Tourettes Action

Tourettes Action Our page brings you the latest news relating to Tourette Syndrome, & Tourettes Action services & info. Please message us with any questions you might have.

Tourettes Action's social media platforms create a space for people in the TS community to come together, interact, access information, and support one another; and as a facilitator we want everyone in the community to benefit from using our online communication channels. We therefore require that everyone who engages with Tourettes Action and their social media followers online, adhere to our soc

ial media code of conduct:

Please conduct yourself in a manner which isn’t insulting or threatening, and doesn’t use language which discriminates against others by showing proper consideration for ethnic, cultural, sexual, political or social status, and avoid posts or activities which others may find offensive

Thank you for being part of this community and we hope you find our social media channels and all contributions valuable.

We would like to say a massive thank you to Aoife Meil and Riley McKenzie, two Year 5 pupils from Victoria Junior School...
15/06/2026

We would like to say a massive thank you to Aoife Meil and Riley McKenzie, two Year 5 pupils from Victoria Junior School, who have been raising awareness and funds for Tourettes Action during Tourette’s Awareness Month.

As the school's Tourette’s awareness ambassadors, Aoife and Riley decided to handmake and sell green Tourette’s awareness ribbons to their friends, teachers, and relatives. So far, they have raised over £100, with fundraising continuing until 15th June.

Not only have they raised valuable funds, but they have also helped increase awareness and understanding of Tourette syndrome amongst their peers and wider community.

We are incredibly grateful for your hard work, enthusiasm, and dedication. You are both fantastic ambassadors and should be very proud of what you have achieved.

Thank you, Aoife and Riley, for making such a positive difference 💚

Read more here: https://buff.ly/iBaYXIX

💚 Thank you for supporting 💚It's been wonderful to see so many photos coming in from across the UK of landmarks lighti...
15/06/2026

💚 Thank you for supporting 💚

It's been wonderful to see so many photos coming in from across the UK of landmarks lighting up in support of Tourette’s Awareness Month.

Every image shared helps spread awareness, start conversations, and show the Tourette syndrome community that they are seen and supported.

A huge thank you to everyone who has visited a landmark, taken a photo, and shared it with us. We love seeing your pictures and the support shown in communities across the country.

📸 Keep sending your photos in. We'd love to see even more!

A message from our CEO, Emma McNallyAs Awareness Month comes to a close, I want to take a moment to reflect on what has ...
15/06/2026

A message from our CEO, Emma McNally

As Awareness Month comes to a close, I want to take a moment to reflect on what has been an absolutely incredible, but equally bonkers and busy, few weeks. We have seen our community come together in ways like never before, and it has been amazing.

This month, we’ve been inundated with people reaching out for support. While the demand has been overwhelming at times, my amazing team have gone above and beyond, as they always do, to ensure that everyone who comes to us receives the help they need.

We are often told that Tourettes Action is a lifeline, that we are the only support people have, especially when health provision is so inconsistent.

Before I became the CEO, I was once a service user of this charity, just like you, so I know first-hand just how much this support means. I understand the difference it can make when someone truly listens, understands, and stands beside you. That’s why I am so passionate about ensuring we can continue to be there for others.

But we can only do this with your help. Our work depends on grant funding, donations, and the dedication of our incredible fundraisers.

If Tourettes Action has supported you or someone you love, please consider giving back. A small monthly donation of £5, can make a real difference. And if you are not in a position to donate yourself, please consider sharing our message to help us reach more people. Donate here https://www.tourettes-action.org.uk/47-donate.html

Every contribution, no matter the size, helps us continue to be there for those who need us most. Without this support, we simply couldn’t continue.

Thank you for standing with us.
Much Love Emma x

Join us for an upcoming webinar exploring Functional Neurological Disorder (FND), in collaboration with FND Hope.This se...
14/06/2026

Join us for an upcoming webinar exploring Functional Neurological Disorder (FND), in collaboration with FND Hope.

This session will look at the realities of living with FND, including how it can present, the real-world impact it can have, and the similarities and differences between FND tics and Tourette syndrome.

The webinar will also explore common myths and misunderstandings around FND, alongside some of the latest research and developments in the field.

🎙 Speaker: Carolyn Sullins, PhD – FND Hope
📅 23 June
🕖 7pm – 8pm (GMT)
💷 £5 to attend

Whether you are personally affected, supporting someone else, or simply looking to learn more, everyone is welcome to join.

https://buff.ly/vON8KGZ

📍 Venue update: Tourettes Action Colchester Support GroupPlease note there has been a change to the venue and start time...
14/06/2026

📍 Venue update: Tourettes Action Colchester Support Group

Please note there has been a change to the venue and start time for our upcoming Colchester Support Group on Sunday 21st June.

