30/04/2026
Dear Edinburgh,
Meet our son Joey. He loves music, colourful lights, and getting lots of attention!
For over a year now, the children’s hospital has been our home. We still don’t know when we’ll be able to leave.
During pregnancy, we learned Joey has two very rare conditions. Doctors said he might not survive, he may not even be born breathing. But he surprised us all, and he’s been fighting ever since.
Before he stabilised, he would often just stop breathing, and turn blue. There were nights we were told he wouldn't make it. That fear never really leaves you.
When you spend so long in hospital, you start to feel robbed of so many things. At times, we didn’t even feel like his parents – just two people watching helplessly.
ECHC was there when we were falling apart. No fuss. No forms. Just kindness, compassion and someone to sit with us so we didn't feel alone.
Joey still needs round‑the‑clock support, and we don’t know what the future holds. More than anything, we just want to bring him home and make his wee life as good as it can be.
Edinburgh, you were there when we had nobody else.
If you can, please donate today so our city’s children don’t face their darkest days alone. - Ashley, Joey's mum
Donate now at www.echcharity.org/donate ❤
