Haemophilia Scotland

Haemophilia Scotland A Scottish charity (No. SC044298) for people who have haemophilia, von Willebrands, other bleeding disorders.

Please note that Haemophliia Scotland is not affiliated with The Haemophilia Society UK in any way. Our governance is based solely in Scotland to serve the needs of our community.

A look back at our 2026 AGM đź’™On Saturday 29 August, members of the Haemophilia Scotland community came together at The S...
05/10/2026

A look back at our 2026 AGM đź’™

On Saturday 29 August, members of the Haemophilia Scotland community came together at The Studio in Glasgow for a day of connection, conversation and reflection.

The day included updates on our work, plans for the year ahead and opportunities to hear from others across the bleeding disorders community.

🎤 We also heard from Dr Susan McNeill regarding new and emerging treatments in haemophilia, and from physiotherapist, Sean Lloyd, who spoke about our "Join the Movement" virtual physiotherapy programme.

It was fantastic to bring our community together, share experiences and look ahead to another year of supporting people and families affected by bleeding disorders across Scotland.

A huge thank you to everyone who joined us and helped make the day such a special one 🫶

02/10/2026

What gaps still exist in awareness and support for people living with bleeding disorders?

In this video, Alan Martin, Director of Haemophilia Scotland, discusses why women are often diagnosed much later in life and how many may still be living with an undiagnosed bleeding disorder.

🎥 Watch below to hear more about the importance of recognising symptoms, improving awareness and ensuring women get the support they need.

Our Financial Wellbeing Officer, Maxie, and Trustee, Carolyn, are at the Feisty Gals: Deep Roots, Fierce Futures confere...
30/09/2026

Our Financial Wellbeing Officer, Maxie, and Trustee, Carolyn, are at the Feisty Gals: Deep Roots, Fierce Futures conference in Stirling today, gathering with brilliant women-led organisations who are shaping bold, sustainable futures across Scotland. 🌿🔥

We’re proud to be part of this fierce, joyful community, and grateful to the Women's Fund for Scotland for backing the work we do with women and girls.

28/09/2026

Living with a bleeding disorder can sometimes feel isolating, particularly when it seems like the people around you don’t fully understand your experience.

That’s why community matters.

Haemophilia Scotland’s Women’s Group brings women living with bleeding disorders together to share experiences, exchange advice, ask questions and build genuine connections with others who understand.

Sometimes, simply knowing you’re not the only one can make all the difference.

If you’d like to connect with other women in the bleeding disorders community, find out more about the Women’s Group via our website 👇

https://haemophilia.scot/women/

đźš— Could the Motability Scheme help you?Our latest website article takes a look at Motability Scheme Live at the Royal H...
22/09/2026

đźš— Could the Motability Scheme help you?

Our latest website article takes a look at Motability Scheme Live at the Royal Highland Centre, including adapted vehicles, wheelchair-accessible options, mobility equipment and the support available through the scheme.

We’re also planning a future webinar about motability and want to make sure it covers what matters most to our members.

👉 Please take a couple of minutes to complete a short survey and help shape the webinar:
https://forms.cloud.microsoft/e/mLXupt9fWS

Your feedback will help us make the session as useful as possible. đź’™

21/09/2026

Did you know that 1 in 5 women who seek help for heavy periods may have an underlying bleeding disorder? 🩸

For many women, managing heavy bleeding becomes so routine that they don’t realise how much it’s affecting their everyday lives.

It might mean planning work around your period, avoiding certain clothes, turning down social plans, or even avoiding long journeys on certain days of the month.

These adaptations can become “normal” simply because you’ve been living with them for so long - but they don’t have to be.

If any of this sounds familiar and you’d like support before speaking to your GP, please reach out to Haemophilia Scotland. ❤️

“For a long time, I thought I just had to put up with it. I thought maybe I was stressed, too busy or that my symptoms w...
17/09/2026

“For a long time, I thought I just had to put up with it. I thought maybe I was stressed, too busy or that my symptoms were somehow normal. They weren’t.”

Meet Paige, a 23-year-old from Aberdeen who was diagnosed with Type 1 Von Willebrand Disorder (VWD) in October 2025, after years of unexplained bleeding symptoms.

From frequent nosebleeds and easy bruising to experiencing months of continuous bleeding, Paige’s symptoms had a significant impact on her health, studies, confidence and everyday life. After years of being told her symptoms could be linked to stress, university or her active lifestyle, she eventually received the diagnosis that helped explain what she had been experiencing.

Now, Paige is learning to understand her body, manage her symptoms and advocate for her own health. As part of our A Spotlight on Young Women Living with Bleeding Disorders campaign, she is sharing her story to highlight why women’s symptoms need to be listened to, investigated and taken seriously.

Her message is simple: you know your own body. If something doesn’t feel right, don’t be afraid to ask questions. 💙

đź”— https://haemophilia.scot/from-being-dismissed-to-being-diagnosed-paiges-story/

After attending the Edinburgh Napier and St Andrews Freshers’ Fairs last week, we’re today at the University of Strathcl...
16/09/2026

After attending the Edinburgh Napier and St Andrews Freshers’ Fairs last week, we’re today at the University of Strathclyde engaging students in vital conversations about bleeding disorders in women and girls.

This outreach is supported by Women's Fund for Scotland, whose funding allows us to connect with more women and ensure their experiences are recognised, understood, and acted upon.

14/09/2026

For some women, getting a bleeding disorder diagnosis can take years.

Along the way, symptoms can be minimised, concerns dismissed, and women left questioning whether they’re simply being “too anxious” about their health.

Living with unexplained heavy bleeding, anaemia, fatigue or fainting can mean constantly adapting your life around symptoms without understanding why they’re happening.

When a diagnosis finally comes, it can be a huge relief - but it can also bring frustration and anger at how long it took to be heard.

Watch our full video with Clinical Psychologist Gráinne to find out more.

11/09/2026

For women and girls living with bleeding disorders, the impact can go far beyond bleeding.

Heavy or long periods can contribute to anaemia and fatigue, affecting everything from mood and confidence to school, work and social life.

Support can also be important through different stages of life, including pregnancy, family planning and hormonal changes.

If you are struggling with any of these often-overlooked symptoms, please get in touch - we would love to highlight other avenues of support that are available within our network.

Address

The Eric Liddell Centre, 15 Morningside Road
Edinburgh
EH104DP

Opening Hours

Monday 9:30am - 5:30pm
Tuesday 9:30am - 5:30pm
Wednesday 9:30am - 5:30pm
Thursday 9:30am - 5:30pm
Friday 9:30am - 5:30pm

Telephone

+448458744004

Website

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