Long Covid Connect UK

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Long Covid Connect UK Uniting UK🇬🇧 Community ▪️Resources▪️Awareness ▪️Activism
▪️Personal & shared Experiences Follow, support, and if you can, volunteer with us.

Welcome to Long Covid Connect UK, a volunteer-driven initiative by individuals who have lived with Long Covid or advocate for it. Our team boasts diverse backgrounds, knowledge, and experience, united in our mission to support the Long Covid locally with resources, emotional support, and essential services.

​We offer a free service unparalleled by any other Long Covid charity in the UK: our Emotional Support Helpline. Available to those in the UK suffering from or suspecting they have Long Covid, the helpline provides empathetic listening without offering medical advice. Our website is a treasure trove of resources, including medical updates, research, and blogs. Additionally, we host a patient-led Facebook support group and a befriending service to connect you with fellow warriors in your area. Long Covid Connect UK is not a charity or social enterprise but a collective of local community members offering a helping hand through shared knowledge and experiences. We aim to bridge the gap in support services within our community. Let's unite for a cause that matters. Best regards,
Long Covid Connect UK Team

03/10/2026

What happens when the very systems meant to help people become part of the problem?

🎙️The Psychologist’s Betrayal: The “Same Old Tactics” on New Patients

In Episode 5 of Long Covid Perspectives, I’m joined by Päivi Montgomery, psychologist, author of Sick and Tired, and someone living with Long Covid after being diagnosed with ME/CFS many years ago.

Together, we take a deep dive into the uncomfortable history of medical psychologisation, post-viral illness, power and patient denial — and ask whether the same old tactics are now being used against people with

If you live with Long Covid, ME/CFS, another post-viral illness, or have ever felt dismissed when you knew something was physically wrong, this episode is for you.

🎧 Listen to Episode 5 of Long Covid Perspectives — and share it widely.

Because patients deserve to be heard, believed and properly supported.

30/09/2026

🎙️The Psychologist’s Betrayal: The “Same Old Tactics” on New Patients

What happens when the very systems meant to help people become part of the problem?

In Episode 5 of Long Covid Perspectives, I’m joined by Päivi Montgomery, psychologist, author of Sick and Tired, and someone living with Long Covid after being diagnosed with ME/CFS many years ago.

Together, we take a deep dive into the uncomfortable history of medical psychologisation, post-viral illness, power and patient denial — and ask whether the same old tactics are now being used against people with

We explore:

🧠 How decades of psychologising ME/CFS helped create a culture of disbelief and neglect.

💷 How governments and insurance systems can benefit when physical illness is reframed as psychological.

🚫 The power of saying “no” — and the consequences for patients fighting for recognition and support.

🏃‍♀️ The trauma of being told to exercise your way out of serious physical illness.

👨‍👩‍👧 The psychological toll of living with debilitating illness, including the exhaustion of parenting while “dead tired.”

😷 What happens when society stops protecting vulnerable people from infection.

🔬 The growing biological evidence of neurological and multi-system involvement — and the ongoing struggle to have that evidence taken seriously.

This conversation goes beyond individual illness.

It examines power, politics, healthcare, benefits systems and the consequences of refusing to listen to patients.

If you live with Long Covid, ME/CFS, another post-viral illness, or have ever felt dismissed when you knew something was physically wrong, this episode is for you.

🎧 Listen to Episode 5 of Long Covid Perspectives — and share it widely.

Because patients deserve to be heard, believed and properly supported.

24/09/2026

Meanwhile Midwife Miller thinks she’s got covid but went into work anyways around babies! Sick as a dog 🦠 spreading her disease

Another victim of . This beautiful young woman, mother and daughter felt she couldn’t cope anymore due to her incredibl...
24/09/2026

Another victim of . This beautiful young woman, mother and daughter felt she couldn’t cope anymore due to her incredible suffering, lack of support by medical professionals, treatment and no prospects of a cure.

She ended her life leaving her husband a note referring to her broken body.

May she rest in eternal peace ❤️💔

24/09/2026

Steven Spielberg wears a respirator while being interviewed outside the opening of the Lucas Museum of Narrative Art on September 19, 2026.

Respiratory protection doesn’t have to be unusual or disruptive. For many people, it remains a simple, everyday way to reduce the risk of airborne infection and help protect their health and the health of those around them.

23/09/2026

I have covid in 2026 🦠

19/09/2026

Podcast brings unfiltered raw reality of 🎙️Real voices, real lives! Patients, families & carers, experts sharing their journey, experiences and truths.

Listen to our community stories and help us bring awareness of this cruel disease. 🦠

18/09/2026

“No one tells you how to grieve” 💔🥲

16/09/2026

I have - I didn’t think I had it.
Here’s my symptoms

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The Old Rectory
Exeter
EX46NG

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