Triumph For Tomas

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Triumph For Tomas Our objective is the promotion and protection of good health among people suffering from Pelizaeus-Merzbacher Disease (PMD) and gene-linked disorders.

The object of the CIO is the promotion and protection of good health among people suffering from Pelizaeus-Merzbacher Disease (PMD) and gene-linked disorders known as the leukodystrophies, characterised by myelin sheath abnormalities, in particular but not exclusively by providing information, advice, practical support and grants of financial assistance to such people and their families and carers. Tomas has Pelizaeus Merzbacher Disease. It's a rare genetic condition where the fatty tissue of his brain didn't grow. PMD can affect vision, hearing, communication, motor skills and intellectual ability. PMD can also cause those with the extreme form to die before they reach adolescence. Triumph for Tomas Registered Charity Number 1166810

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Chatham
ME57PD

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