Haemophilia Scotland

Haemophilia Scotland A Scottish charity (No. SC044298) for people who have haemophilia, von Willebrands, other bleeding disorders.

Please note that Haemophliia Scotland is not affiliated with The Haemophilia Society UK in any way. Our governance is based solely in Scotland to serve the needs of our community.

18/08/2026

Living with haemophilia has changed dramatically over the years, and Jay has experienced that journey firsthand.

Diagnosed just days after birth, Jay shares how learning to manage his own treatment gave him the confidence to take control of his health, and how advances in treatment have transformed daily life.

In this video, he also speaks about the importance of self-advocacy, staying informed about your condition, and finding a community that understands your experiences.

💙 Your voice matters. Watch Jay's story and hear why knowledge, confidence, and connection can make all the difference.

What an incredible day at the Dundee Kiltwalk on Sunday 16th August! A massive thank you to Louise and to the Banu fami...
18/08/2026

What an incredible day at the Dundee Kiltwalk on Sunday 16th August!

A massive thank you to Louise and to the Banu family for walking on behalf of Haemophilia Scotland. Your spirit, determination and support were amazing.

You’ve helped shine a light on bleeding disorders and raised vital awareness for our community. We couldn’t be more grateful.

Thank you! ❤

17/08/2026

At Haemophilia Scotland, our mission is simple: to ensure that everyone living with a bleeding disorder can access the support, care, and opportunities they need to live life to the fullest.

We believe that a diagnosis should never limit someone’s ambitions, education, career, relationships, or everyday experiences ⭐️

Through advocacy, support, and community, we work towards a future where people with bleeding disorders feel empowered to manage their condition - rather than feeling like their condition manages them.

12/08/2026

What’s it really like to live with a bleeding disorder?

In this video, members of our community share their experiences of living with haemophilia and other bleeding disorders. From the challenges of diagnosis and navigating healthcare, to the power of finding support and connection through Haemophilia Scotland.

You'll also hear why greater awareness matters, what the future of treatment could look like, and how families can access information, support, and a community that understands.

Want to make a difference? ♥️We're looking for volunteers to join the Haemophilia Scotland team.Whether you're passionat...
07/08/2026

Want to make a difference? ♥️

We're looking for volunteers to join the Haemophilia Scotland team.

Whether you're passionate about fundraising, creating content, or supporting events, there's a role for you. Volunteering is a great way to give back, develop new skills, and become part of a supportive community helping people affected by bleeding disorders across Scotland.

If you have a few hours to spare and want to make a real impact, we'd love to hear from you.

Apply today via the 'get involved' page of our website 🧑‍💻

📚 Anxious about heading back to school after the summer holidays? We’re here to support you.Returning to school can brin...
04/08/2026

📚 Anxious about heading back to school after the summer holidays? We’re here to support you.

Returning to school can bring new questions and challenges for children living with bleeding disorders, as well as their families. From helping schools better understand your child’s condition to supporting a smooth transition back into the classroom, the Haemophilia Scotland team is here to help.

If you’d like advice, resources, or guidance on how we can support your child’s reintegration, please get in touch with our team 🫶

🌟 Your Feedback Shapes Our Events 🌟 Here's what some of our members are saying about our events and we would love to hea...
27/07/2026

🌟 Your Feedback Shapes Our Events 🌟

Here's what some of our members are saying about our events and we would love to hear more from you.

We currently have a few short surveys open to help us plan future events that feel useful, relevant and genuinely shaped by our community. If you haven’t had the chance yet, please take a moment to share your thoughts. Every response helps us build something meaningful for our Scottish bleeding disorders community.

You can take part via our website. Link below:
https://haemophilia.scot/we-want-to-hear-from-you/

Our Financial Wellbeing Service continues to make a real difference for members. Maxie, our Financial Wellbeing Officer,...
20/07/2026

Our Financial Wellbeing Service continues to make a real difference for members.

Maxie, our Financial Wellbeing Officer, is now planning a workshop to support members even further and she wants your input. We’re running a short survey to understand what shape the workshop should take and which topics would be most helpful.

If you can please spare a few minutes, your feedback will directly influence what we create for our community:
https://forms.cloud.microsoft/e/ygABUPCnp3

We’re excited to welcome you to our 2026 Members’ Day & AGM 2026 on Saturday 29th August, 10:30am–4:00pm at The Studio i...
17/07/2026

We’re excited to welcome you to our 2026 Members’ Day & AGM 2026 on Saturday 29th August, 10:30am–4:00pm at The Studio in Glasgow. Lunch is provided, and children can enjoy a creative art workshop during the AGM.

Register today and be part of this important community day:
https://haemophilia.scot/agm2026/

We are delighted to welcome Ruth to the charity as our new Advocacy Support Worker, providing infected and affected indi...
14/07/2026

We are delighted to welcome Ruth to the charity as our new Advocacy Support Worker, providing infected and affected individuals and their families with dedicated, compassionate and confidential support.

This new role reflects our commitment to ensuring that members don’t have to navigate the complexities of the Infected Blood Compensation Scheme alone.

Ruth will be on hand to answer questions, explain the compensation process in clear and straightforward terms, and provide practical support when engaging with the Infected Blood Compensation Authority and other organisations. She will also help with other general advocacy issues affecting our members as needed.

We are excited to introduce this valuable new service and believe Ruth will make a real and lasting difference to the people we support.

Read more on our website:
https://haemophilia.scot/welcome-to-ruth-our-new-advocacy-support-worker/

Address

The Eric Liddell Centre, 15 Morningside Road
Edinburgh
EH104DP

Opening Hours

Monday 9:30am - 5:30pm
Tuesday 9:30am - 5:30pm
Wednesday 9:30am - 5:30pm
Thursday 9:30am - 5:30pm
Friday 9:30am - 5:30pm

Telephone

+448458744004

Website

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