22/06/2026
๐๐ง ๐๐จ๐ง๐จ๐ซ ๐จ๐ ๐๐๐๐ ๐
๐ข๐ ๐ก๐ญ๐๐ซ ๐๐ซ๐๐ง ๐๏ธ๐๏ธ
Eren was diagnosed with ATRT shortly after his first birthday, when he was just 14 months old. The journey leading up to his diagnosis was incredibly traumatic and difficult. For approximately two weeks, Eren showed severe symptoms, vomiting multiple times every single dayโsometimes up to nine times a day. He lost a kilogram of weight, yet his family struggled to get medical teams to take them seriously. Despite visiting three different hospitals and seeing his pediatrician several times, they were repeatedly turned away and told his symptoms were simply from teething.
Eventually, Eren developed severe anxiety and balance issues to the point that he could no longer walk. When he was finally admitted as an inpatient, doctors discovered life-threatening intracranial pressure caused by a brain mass. A rescue helicopter was called immediately to fly him to another hospital for emergency surgery. If it hadn't been discovered that day, he likely would not have survived. While his pressure was relieved and a subsequent nine-hour tumor resection was successful, the severe pressure had also caused a stroke. Because of the damage from the stroke, radiation and intrathecal chemotherapy were not possible, and Eren could only receive intravenous chemotherapy.
Our little warrior fought bravely for seven months. After six months of fighting, his family was told there was significant disease progression and no curative options remained.
His family shares this deeply moving reflection on his final days: "We continued the palliative treatment for about three more weeks until our little boy developed severe symptoms that indicated massive tumor growth. Seven months after his diagnosis, our precious Eren received his angel wings and flew to heaven. Forever loved. Forever missed." โค๏ธ
We look back on Eren's journey with endless pride and love for the incredible fight he put up against this brutal disease. Happy heavenly birthday โจ
