The Noah Jordan Foundation

The Noah Jordan Foundation The Noah Jordan Foundation funds research to develop treatments and find a cure, for rare terminal paediatric mitochondrial diseases.

The charity also raises awareness of these rare diseases and supports those affected.

Less than 24 hours to go.Tomorrow, more than 40 members of the TNJF community, including families, friends, supporters, ...
11/06/2026

Less than 24 hours to go.

Tomorrow, more than 40 members of the TNJF community, including families, friends, supporters, volunteers and some of our incredible researchers from the Mitochondrial Research Group at Newcastle University, will set out to take on the National Three Peaks Challenge in under 24 hours.

Together, we’ll climb Ben Nevis, Scafell Pike and Snowdon, covering over 23 miles and almost 3,000 metres of ascent, all in our fight for a brighter future for children affected by mitochondrial disease.

We’re incredibly grateful to everyone taking part, everyone supporting us behind the scenes, and everyone who has donated to help make this challenge possible.

And a big shout out to HOLY for supporting the challenge by keeping the team energised for the stomp!

The countdown is on.

The extinction of Mito, one stomp at a time. 💚

09/06/2026

A huge moment for The Noah Jordan Foundation.

We are incredibly proud to announce that Fraser Dingwall, Northampton Saints and England rugby player, has joined The Noah Jordan Foundation as our first official Patron.

Having Fraser stand alongside us is both an honour and a privilege.

His support will help us raise awareness of mitochondrial disease, fund vital medical research and support affected children and their families in our fight for a brighter future as part of Noah’s legacy.

Welcome to the TNJF family, Fraser.

The extinction of Mito, one stomp at a time.

A few magic moments from Saturday 9th May at the Cure for Charlie Charity Rugby Match and Family Day.A beautiful day of ...
08/06/2026

A few magic moments from Saturday 9th May at the Cure for Charlie Charity Rugby Match and Family Day.

A beautiful day of community spirit, rugby and family fun, with so many people coming together to stand behind Charlie and his family.

A huge thank you to Harrison and Ellie for inviting me to be part of such a special day. It was an honour and a privilege to stand alongside them, the rest of their families and the wider Driffield community.

Extraordinarily, over £15,000 was raised for The Noah Jordan Foundation.

That money will help us continue funding vital mitochondrial disease research, raising awareness and supporting affected children and families across the UK.

Thank you to everyone who made the day possible: the players who took to the pitch, the volunteers who gave their time, the local businesses who donated and supported, Driffield Rugby Club for hosting, and Michelle for capturing the day.

And thank you to everyone who came along, bought tickets, donated, shared, cheered and stood behind Harrison, Ellie, Wills and Charlie.

Days like this are difficult to put into words. They show the power of community, love and hope, and what can happen when people come together for children and families affected by these devastating diseases.

For Charlie ❤️

The extinction of Mito, one stomp at a time.

A proud moment for TNJF.Huge congratulations to Elsaed Mohamed, our funded PhD researcher at the Mitochondrial Research ...
07/06/2026

A proud moment for TNJF.

Huge congratulations to Elsaed Mohamed, our funded PhD researcher at the Mitochondrial Research Group (MRG) at Newcastle University, who has won a poster prize at EUROMIT 2026 in Angers, France for his research into POLG disease and mitochondrial epilepsy.

Elsaed is the first PhD student fully funded by The Noah Jordan Foundation, and we’re incredibly proud to see his work recognised on the international stage.

Just over two years ago, Noah was fighting this disease. Today, research funded in his name is being recognised by the international mitochondrial disease community and helping to shape a brighter future for children affected by mitochondrial disease.

This is exactly why we fund research, because the answers children need will only be found through research like this.

The extinction of Mito, one stomp at a time.

That’s me behind the wheel.A dad driving a van with his son’s name on the side.A sentence I never imagined I’d write.Yes...
06/06/2026

That’s me behind the wheel.

A dad driving a van with his son’s name on the side.

A sentence I never imagined I’d write.

Yesterday, Noah should have turned three.

Thank you to everyone who took the time to send a message, leave a comment, share a post, or simply think of Noah. Reading your messages was a reminder of just how many lives our little boy continues to touch.

I should be spending weekends like this, watching him grow up alongside his brothers and making memories with him and the rest of our family.

