Jon Shaw Foundation

16/06/2026

Thinking about my Jon today, its 7 years since he was stolen away from us by SUDEP. A beautiful life cut short, a family devastated.

11/06/2026

We are absolutely over the moon to announce that our founder Wendy Shaw has made it through to the final 4 of the BBC Stoke & Staffordshire Make a Difference Awards 💜🌟

Wendy will representing Jon Shaw Foundation at the awards ceremony on the 3rd September!

09/06/2026

Today we’re saying a massive thank you to Bella and her family for allowing us to share their story 💜

We’re so happy that we could help to support you in carrying on with all your wonderful activities!

06/06/2026

A big thank you to 4 year old Lucas and his lovely family for allowing us to share their feedback and photograph 💜

03/06/2026

Today we’re saying thank you to Gracie and her family 💜

Thank you so much for allowing us to share your words and photo, we’re so glad we could help you on your journey!

18/05/2026

Thank you to Ivy Lane School for choosing JSF.

Help Ivy Lane School raise money to support Jon Shaw Foundation

17/05/2026

Today we’re saying a massive thank you to the White Lion team and everyone that attended the brilliant bingo night this Thursday! 💜

Their efforts raised an amazing £1110 for Jon Shaw Foundation 🌟

Thank you so much to Sarah and Mel for organising, Jackie for putting on refreshments and everyone who donated prizes or took part.

Your hard work is what makes what we do possible, we are so grateful for your support!

15/05/2026

08/05/2026

Education, Awareness and real support for those living with epilepsy would be a good start by the leaders of this country. How many more young people, how many more years of campaigning by bereaved families, small charities etc. will it take for the Health department to sit up listen and DO SOMETHING about this. Enough talking and platitudes. Nearly 7 years since Jon died due of epilepsy (SUDEP) and NOTHING has changed.

Today, the inquest concluded into the death of Megan Gardiner. Megan was 17 weeks pregnant when she died in June 2022 of SUDEP – Sudden Unexpected Death in Epilepsy. She was just 25. This inquest conclusion comes after a long and gruelling four-year fight for the family.

Read more: https://sudep.org/our-ongoing-commitment-to-megans-family-and-clinical-change/

28/04/2026

Huge congratulations to our runners Alice & Christine for completing the TCS London Marathon! 🏃‍♀️🎉

Not only is this an incredible personal achievement, but they’ve also raised an amazing £1,500 and £2079.63 respectively for Jon Shaw Foundation.

We’re SO grateful for your dedication and effort, it truly makes a huge difference to the families we support.

Thank you both, for going the extra mile (literally!) 💜👏

There’s still time to add a few extra £s to Alice & Christines fundraisers which can be found here:

https://www.justgiving.com/page/alice-ewins-1

https://www.justgiving.com/page/christine-lay-3