Jared’s Journey

27/04/2026

The happiest boy ever- Never did I think the day I gave birth would we ever deal with so many crazy hurdles and bumps in the road within your 2 yrs of life with reoccurring viruses and infections getting told you’d not pull through many infections,yet you stood tall and overcome them all,I look back and think if it wasn’t for the Drs and the hospital and a mix of the perseverance and instincts when would we of found out,would it be too late CGD effects 1 in 200,000 to 250,000 people worldwide so this diagnosis was crazy ,I just feel so lucky to have such a strong boy and so blessed to be able to call you my son your my absolute superhero sat here in the hospital room the sun raising I think back to how many times I’ve sat in hospital rooms questioning is my baby going to be okay 100 thoughts running through my head the anxiety and worry over taking just hoping you’ll be okay is not what and parents of family want to face right now I’m sat right now knowing this is the very start of something amazing and soon you can start living life more freely.

To sum this journey up so far from start to a day before transplant to call it a whirlwind is a understatement you battled through may viruses and infections,you’ve sat in pain and at your worse but still managed to keep that beautiful smile fixed to your face you’ve sat patiently through many bloods appointments ,long awaited results and had countless tests and been so ill you’ve battled through the very worst times and not so bad times and I just can’t find the words to say how very proud you make everyone you really are one in a million, a breath of fresh air and our superhero ,tomorrow will be just another crazy day the start of a new adventure a one to remember for a lifetime a new lease of life and healthier future ahead.

I just can’t wait for many more magical moments and wild adventures with you,keep going my boy your so strong remember you will always be our superhero 💙

We can’t wait to continue our journey and raise more awareness on the journey we’ve been through

Bubble Foundation UKCGDSocietyAmanda Johnson PAW Patrol

26/04/2026

Our very own superhero ,doing amazing and it attempting food and been on fluids he’s really not letting this chemo effect him in the slightest he’s one in a million and never stopped smiling or lost his energy yet

24/04/2026

Hi Everyone ,I’ve just noticed Jared’s story is now published on the bubble foundation site it can be found under “Our People” please give it a read and show some love to the bubble foundation by simply following their page this charity is solely based on donations so any donations if possible would be greatly appreciated,bubble foundation supports not only the children but also the parents through what it the hardest journey any child and parent can face

https://donate.justgiving.com/charity/bubblefoundation/donation-amount

Bubble Foundation UK

23/04/2026

This , IgNS recognizes the power of early detection, accurate diagnosis, and coordinated care for individuals living with primary immunodeficiency (PI).

Over 6 million people live with PI worldwide, but up to 90% may go undiagnosed.

At IgNS, we're committed to ensuring that best practice standards, education, and resources are available to improve patients' health and wellbeing.

23/04/2026

Wholesome moments with my bundle of happiness,nothing can stop that beaming smile 💕🐝

23/04/2026

Yesterday was a super busy day Jared is taking well to the chemo but is showing signs of sore throat however so unfazed and still full of smiles and energy ,yesterday Jared had a play session with Sarah ,played with his farm toy and crafts

Nana came to visit,Jared and Nana played with building blocks ,stickers ,played tents and had fun time with Nana ,he also spoke to his dad ,tell and seen the dogs.

We had such a good day and he’s doing amazing 💙

22/04/2026

21/04/2026

Jared’s First Day/Night of chemo has gone so much better than expected and getting used to a set routine has helped,Jared fell fast asleep after bath routine and didn’t budge when it come to 2nd dose of chemo and observations he’s took everything in his stride and also found having the Thor (PBM) treatment to prevent oral mucositis quite fun he loved wearing his glasses to protect his eyes from the infrared light.

He’s doing amazing and is such a strong boy we done some bedtime stories and car themed crafts
before bed and throughout day we had a early start for chemo went through routine then watched tv,done some learning with the animal flashcards,counting ,singing ,colouring and had dinner between and baths

21/04/2026

My little bundle of happiness prepared and ready for chemo start

23/12/2025

Just a little update from us I hope everyone is doing well xx