The Disability Campaign

09/01/2020

Happy New Year! This seems like its going to be a very poignant one for me.

I have recently been diagnosed with Craniocervical Instability (CCI), Atlantoaxial Instability (AAI) and Sub-axial Instability. This means the ligaments in my neck are unable to support and protect my brainstem and spinal cord. As a result, the weight of my head is slowly sinking onto my neck, compressing my brainstem.

I require an operation privately in either Barcelona or the USA (as there is no neurosurgeon in the UK experienced in performing this operation on people with hEDS or hypermobility) to make my head, neck and spine junction stable. An Occipitocervical Posterior Fusion Stabilisation with Intraoperative Reduction (Traction). This involves raising the skull, extending the vertebrae C0 (skull) to possibly T1 (base of the neck). This has a high probability of improvement as it will stop neurological compression and damage. Without this surgery, symptoms only worsen if left untreated. Currently, surgery is the only proven treatment for advanced cases of instability. I am only 21 at the moment, which is young to have such a bad case, and I fear if I don’t treat it I could end up paralysed or worse.

If you are able to donate, please do. Thank you SO much. I won‘t ever be able to show you how much it is appreciated. For me this will be life changing and very possibly life saving. If you are unable to donate, firstly thank you for taking the time to read this and could you please consider sharing this page to get the word out there and spread this as far as we can! 🖤

Weʼre raising money to please help Skye Wheeler get life changing spinal surgery.. Support this JustGiving Crowdfunding Page.

26/06/2018

Such a good idea!

06/06/2018

Speaking of disability fashion!! Get involved and get your voice out there 🙌

Seasalt Clothing fit and test all of their clothes on real people in order to achieve the best fit possible. And right now, they’re looking to create a range of clothes designed specifically for adults who are living with physical disabilities that make dressing a challenge. If this sounds like you, Seasalt would love to have a chat.

Seasalt are seeking participants for their focus group on 13th June 2018 to give feedback on a potential new range of accessible styles. They want to hear all about what you look for in clothes, which features make your life easier. Things like easy fastenings, wider arm holes and so on. They’re ready and waiting to hear all about what you look for in your wardrobe choices.

If you’re interested, please get in touch with Sara from Seasalt on [email protected]. They’d be delighted to hear from you.

06/06/2018

Such a massive step forward. They are killing it ❤️

08/05/2018

https://themighty.com/2018/05/billy-footwear-for-people-with-disabilities/?utm_source=Facebook&utm_medium=NP&utm_campaign=Cerebral_Palsy_Foundation

"I could never find a pair of shoes I could put on independently plus actually be happy and proud to wear."

08/05/2018

Listen live now to our girl Skye Wheeler talking about living with ME on BBC Radio 5 live right now!

BBC Radio 5 live sports extra

22/04/2018

This woman is an inspiration. If you can’t find what you’re looking for, do it yourself. Stand for what you believe in.

"It took me a long time to believe I could be a disabled parent in part because I found so few examples of other people doing it."

19/04/2018

Together we can conquer anything ❤️

"Those who are truly meant to be your friend will love you, limitations and all."

15/04/2018

She revealed her story like the absolute queen she is.

10/04/2018

How cool is this woman! Totally setting the record straight for all of us. *xy

Dayna Troisi is a s*x and dating columnist with a bionic arm. She discusses dating as an amputee, the technology of her bionic arm, and disclosing her disabi...

06/04/2018

Take action and talk about issues that are kept as secrets behind doors! The more we talk the more support we find!

04/04/2018

"If you feel like the world is getting you down, you should be the person to change it." Jillian Mercado is a Dominican American model who was diagnosed with...