Instead, I’m spending them honouring the promise I made to him. To do everything I can to create a future where other children like Noah get the future he never had.

It’s not the life we planned.

But it’s the mission Noah gave us.

Noah’s story didn’t end when his life did.

In many ways, it’s only just beginning.

The extinction of Mito, one stomp at a time.

Plymouth Argyle Football Club BBC Cornwall Home Park Stadium

Happy Birthday Noah. ❤️Three years old today.There isn’t a day that goes by that we don’t think about you.We often wonde...
05/06/2026

Happy Birthday Noah. ❤️

Three years old today.

There isn’t a day that goes by that we don’t think about you.

We often wonder what you’d be doing, what mischief you’d be getting up to with Freddie, and how much you’d adore your little brother, Sebastian.

We miss you more than words could ever say, and in everything we do, we hope we’re making you proud.

Until we meet again, little man.

All our love,

Mummy, Daddy, Freddie & Sebastian x

We are incredibly excited to announce the date for this year’s Noah Jordan Foundation Charity Ball.📅 Friday 13th Novembe...
04/06/2026

We are incredibly excited to announce the date for this year’s Noah Jordan Foundation Charity Ball.

📅 Friday 13th November 2026
📍 Sandy Park, home of the Exeter Chiefs

Save the date.

This will be a very special evening, bringing together our community, supporters, families, friends and partners, all in support of children affected by mitochondrial disease.

More details will follow soon, but for now, please mark your calendars and keep the date free.

We couldn’t save Noah, but together we can change what happens next.

The extinction of Mito, one stomp at a time.

🎉 Back by popular demand… BINGO is back! 🎉Join us for another fantastic night of fun, laughs and prizes with the brillia...
04/06/2026

🎉 Back by popular demand… BINGO is back! 🎉

Join us for another fantastic night of fun, laughs and prizes with the brilliant Lee Taylor calling the numbers.

📅 Wednesday 10th June
⏰ Eyes down at 7:00pm
📍 The New Inn, Tywardreath
🎁 Great prizes to be won

In support of

Whether you’re a bingo regular or just fancy a great night out with friends, we’d love to see you there.

Every ticket helps us continue funding vital mitochondrial disease research, raising awareness and supporting affected children and families across the UK.

We couldn’t save Noah, but together we can change what happens next.

The extinction of Mito, one stomp at a time.

Grief is a strange thing.It doesn’t arrive when you expect it to.Sometimes it’s triggered by a photograph, a song, a mem...
03/06/2026

Grief is a strange thing.

It doesn’t arrive when you expect it to.

Sometimes it’s triggered by a photograph, a song, a memory, or simply a date approaching on the calendar.

This Friday is Noah’s third birthday.

And whilst I am incredibly proud of everything being achieved in his name, I would swap every bit of it in a heartbeat just to hold him one more time.

Missing you a little more than usual this week, little man. ❤️

Meet Rachael - Trustee 👋We are pleased to introduce Rachael as a Trustee of The Noah Jordan Foundation.Rachael is a teac...
29/05/2026

Meet Rachael - Trustee 👋

We are pleased to introduce Rachael as a Trustee of The Noah Jordan Foundation.

Rachael is a teacher and safeguarding lead, with extensive experience supporting children, young people and families.

She brings compassion, insight and a deep understanding of the challenges many families face, helping to ensure that children remain at the heart of everything we do.

Beyond her professional experience, Rachael is one of Natasha’s oldest friends and has been a constant source of support to our family through both the happiest and most difficult moments.

When Noah died, Rachael stood beside us and has continued to do so ever since. Through some of the darkest days our family has ever faced, her friendship, kindness and support have never wavered.

She has helped shape the Foundation from day one and plays an important role in guiding its continued growth and impact.

Rachael’s support extends far beyond her role as a Trustee. Alongside her husband Kieran, she has completed more than five ultra marathons in support of TNJF since Noah’s death, dedicating countless hours to training and pushing herself both physically and mentally to raise vital funds and awareness for children and families affected by mitochondrial disease.

We are incredibly grateful for everything she continues to bring to the Foundation.

Thank you, Rachael ❤️

The extinction of Mito, one stomp at a time.

Address

The Noah Jordan Foundation, Mor Workspace, Treloggan Lane, Newquay
Cornwall
TR72FP

Telephone

+447301424540

Website

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