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Myeloma UK

Welcome to the official Myeloma UK page. UK receives no Government funding and relies almost entirely on voluntary donations and fundraising.

Myeloma UK is the only organisation in the UK dealing exclusively with myeloma - our ultimate goal is to find a cure. We are dedicated to ensuring that patients get access to the right treatment at the right time, and to improving standards of treatment and care through research, education and awareness raising. Our organisation also provides a range of information and support services to patients, family and friends to help deal with a diagnosis of myeloma.

02/10/2026

What a month! From throwing yourselves into gravy wrestling to dancing for 24 hours straight (yes, really), you’ve gone above and beyond to support our work. A massive thank you and well done to everyone who fundraised for us this month. You’re all amazing! 🧡

30/09/2026

Fatigue is a common symptom of myeloma and a side effect of many treatments, affecting almost everyone living with myeloma at some point.

Unlike everyday tiredness, fatigue can be overwhelming and debilitating. We know it can also be difficult to explain to family and friends who may not fully understand its impact.

Our Fatigue and myeloma Infoguide is a useful resource, offering practical tips for managing fatigue, as well as information for both patients and their loved ones.

🔗Order a free printed copy or download the Infoguide via the link in the comments.

29/09/2026

Everyone with myeloma deserves the same opportunity for a timely diagnosis, access to the best treatments and information that supports their needs. We can only achieve this if we recognise that inequalities exist and take action to tackle them.

That’s why today Myeloma UK is launching the Knowledge is Power report, in collaboration with the Race Equality Foundation.

It is a rallying call to policy makers, healthcare providers, government, and all of us working in myeloma to come together to tackle the inequalities faced by Black communities.

Together we must challenge the inequalities that exist in myeloma so that everyone has an equal chance to live well.

Read more about the report: https://brnw.ch/21x62dA

Cancer52 Black Women Rising UK Caribbean & African Health Network - CAHN

28/09/2026

Following his wife Jane's myeloma diagnosis in 2023, Calum Greer saw firsthand the incredible care and support provided by the team at the Churchill Hospital in Oxford and Myeloma UK.

To give back, he took on a fundraising challenge to help ensure other people can benefit from the same level of care and support.

Back in June, Calum attempted “The Marmotte Grandfondo,” a legendary one-day event riding 175km and 5000m of climbing, four Alpine cols: Glandon, Télégraphe, Galibier, and the 21 hairpins of Alpe d’Huez.

Due to extreme heat, Calum had to cut the challenge short half way up the final climb. He’s calling it "unfinished business for now". Despite this, together with his family, he has managed to raise over £8800! 🧡

When we asked him what he would say to anyone thinking of fundraising for Myeloma UK, he said:

"Just do it! Myeloma UK are an outstanding charity and support organisation. Briony has been tremendous support, helping Jane and I with our fundraisers."

27/09/2026

Can you spot the most common symptoms of myeloma?

As Blood Cancer Awareness Month draws to a close, we're continuing to raise awareness of the myeloma warning signs. You can help us do this by sharing this post. 🧡

26/09/2026

This Autumn and Winter, there are four vaccination programmes recommended for people living with myeloma to help protect from shingles, flu, COVID-19 and RSV.

People with a weakened immune system, like myeloma patients, are at a greater risk of infection, so getting protected is essential.

We have updated our Behind the Headlines guide to give you more information about the Autumn/Winter vaccines to answer any questions you might have: https://brnw.ch/21x5YQr

25/09/2026

On Wednesday, as part of the International Myeloma Society (IMS) Annual Meeting, we were delighted to be involved in the recording of The Myeloma Minutes, where people with lived experience of myeloma put their questions directly to the experts.

It was fantastic to have several of our supporters taking part. Ensuring that people living with myeloma remain at the heart of these conversations is so important.

A huge thank you to everyone who joined us: Graham, Keith, Jim, Fiona, Bronagh, Jackie and Ann. 🧡

Keep an eye out for the podcast episode, coming very soon!

23/09/2026

We're off to IMS this week, the 23rd International Myeloma Society (IMS) Annual Meeting & Exposition. One of the most important events in the myeloma calendar, and this year it's right on our doorstep in Glasgow!

Alongside the latest scientific updates, IMS provides an opportunity to listen, learn, and connect with colleagues from across the healthcare and research community, while helping to keep people living with myeloma at the centre of discussions.

We'd love to hear from you at IMS. Whether you work closely with Myeloma UK colleagues already or would like to start a conversation, come and find us at our exhibition stand.

You'll also find us out and about in the community this week, raising awareness of myeloma at Buchanan Galleries and Princes Square. Come along for a chat or just to say hello, we'd love to see you there. 🧡

22/09/2026

The Welsh Government is developing a 10-year cancer strategy to improve outcomes and transform the diagnosis, treatment, and care of those affected by cancer, including those living with myeloma.

The consultation period is now open, inviting people to share their thoughts on what the strategy should include.

This is an opportunity to help create a future where everyone affected by myeloma in Wales can access a timely diagnosis, innovative treatments, and effective support. 🧡

🔗Share your insights here: https://brnw.ch/21x5SnW

If you would like to contribute but are unable to submit your own response, don't hesitate to get in touch with [email protected] for more information.

20/09/2026

Following the loss of his wife, Diana, to myeloma in 2022, our supporter, Raymond Poole, decided to host an annual festival in their local town to honour her and raise awareness of myeloma.

Named 'Diana's Day', the festival is held on the local village green in a small village in Worcestershire and brings together musicians, local artists, businesses and the community. There have been craft markets and even an American car show at previous festival days.

Over the past four years, and with the help of Raymond’s good friend Andy, the festival’s sound engineer, they have raised over £8,000! 🧡

Due to ill health, Raymond has had to step back from organising Diana's Day but is hopeful that the locals will continue with the festival and keep the tradition going.

When we asked him what he would say to someone thinking about fundraising for Myeloma UK, he said:

"Grab your ideas by the horns and do it."

Huge thanks to Raymond, Andy and their local community!

Address

22 Logie Mill, Beaverbank Business Park
Edinburgh
EH74HG

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+441315573332

Website

http://www.myeloma.org.uk/

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