Muir Maxwell Epilepsy Centre

07/02/2025

📣‼️ Just to let our followers know, we will shortly be leaving Twitter/X and instead moving to Bluesky. You will find us at: .bsky.social 💜

21/10/2024

Epilepsy: More than meets the eye. It is more than seizures.

Seizures are the most visible outward symptom of epilepsy, but they are only one symptom.

• Many with epilepsy silently adapt and conceal
• Invisible challenges lie beneath the surface

This :

• Assume less
• Judge less
• Learn more

To learn more about epilepsy via our website: https://buff.ly/47JWRKU

26/03/2024

Happy 💜 As promised, we share a link to Holly’s (our Voluntary Head of Social Media) talk from the international conference ‘It Takes All Kinds of Minds’ held at the EICC last year 💜 We hope you give it a watch to hear about Holly’s personal experience of living with epilepsy 💜 Maybe you’ll learn something new…🧠

My talk on living with epilepsy for the international ‘It Takes All Kinds of Minds (ITAKOM)’ conference 13th-14th March 2023 at the EICC.

26/03/2024

This we want to share Maria's story with you.

After almost 30 years of living with epilepsy Maria thought she had experienced it all, from relentless childhood bullies to being robbed of her mobile phone as she lay unconscious in the street after a seizure. That was until last October, when a seizure led to a terrifying 10m mountain fall.

Maria was visiting her parents in Slovakia, and the family were on a hike in the High Tatras, a mountain range in Northern Slovakia. She told us, "It was really beautiful looking down at the country and feeling the power of the surrounding mountains. We were 40 metres from the summit at an altitude of over 2000m.

“But after that I have a hole in my memory. The next thing I remember is waking on the ground with people gathered around me, frantically dialling the emergency services. I was full of pain and covered in blood and had no clue what was going on. Someone told me I had rolled 10 metres down the mountain.”

A seizure had sent Maria hurtling down the mountain, her body bouncing off jagged rocks like a rag doll as her parents looked on in horror. Miraculously, her fall was broken by a small group of conifers in the middle of an otherwise barren landscape. Beyond the trees was a steep drop over the mountain’s edge.

As you can imagine she was in immense pain, medics diagnosed dislocated fingers, concussion, damage to her vision and hearing, and deep lacerations to her face. Since her fall Maria has been experiencing seizures every day, as doctors are struggling to find an anti-seizure medication that works. This means her epilepsy is impacting all aspects of her life; she can't drive and even cooking dinner is dangerous if she's alone. "If the hob was on and I collapsed, it could lead to a fire", she explains.

Our Communications Manager Mandy Ryan, who spoke to Maria, said, "Maria speaks so genuinely about the challenges her epilepsy has thrown at her, and the terrifying mountaintop fall she had following a seizure, but her words are also so uplifting. The resilience of people with epilepsy never ceases to amaze me".

You can read Maria's full story here: https://bit.ly/497sPB7

25/03/2024

Purple Day is just around the corner! 💜 Thanks to Epilepsy Scotland for providing this list of places/landmarks turning purple tomorrow for 💜

19/03/2024

Here’s Holly telling you how you can show your support and help raise awareness on Purple Day this year 💜

17/03/2024

A reminder that we are now also on Instagram so feel free to give us a follow 👇👍💜

14/03/2024

Can you believe it’s been a year since our very own Holly Wagner spoke about her life with epilepsy at the international ITAKOM conference?! 💜💜💜

11/03/2024

A reminder that Purple Day is 26th March! What will you be doing to help raise awareness? 😊🤔💜

01/12/2023

We are now on Instagram! Follow us at 💜💜💜