland. They are applicable to anyone living with a neurological condition in Scotland.