📅 Sunday 21st June
🕙 10:00am to 12:00pm
📍 Lexden Scout Hut, Collingwood Road, Colchester, CO3 9AX

Come along to meet other people with Tourette syndrome and families in a welcoming, supportive space. A chance to connect, share experiences, and make new friends.

Please contact Annie at [email protected] for more information or to register 💚

14/06/2026

💚 Buildings across the UK lit up in support of Tourette’s Awareness Month 💚

As Tourette’s Awareness Month draws to a close, we wanted to take a moment to celebrate and thank all of the landmarks, organisations, and communities that lit up in support of the Tourette syndrome community this year.

It has been incredible to see this initiative grow year after year. What started with a single bridge lighting up in St Helens in 2020 has grown into a UK-wide movement, with landmarks across the country showing their support and helping to raise awareness of Tourette syndrome.

We are so grateful to every venue that took part, everyone who shared photos, and everyone who helped spread the message. Together, you have helped start conversations, challenge misconceptions, and show the Tourette syndrome community that they are seen and supported.

Awareness Month may be almost over, but support does not stop here. In many ways, this is where it begins.

If you or someone you know is affected by Tourette syndrome, please remember that support is available. Whether you are looking for information, advice, community, or someone who understands, there are organisations ready to help.

Support is available from the Tourettes Action helpdesk [email protected] and our friends at Tourette Scotland , TIC Hull, Lincolnshire & Yorkshire , Genius Within CIC , and Tourette’s Support NI & ROI - each and everyone of us providing incredible support to people living with Tourette syndrome.

Please don't struggle alone. Reach out. We are here for you 💚

Several items have now sold out, and we're incredibly grateful for all of your support.More stock is expected next week....
13/06/2026

Several items have now sold out, and we're incredibly grateful for all of your support.

More stock is expected next week.

If you'd like us to let you know when it's back in stock, comment below 👇

Thank you for helping us spread the message and raise awareness of Tourette syndrome 💚

💚 Meet Zach Clarke 💚Zach is part of the amazing Green Team at Tourettes Action festival events, and during Tourette’s Aw...
13/06/2026

💚 Meet Zach Clarke 💚

Zach is part of the amazing Green Team at Tourettes Action festival events, and during Tourette’s Awareness Month he is taking on a fundraising challenge to support TA.

On Sunday 14th June, Zach will be shaving his head to help raise vital funds and awareness for people living with Tourette syndrome and their families across the UK ✂️

We’d love your support throughout the month by sharing his fundraiser page and helping cheer him on ahead of the big shave!

Good luck, Zach. We’re all behind you 💚

🔗 The Untamed Mane - A documentary no one asked for of hope, chaos and split ends!! Donate here https://givewheel.com/fundraising/16380/the-untamed-mane-a-documentary-no-one-asked-for-of/

💚 Tourette syndrome is more common than many people realise 💚Around 1 in every 100 children has Tourette syndrome, makin...
13/06/2026

💚 Tourette syndrome is more common than many people realise 💚

Around 1 in every 100 children has Tourette syndrome, making it as common as autism and childhood epilepsy.

Yet despite this, Tourette syndrome remains widely misunderstood, and many people still face misconceptions, stigma, and barriers to getting the support they need.

The more we talk about Tourette syndrome, the more we can increase understanding, challenge stereotypes, and create a more inclusive world for those living with the condition.

Awareness matters. Understanding matters. Conversations matter.

📢 Support our work:
📲 Text NOCHOICE to 70560 to donate £2
(Texts cost the donation amount plus one standard network rate message. To donate without updates, text NOCHOICENOINFO.)

💚 It was fantastic to see people visiting Penshaw Monument on 7th June as it lit up green in support of Tourette’s Aware...
12/06/2026

💚 It was fantastic to see people visiting Penshaw Monument on 7th June as it lit up green in support of Tourette’s Awareness Day and our campaign.

A huge thank you to everyone who headed along to show their support and help raise awareness of Tourette syndrome.

If you visited Penshaw Monument, we'd love to see your photos! 📸

Please share your pictures in the comments or send them to us so we can celebrate this incredible show of support with the wider Tourette syndrome community 💚

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