Tourettes Action

Tourettes Action Our page brings you the latest news relating to Tourette Syndrome, & Tourettes Action services & info. Please message us with any questions you might have.

Tourettes Action's social media platforms create a space for people in the TS community to come together, interact, access information, and support one another; and as a facilitator we want everyone in the community to benefit from using our online communication channels. We therefore require that everyone who engages with Tourettes Action and their social media followers online, adhere to our soc

ial media code of conduct:

Please conduct yourself in a manner which isn’t insulting or threatening, and doesn’t use language which discriminates against others by showing proper consideration for ethnic, cultural, sexual, political or social status, and avoid posts or activities which others may find offensive

Thank you for being part of this community and we hope you find our social media channels and all contributions valuable.

Want to keep up to date with what's happening at Tourettes Action? 💚Our monthly e-newsletter shares updates from across ...
23/08/2026

Want to keep up to date with what's happening at Tourettes Action? 💚

Our monthly e-newsletter shares updates from across the community, including news, events, support groups, fundraising stories and new resources.

If you'd like to receive it straight to your inbox each month, you can sign up via the Community section of our website.

We'd love to have you with us. 💚

https://www.tourettes-action.org.uk/80-ta-newsletter.html

Could your child or young person take part in the SATURN study? 💚The SATURN research team is looking for children and yo...
23/08/2026

Could your child or young person take part in the SATURN study? 💚

The SATURN research team is looking for children and young people aged 6-16 who have both ADHD and tics to take part in a research study.

The study aims to help identify the best medication options for children and young people with ADHD and a co-existing tic disorder.

If your child or young person may be eligible, you can find out more about the study and how to take part here:

🔗https://buff.ly/wdPRgF0

Research like this helps us build a better understanding of the experiences of young people living with ADHD and tics and can help inform future treatment and support. 💚

We were delighted to be invited back to Heathrow Airport for another incredible behind-the-scenes experience!Four young ...
23/08/2026

We were delighted to be invited back to Heathrow Airport for another incredible behind-the-scenes experience!

Four young people from the Tourette’s community were given a unique look at what goes on beyond the terminal, including a tour of the baggage handling area, which processes around 5,000 items of luggage every day, a visit to the top of the control tower and even a ride along the runway in a fire engine! 🚒

It was a brilliant day filled with new experiences and memories that we know will stay with them for a long time.

A huge thank you to our friends at Heathrow Airport for once again making this possible. Their continued support helps create opportunities where young people with Tourette syndrome can feel welcomed, included and celebrated, while also helping to build greater understanding and awareness of TS. 💚

We’re incredibly grateful to everyone involved in making the day so special! ✈️💚

New blogs, every week 💚Looking for stories, information and insights about Tourette syndrome?Our blog is updated regular...
22/08/2026

New blogs, every week 💚

Looking for stories, information and insights about Tourette syndrome?

Our blog is updated regularly with stories from people with lived experience, research, advice, community news and more.

There’s always something new to discover.

Take a look at our latest blogs and explore the full collection on our website:

🔗 https://www.tourettes-action.org.uk/101-ta-blog.html

You might find a story that helps you feel less alone, information that answers a question, or a new perspective that helps you understand Tourette syndrome a little better. 💚

Taking support to new heights! 🪂💚A huge well done to Sandra and Nicola, who both took on an incredible skydive in suppor...
22/08/2026

Taking support to new heights! 🪂💚

A huge well done to Sandra and Nicola, who both took on an incredible skydive in support of Tourettes Action.

Sandra jumped for her son Jenson, and Nicola for her son Jacob, raising vital funds and awareness for the Tourette’s community.

Thank you both for taking on such an amazing challenge! 👏

https://www.justgiving.com/fundraising/nicola-cheetham2026

https://www.justgiving.com/page/sandra-grummitt-2

Feeling inspired? What challenge could you take on for Tourettes Action?

Did you know you can support Tourette Action and be in with the chance to win a cash prize every week?For just £1 per ti...
21/08/2026

Did you know you can support Tourette Action and be in with the chance to win a cash prize every week?

For just £1 per ticket, you’ll be entered into a draw with a guaranteed weekly winner, plus the chance to scoop the top prize of £25,000.

Every ticket helps us continue our work supporting the 300,000 people living with Tourette syndrome in the UK. It's a fun and easy way to give back — and you might even win big.

💚 Sign up now and play your part:
https://www.onelottery.co.uk/support/tourettes-action

🚀 Planning an epic fundraising challenge for Tourettes Action? We want to hear from you! 🚀Have you got an ambitious adve...
21/08/2026

🚀 Planning an epic fundraising challenge for Tourettes Action? We want to hear from you! 🚀

Have you got an ambitious adventure or extraordinary challenge in the pipeline to raise funds for Tourettes Action?

The givestar Adventure for Good Grant has a £250,000 funding pot available to help fundraisers cover costs such as travel, kit, food and entry fees, helping turn incredible fundraising ideas into reality. Applications are open to individuals taking on significant fundraising challenges, with applications closing on 31 August 2026.

Whether you're planning a trek, endurance event, cycle ride, skydive, or something completely unique, we'd love to hear about it and support you.

👉 Find out more and apply here: https://info.givestar.io/grants

💙 Good luck, and thank you for supporting the Tourette syndrome community.

Message from CEO Emma McNally.I want to say a huge THANK YOU to everyone who supported our BBC Lifeline Appeal by watchi...
21/08/2026

Message from CEO Emma McNally.

I want to say a huge THANK YOU to everyone who supported our BBC Lifeline Appeal by watching, sharing, commenting and helping raise awareness of Tourette syndrome.

Over the past few weeks, we've shared the stories of Danielle, Freya and Matthew with audiences across the UK. Their stories have helped to challenge misconceptions about Tourette’s and shine a light on the importance of understanding, support and community.

We're incredibly grateful to everyone who helped make the appeal possible, especially our presenter Eddie Marsan, our contributors and their families, and the BBC team who worked alongside us to bring these important stories to life.

Thank you to every single person who watched, shared a post, left a comment, started a conversation, or made a donation. Every action helped us reach more people and increase understanding of Tourette syndrome.

And lastly thank you to my wonderful team at TA who have worked their socks off to pull this together.

Although the BBC appeal has now ended, our work continues. Every day, Tourettes Action provides support, information and advocacy for people living with Tourette syndrome and their families.

We're proud to have brought the voices of the Tourette’s community to a national audience and look forward to building on the awareness created through this incredible opportunity.

Thank you for being part of this journey with us.

A huge thank you to Millie and her family for turning their creativity into something that is making a real difference.I...
20/08/2026

A huge thank you to Millie and her family for turning their creativity into something that is making a real difference.

Inspired by the Tourettes Action logo, Millie and her family have been hand-making and selling their own ‘Jelly Babies’ to raise funds and awareness of Tourette syndrome.

They’ve already raised an incredible £113, with more still to come!

We’re so grateful for their support and for helping more people understand Tourette syndrome and the realities of living with the condition.

Thank you, Millie and family, for helping us spread awareness and support the Tourette’s community. 💚

A big good luck to everyone finding out their results today.Whether you’re heading to sixth form, college, starting an a...
20/08/2026

A big good luck to everyone finding out their results today.

Whether you’re heading to sixth form, college, starting an apprenticeship, going into work or still figuring out what comes next, there’s no single route to where you want to be.

Today is just one milestone in a much bigger journey, so whatever your results, take a moment to recognise everything it took to get here.

From all of us at Tourettes Action, congratulations on reaching this point and good luck with your next chapter! 💚

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