Friends of Serenity

Friends of Serenity Patau's syndrome? What's that? When our baby was diagnosed this is exactly what we asked. We had no idea and our world was shattered and hearts broken.

Registered charity number~1157866 Trisomy 13 awareness, protecting sick pregnant women & those who have suffered miscarriage, stillbirth or neonatal death and supporting rainbow pregnancies. We want to make something positive out of our loss and help others. We aim to spread the word about the syndrome so that families that are diagnosed with the syndrome are at least informed! What is Trisomy 13/

Patau's Syndrome? Inside all of the cells of our bodies there are tiny structures called chromosomes. These chromosomes carry the genes that determine how we develop. There are 23 pairs of chromosomes in each cell. When our bodies produce s***m or egg cells, the pairs divide and rearrange themselves. Sometimes these pairs of chromosomes do not divide correctly. With trisomy 13 there is an extra copy of chromosome 13 in each cell. There are three forms of the syndrome, as explained below. Complete trisomy 13 This is when every cell in the body has three copies of chromosome 13. Babies with this condition will have complex disabilities. Mosaic trisomy 13 This is when some cells have the usual two copies of chromosome 13
and some have three copies. Partial trisomy 13 This is when there is an extra part of some of chromosome 13 in all the body's cells


Babies with trisomy 13 will have a wide range of problems. Unfortunately these problems are usually extremely serious. These may include major brain abnormalities leading to learning difficulties. Many babies also have heart problems, a cleft lip and palate, poorly formed eyes and ears, and problems with their arms and legs. It is
difficult to say how serious the effects of partial and mosaic trisomy 13 will be before the baby is born. Patau syndrome affects somewhere between 1 in 10,000 and 1 in 21,700 live births.

We are super proud and grateful to Candyce and Scott taking on a huge challenge for us this weekend in memory of their l...
18/06/2026

We are super proud and grateful to Candyce and Scott taking on a huge challenge for us this weekend in memory of their little boy Noah.

Barnoldswick couple taking on 50k challenge in memory of their son

Every Monday we start the week with our dedicated and protected time to  . Even if you didn’t name your baby you can sti...
15/06/2026

Every Monday we start the week with our dedicated and protected time to . Even if you didn’t name your baby you can still join in, you can introduce them as baby, baby x, a nickname you called them, anything. Whether you've joined us before or this is your first time, please tell us about your baby(ies) below. As always, if you would like to join in but don't feel able to say it yourself, please pop us a message and we will write your baby’s name for you 💙⭐

12/06/2026

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What an amazing write up by the Daily Mail! ⚽️ 💙 If you are a bereaved Father and would like to join the group, please g...
08/06/2026

What an amazing write up by the Daily Mail! ⚽️ 💙

If you are a bereaved Father and would like to join the group, please get in touch.

https://www.dailymail.com/sport/football/article-15879061/blackburn-rovers-dads-fc.html?fbclid=IwdGRjcAST1q9leHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEefohMQviFvz364OJGTdF-CJaUY_pU9yVQgZUDWdjQknl2naBlTJqezK5aBEM_aem_I06EYeohdUrkCKpvxzLL6A

CHRIS WHEELER: Friday night in Blackburn and a group of men are getting together as usual on an indoor pitch in the shadow of Ewood Park. Alan Shearer and Chris Sutton used to train here.

A huge thank you to our volunteer, Helen, who delivered miscarriage keepsakes to the Early Pregnancy Assessment Unit at ...
31/05/2026

A huge thank you to our volunteer, Helen, who delivered miscarriage keepsakes to the Early Pregnancy Assessment Unit at the Lancashire Women and Newborn Centre after we received an email on Friday requesting additional supplies. Their stock was running low, and thanks to Helen’s swift support, these precious keepsakes are now available for families who need them.

FoS is 13 today. 🦋Resharing the lovely post Rosie wrote 3 years ago. 🫶🏻
29/05/2026

FoS is 13 today. 🦋

Resharing the lovely post Rosie wrote 3 years ago. 🫶🏻

Today is Friends of Serenity's 10th birthday 🥳
In honour of this massive milestone I'll be sharing just a handful of our achievements over the last 10 years throughout the week. To start this, I felt it only right that we acknowledge the reason FoS exists and the incredible woman at the centre of it. I wrote this a few weeks ago and it seems an apt time to share it, artwork by my ever patient sister, Holly.
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10 years is a long time. A long time to be missing your child, a long time to be fighting for others, a long time to be banging the drum, a long time to be running a charity. Yet despite this, despite the hurt, the frustrations, the grief, the juggle, Jo has never given up. She continues to share her story, her resolve, her determination, her heart - her Luke. Knowing what she went through; the unbearable loss of her first born son, that she walked through the dark and cold tunnel of despair and grief to a life she never imagined she’d have to live, and that when she got there she stood still and held up a torch for those coming behind her, providing blankets and guidance, is to me, astonishing. Not only did she do that once, she continues to stand there now, 10 years on.

She remained standing there through two subsequent anxiety-filled pregnancies, through family and career changes, and she weathered the storms of conflicting priorities, bureaucracy changes, and the ever changing demands on the charity (not to mention a pandemic and a cost of living crisis). Others have come and stood with her to help lighten the load, and sometimes they find they are called to help somewhere else and they need to move on. They leave with Jo’s gratitude for their company and support and her understanding and well-wishes for their future endeavours. I feel privileged that I am currently able to stand by her to hold a torch and man a stack of blankets. I have learnt from her compassion and wisdom, and I hope that one day my legs will be as sturdy as hers. If there should come a time when she needs to take a seat and have a break I am sure that the foundations she has laid and the footprints she has left, will leave the rest of us in great stead for the future.

For now, let us remember that the reason Friends of Serenity exists, at the core of it all, is a mother whose baby died. A mother who has gone through the unimaginable and didn’t want others to suffer in the same way, a mother who takes the love she has for Luke and shares it freely with all those who have come through the tunnel behind her, even now, 10 years on.
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Jo, we are so thankful for you and everything you do.
Rosie xx

East Lancashire NHS ELHT&me

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