Turner Syndrome Support Society (UK)

17/03/2026

🍀St Patrick's day🍀

Wishing our members in Ireland a lovely bank holiday!

15/03/2026

🌸 Happy Mother's Day! 🌸

To all the mothers, aunties, god mothers & furry mummy's thank you for your strength, love, and guidance. You are truly appreciated today and every day. 💖

15/03/2026

Love to everyone xx

15/03/2026

Happy Mothers Day we know it can be a challenge for many of you. We are thinking of you all. We have some fantastic Mums to daughters with TS.

13/03/2026

💤World Sleep Day💤

💜Changing our habits can be difficult and frustrating, so remember to be kind to yourself.

🪷Start with small steps to better sleep. Maybe it's time to start that spring clean and focus on making your bed room a calming space.

📵You could start by simple making your bedroom a technology free zone.

🛏️For more ideas check out our Fact Sheet 'Top Tips on coping with Tiredness' by clicking the link below

https://tss.org.uk/index.php/information/fact-sheets

09/03/2026

This excellent video is of the webinar from our friends at Turner Syndrome during the lifespan

February is Turner Syndrome Awareness Month, a time dedicated to increasing understanding, education, & support for individuals & families affected by Turner...

08/03/2026

03/03/2026

Enjoying seeing the delegates at day 2 of this years . Thankyou for visiting the . We have guidelines and health checks lists available.

03/03/2026

👂World Hearing Day🦻

👩‍⚕️Girls with TS are more prone than others to middle ear infections, and recurrent infections can lead to deafness if not promptly treated. A consultation with an ear, nose and throat [ENT] specialist would be helpful.

🎧"By 2030, over 500 million people are expected to have disabling hearing loss requiring rehabilitation.
Over one billion young people face the risk of permanent hearing loss due to prolonged exposure to loud sounds during recreational pastimes such as listening to music and video gameplay." - www.worldhearingday.org

💜Try to be mindful of how loud you play your music and remember to book in for your regular hearing checks.

26/02/2026

Our member Chris Tyson and his friend Ryan are taking on a massive charity challenge this year in March the TSSS benefit. Please support them if you can.

Link: https://tss.enthuse.com/pf/chris-ryan

26/02/2026

Some great sessions available for Adult Sibling Day, well worth a look.

We are so looking forward to welcoming adult siblings to our day in Reading next month! Final preparations are taking place and information will be sent out by email to all delegates who have secured a place. The event is fully booked and the waiting list now closed, so we are unable to include any new bookings.

Adult Sibling Story
Adult sibling Anne told us – “My experiences as a sibling have taught me so much about how I parent my own children” Read Anne’s sibling story.

Adult siblings and genetic counselling

Lots of people who grow up with a disabled brother or sister consider having genetic counselling when they’re considering starting their own families. Are you exploring this issue? Read about the experiences of other adult siblings here. Want to share your own experiences with us? We would love to hear from you – email [email protected]

Behaviour that challenges

How do you cope with your brother or sister’s challenging behaviour as an adult sibling? Download our free guide at www.sibs.org.uk/guides

20/02/2026

To celebrate international women's day

To celebrate International Women's Day on the 4th March, called International Women’s Day Webinar: From Late Diagnosis to Work That Works 12:30 -13:30, Lillie and Alex share their journey of late diagnosis, self-advocacy, and co-leadership. They’ll explore how thoughtful adjustments, practical support, and neuro-inclusive design can transform workplaces for professionals with cognitive differences, teams, and organisations. You’ll leave with real strategies, inspiring stories, and proof that inclusion makes systems work better for everyone. You can book on Eventbrite here: International Women’s Day Webinar: From Late Diagnosis to Work That Works Tickets, Wed, Mar 4, 2026…

International Women’s Day Webinar: From Late Diagnosis to Work That Works
https://www.eventbrite.co.uk/e/international-womens-day-webinar-from-late-diagnosis-to-work-that-works-tickets-1982328745641?aff=oddtdtcreator

Two sisters’ journey to neuro-inclusive leadership