Harrison's Fund

13/05/2026

This week is Mental Health Awareness Week 2026 💙

This year’s theme is Action — because even small actions can create meaningful change.

At Harrison’s Fund, we see every day how powerful those actions can be:

* checking in on another parent
* asking for help
* making space for honest conversations
* funding specialist support
* simply reminding someone they are not alone

Duchenne affects more than muscles.
The emotional impact on boys and families can be enormous — and mental health support matters.

This week, we encourage everyone to take one positive action:
For yourself.
For someone else.
For your community.

Because every action counts 💙

05/05/2026

Entry into our flagship running event The Royal Parks Half Marathon is selling out fast. Don’t miss out on an epic day out in London supporting Duchenne Mental Health - follow the link in our bio

24/02/2026

The team. The energy. The orange.
Now it’s your turn to take on a Challenge, change a life.
Explore our brand new Events Hub and find the perfect event to run, walk, cycle or cheer for Harrison’s Fund.
Let’s rise together.

17/02/2026

Thank you for sharing Defy Duchenne With Joshua

This post mentions a historical Duchenne awareness campaign that was designed to highlight funding inequality, not compare illnesses.

Today is International Childhood Cancer Day.

And today I stand in solidarity with families facing childhood cancer — the fear, the hospital corridors, the waiting, the hope, the heartbreak, and the courage children should never have to carry.

No parent ever imagines saying the words: my child has cancer.

And yet cancer awareness has shown the world what is possible when society rallies behind children. Funding, research, treatment progress, global recognition. Lives saved because people refused to look away.

Years ago, Harrison’s Fund launched the campaign “I wish my son had cancer.”
It shocked people. It upset people. And that was the point.
Not because cancer is easier.
Not because one illness is worse than another.
But because it exposed a painful truth:
Some childhood diseases live in the shadows.

Families facing Duchenne muscular dystrophy fight a battle just as real, just as relentless, but without the same awareness, urgency, or funding. That campaign was never about comparison — it was a cry for equity. A plea for the world to see all children with life-limiting conditions.

Today isn’t about dividing communities.
It’s about unity.
Every child deserves research.
Every family deserves hope.
Every diagnosis deserves to be seen.

So today I hold childhood cancer families in my heart — and I also whisper the names of children with Duchenne and every rare disease still waiting for their breakthrough.

Awareness should never be a competition.
It should be a movement big enough to carry everyone.


Harrison's Fund Duchenne UK

05/12/2025

03/12/2025

Link in BIO…

02/12/2025

BIG GIVE LIVE NOW!!! Every pound you donate this week is matched £ for £. Help us unlock vital support for Duchenne families today!

02/12/2025

https://youtu.be/oG-RmAZPrJk?si=IXyr2mBG_He5M852

Double the difference of your charity donations this Christmas. Between 2 - 9 December, donate whatever you can to a charity of your choice, and we'll do the...

01/12/2025

Tomorrow at midday we’re kicking off the Big Give Christmas Challenge! This week, every donation you make will be matched pound for pound, doubling the impact for families affected by Duchenne.
Our target is to raise £4,900 in just one week—and with match funding, we can turn that into nearly £10,000 to fund expert clinical psychology support for families who need it most.
Please mark your calendars, join us from 2nd–8th December, and help us make a real difference. Every pound counts, every share spreads hope. Together, we can change lives. See you tomorrow at 12pm

10/10/2025

Every Child and family with Duchenne Deserves Mental Health Support

On World Mental Health Day 2025, we shine a light on children living with Duchenne Muscular Dystrophy (DMD)—mostly boys, but also the 1% of girls affected—whose mental health needs are often overlooked.
Research from expert clinical psychologists shows that children with DMD are more than twice as likely to experience anxiety, depression, and emotional distress compared with their peers. Families carry an immense emotional burden too: coordinating care, managing medical appointments, and supporting their child through uncertainty.
A study by Gocheva et al. (2019) found that 15%–47% of children with DMD were at risk of emotional and behavioural problems, and almost half of caregivers reported very high parenting stress. Participation in support groups and reduced parental stress were linked with better psychosocial adjustment in children.
At Harrison’s Fund, our Project Chrysalis ensures children and families receive specialist clinical psychology and ongoing tailored support, helping them navigate the emotional challenges of Duchenne. Together, we can make mental health a priority for all children with DMD.
💙 Share this post, raise awareness, and support our work to ensure no child or family faces Duchenne alone.