Crawley and East Grinstead branch of Parkinson's UK

Crawley and East Grinstead branch of Parkinson's UK Are you affected by Parkinson’s and living in the Crawley or East Grinstead area? Come and find out what our local branch of Parkinson’s UK can do for you.

Today we were lucky enough to use the amazing facilities at Gridserve Gatwick at the invitation of their fabulous manage...
15/04/2026

Today we were lucky enough to use the amazing facilities at Gridserve Gatwick at the invitation of their fabulous management team. We held our monthly branch committee meeting here. Great access facilities, the option for great coffee and even a shop! Super friendly people too, we highly recommend Gridserve as a great space for meeting up, as well as working. Thanks to the team - we will be back!

We hope you will find this useful.Medicine didn’t choose Latin to be pretentious. It chose Latin because it’s dead.Dead ...
14/04/2026

We hope you will find this useful.

Medicine didn’t choose Latin to be pretentious. It chose Latin because it’s dead.

Dead languages don’t change. That matters when you’re trying to describe the same muscle, nerve, or symptom the same way in Boston, Berlin, or Bangalore without it mutating into slang or vibes. Latin became the neutral ground. No country “owns” it. No modern culture updates it.

There’s also history. Early medical education in Europe was conducted in Latin, so the words stuck. Anatomy, pathology, pharmacology. Once something works in science, it stays.

So when Parkinson’s care throws Latin and Greek at you, it’s not to exclude you. It just accidentally does that anyway.

Here is Parkinson’s Disease Glossary in plain language. No white coat required.

Akinesia

Difficulty initiating movement. Not paralysis. Almost like your brain sent the email and your body never opened it.

Alpha-synuclein

A protein that misfolds and clumps in Parkinson’s. These clumps interfere with brain cell function.

Anosmia

Loss of smell. Often shows up years before diagnosis.

Autonomic Dysfunction

When the automatic stuff stops being automatic. Blood pressure, digestion, sweating, temperature regulation. Your body forgets how to run itself quietly.

Bradykinesia

Slowness of movement. Core Parkinson’s symptom. Not laziness or aging.

Cogwheel Rigidity

A ratcheting resistance when a limb is moved passively. Feels like turning a rusty gear.

Dopamine

A neurotransmitter involved in movement, motivation, mood, and reward. Parkinson’s is fundamentally a dopamine-deficiency disorder.

Dyskinesia

Involuntary movements, often medication-induced.

Executive Dysfunction

Difficulty planning, organizing, multitasking, or initiating tasks. You still know what you want to do, but it's difficult to line up the steps.

Freezing of Gait

Sudden inability to move your feet, often mid-step. The brain hits pause without warning.

Hypophonia

Soft or fading voice. People think you’re shy or tired. You’re actually working twice as hard to be heard.

Lewy Bodies

Abnormal protein deposits inside brain cells, primarily made of alpha-synuclein.

Masked Facies

Reduced facial expression. Emotions are still there, but the face does not reflect them.

Micrographia

Progressively smaller handwriting. Shows up early. Often dismissed as “pen issues” or “getting older” when it is neither.

Motor Fluctuations

Cycles of medication working (“on”) and not working (“off”). You don’t control the timing.

Non-Motor Symptoms

Anxiety, depression, sleep disorders, pain, fatigue, cognitive changes, GI issues. Often more disabling than tremor.

Orthostatic Hypotension

Drop in blood pressure when standing. Dizziness, blackouts, falls.

Parkinsonism

An umbrella term for conditions that look like Parkinson’s but may not be Parkinson’s disease itself. Similar symptoms, different causes.

REM Sleep Behavior Disorder (RBD)

Acting out dreams during REM sleep. Can precede diagnosis by years.

Rigidity

Muscle stiffness independent of movement speed. Not soreness or tightness, but resistance.

Tremor

Rhythmic shaking, usually at rest. Not universal. Not required for diagnosis. Just the symptom everyone recognizes.

Young-Onset Parkinson’s Disease (YOPD)

Parkinson’s diagnosed before age 50. Often slower progression. Often heavier psychosocial impact.

Learning these terms makes you fluent.

Vocabulary shouldn’t be one of the things Parkinson's keeps from you.

Healthy bones are important for everyone, but people with Parkinson’s are more likely to have bone problems.There are lo...
13/04/2026

Healthy bones are important for everyone, but people with Parkinson’s are more likely to have bone problems.

There are lots of things you can do to keep your bones healthy. Talking to your health professional about your bones is a key first step.

Read new information for more on bone problems, self-help tips and treatments that can support you: https://prksn.uk/4sEWtIw

James Parkinson’s ‘Essay on the Shaking Palsy’, published in 1817, recognised Parkinson’s as a medical condition for the...
11/04/2026

James Parkinson’s ‘Essay on the Shaking Palsy’, published in 1817, recognised Parkinson’s as a medical condition for the first time. We mark his birthday every 11 April with World Parkinson’s Day, a day to shine a spotlight on Parkinson’s and our community.

Together, we can create a greater understanding of the challenges people with Parkinson’s and their loved ones face. And it’s a brilliant opportunity to raise funds for research and support services.

03/04/2026
Take a look at this video, 'Parkinson's sock advert' 💙
30/03/2026

Take a look at this video, 'Parkinson's sock advert' 💙

Parkinson’s UK and Don’t Panic London have launched a powerful new legacy campaign built around a simple but devastating truth: Parkinson’s gradually takes away the everyday moments we often take for granted. The hero film “Socks”, directed by Nicolas Jack Davies and produced by The Sweets...

World Parkinson's Day is on 11th April.Knit it blue! 💙 Show your support by knitting a blue tulip. Use our knitting guid...
22/03/2026

World Parkinson's Day is on 11th April.
Knit it blue! 💙
Show your support by knitting a blue tulip. Use our knitting guide to get started, then display it at home, share it with friends, or bring your community together for a group crafting session.

This week on 2 Parkies in a Pod, the team swap the studio for the pitch as the England Men’s Parkinson’s Walking Footbal...
22/03/2026

This week on 2 Parkies in a Pod, the team swap the studio for the pitch as the England Men’s Parkinson’s Walking Football team take on a team of MPs, proving that a Parkinson’s diagnosis doesn’t mean standing still.

It’s about movement, resilience, and being heard at the highest level, with a special nod from Prime Minister Keir Starmer.

Plus: nostalgia, gut health chats, and Dave’s unexpected breakfast guest.

Click to tune into the latest episode: https://prksn.uk/4gZMnN3

25/01/2026

On behalf of our branch members we would like to extend our sincere thanks to Kirsty and her team at The Haven Centre, Crawley Down for supplying the most amazing lunchtime buffet for our quiz event that we held there this afternoon. The quality of the food was fantastic and the variety was amazing. And that is without even mentioning the cheese board and the desserts! Thank you so much, we had some amazing feedback from our members and we just wanted to pass that on to you in addition to our thanks.
To all of those who asked about the food that was left over, Kirsty kindly wrapped it for us and we dropped it to Crawley Open House this afternoon.

It's that time again! Contact our secretary Ian for more details.
29/12/2025

It's that time again! Contact our secretary Ian for more details.

Address

Crawley
RH108

Alerts

Be the first to know and let us send you an email when Crawley and East Grinstead branch of Parkinson's UK posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organisation

Send a message to Crawley and East Grinstead branch of Parkinson's UK:

Share