20/06/2026
Nystagmus Network provides information and support to people with the condition, their families and professionals working with them, and also funds research. Support includes a helpline, virtual support groups and literature.
It's Nystagmus Awareness Day 2026! This year, we've been raising awareness about the complexities of life with nystagmus by asking people to share their stories.
Nystagmus can be really difficult to explain to people. Often, one of the hardest things to deal with is that, because they don’t understand it, they don’t always believe what you say. How many times has someone told you to put your glasses on, try harder or stop complaining?
This Nystagmus Awareness Day, help us raise awareness and understanding of nystagmus by sharing your stories and talking to others about nystagmus. You could even starting your own fundraiser to support our mission! Our 'See through our eyes' fundraiser starts today and you can become a fundraiser for the campaign here: https://buff.ly/Bj3kb3p
