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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

Myeloma UK

Welcome to the official Myeloma UK page. UK receives no Government funding and relies almost entirely on voluntary donations and fundraising.

Myeloma UK is the only organisation in the UK dealing exclusively with myeloma - our ultimate goal is to find a cure. We are dedicated to ensuring that patients get access to the right treatment at the right time, and to improving standards of treatment and care through research, education and awareness raising. Our organisation also provides a range of information and support services to patients, family and friends to help deal with a diagnosis of myeloma.

24/08/2026

Congratulations to our latest highlighted volunteer, Bronagh! 🧡

Following her myeloma diagnosis in 2023, Bronagh decided to join the Advocacy Partner Panel to understand patient advocacy better, building on her career as a registered nurse.

Bronagh lives in Northern Ireland and has been keen to set up a local support group for people with myeloma there. In 2025, she connected with other patients, and with support from Myeloma UK, they held an event and drop-in session at Stormont.

We spoke to Bronagh about her involvement with us at Myeloma UK, and she said:

“Volunteering with Myeloma UK has given me a purpose. I could have been caught up by my diagnosis and found it even harder than I did, but the clarity of information from Myeloma UK stopped that from happening. I was open to being a volunteer because of the help that I received as a patient. I wanted to give back to the organisation that had supported me, and I continue to enjoy the volunteering opportunities available.”

Thank you so much to Bronagh for being our highlighted volunteer! Read more of her story via the link in the comments.

📧To find out more about volunteering with Myeloma UK, please email [email protected]

20/08/2026

We’re developing two exciting new support tools for people affected by myeloma, and we’d love your help to shape them.

The first tool is a set of conversation cards to help people reflect on what they’re going through and start difficult conversations. The second is a tool we’re calling ‘FLOW’ and is a new way to help people find the information or support they need more easily.

If these sound like they could potentially be of interest to you, we’d love to hear your thoughts! We’re looking for people living with myeloma – and family or friends – to take part in an informal one-to-one video call and try them out.

Your help is crucial in helping us make sure the tools are useful, sensitive and shaped around the real experiences of people affected by myeloma.

Sessions are expected to take place during weekday daytimes, 2 - 7 September.

If you’re interested, drop us an email at [email protected].

19/08/2026

What would you ask the experts?

There are just 5 weeks to go until the International Myeloma Society's 23rd Annual Meeting and Exposition in Glasgow, an event that brings together myeloma experts from around the world. We want to make sure the questions that matter to people living with myeloma are part of the conversation.

While we're there, we'll be working with the wonderful The Myeloma Minutes podcast to put your questions directly to myeloma experts.

What would you like to ask? It could be about treatment, research, living with myeloma, new developments – or anything you've been wondering about.

Share your question in the comments below 👇

18/08/2026

We’re still looking for people living with or caring for someone with non-measurable myeloma. We’re particularly interested in hearing from individuals, inclusive of Black, Asian and other minoritised ethnic groups and/or individuals resident in Scotland or Wales.

Our exciting research project alongside the University of Birmingham is investigating a new test to monitor non-measurable myeloma in a less invasive and more patient-friendly way. We want to hear from patients across the UK about their experiences and views on this new approach.

Participants will be invited to complete a questionnaire and a 60-minute online/phone interview to share their experiences and views with us.

Your insights could help transform care for myeloma patients across the nation.

For more information and to arrange your interview, please get in touch at [email protected]. We look forward to hearing from you! 📧

16/08/2026

If you are having tests to determine if you have myeloma, it is normal to experience feelings of worry or uncertainty.

It can be reassuring to know what to expect at each step, and be helpful to know what questions you might want to ask your healthcare team.

Our Tests and investigations in myeloma Infoguide contains information about the range of different tests and investigations that are done while diagnosing and monitoring myeloma.

🔗https://brnw.ch/21x4XTr

15/08/2026

"My son's 15 now, and I was diagnosed nearly 15 years ago with that initial plasmacytoma. At that point I just couldn't see today. My biggest goal then was to make it to see him be an adult and the ultimate dream was to see him graduate. Now that feels like a reality that I could start to believe in. I really do believe I will see him as an adult, but I'm pretty sure I'll see beyond that as well."

Meera was first diagnosed with a tumour known as a plasmacytoma in 2011, a few months after giving birth. It progressed to myeloma seven years later and was treated. When she relapsed, she was offered CAR-T.

Meera is just one of the patients we've spoken to with a positive experience of CAR-T. This is why we're committed to getting CAR-T approved on the NHS. Thank you Meera for sharing your experience!

14/08/2026

Organised people, your time has come. Everyone else, look away until November. 👀🎄

Our range of Myeloma UK 2026 Christmas cards is now available to shop, with some returning classics and some fun new additions.

You're either horrified we've mentioned Christmas already... or adding cards to your basket. Every card you buy and send makes a difference to those living with myeloma. 🧡

Have a browse: https://brnw.ch/21x4VsW

12/08/2026

Want to be part of the world's biggest half marathon without having to lace up your running shoes?

We're looking for enthusiastic volunteers to join the Myeloma UK Cheer Squad at the Great North Run on Sunday 13 September 2026!

Make some noise, wave your banners, and give our incredible Team Myeloma UK runners the boost they need to reach the finish line.

For more information and to sign up, click here: https://brnw.ch/21x4Sdu

10/08/2026

In this month’s Ask the Nurse blog, we explore some of the questions you ask our Infoline team about harder-to-treat myeloma.

Early relapse, refractory myeloma or high-risk myeloma are all terms that can be used when describing harder-to-treat myeloma.

Despite these challenges, many treatment options are available, and your healthcare team will decide on your treatment based on how the myeloma responds over time.

🔗Read the blog: https://brnw.ch/21x4OK2

08/08/2026

Join thousands of people across the UK taking on an Ultra Challenge in 2027.

With a range of events available for walkers, joggers and runners, the Ultra Challenge Series offers the chance to challenge yourself while raising funds to support people affected by myeloma.

Choose from stunning coastal paths, countryside trails and iconic routes, with different distances to suit a variety of abilities and experience levels.

Whether you're aiming for your first finish line or your next endurance challenge, every step can help make a difference.

Find out more about the 2027 Ultra Challenge Series: https://brnw.ch/21x4Mj0

Address

22 Logie Mill, Beaverbank Business Park
Edinburgh
EH74HG

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+441315573332

Website

http://www.myeloma.org.uk/

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