WAMES

23/06/2026

E.T. says when socialising "it becomes painfully clear how different our realities are. I feel like an alien... Of course, there’s still hope that it’s not too late, that things could still turn around, that even with this illness, I might experience beautiful versions of myself and my life. But after 7 years, I think it’s okay to grieve sometimes."

I feel like an alien. But, an alien in a human body, no one can see that I’m from another planet. And suddenly there’s this huge distance between us.

23/06/2026

The success rate for PIP claims that get as far as an assessment have continued to fall, according to the latest DWP figures.

The DWP is also failing to keep up with demand in every area of PIP, except for mandatory reconsiderations, which have seen a big improvement in clearance times.

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments, reviews, appeals.

23/06/2026

Peidiwch â cholli gweminar ME Voices Wales yr wythnos nesaf pan fydd BIP Hywel Dda yn rhannu sut y gall eu Gwasanaeth LC a ME/CFS gefnogi pobl sy’n byw gyda ME/CFS yng Ngheredigion, Sir Gaerfyrddin a Sir Benfro.

Dydd Llun 29 Mehefin, 12:30-13:30.

Cofrestrwch ymlaen llaw: https://tinyurl.com/5y8btxpj
[email protected]

23/06/2026

Don't miss next week's ME Voices Wales webinar when Hywel Dda UHB will share how their LC & ME/CFS Service can support people living with ME/CFS in Ceredigion, Carmarthenshire & Pembrokeshire. Mon 29 June, 1230-1330.

Register in advance: https://tinyurl.com/5y8btxpj
[email protected]

23/06/2026

Willecke takes time to think of all the things she is grateful for, even though she can rarely get out of bed.

From a "a spiritual conversation with the robin" to her cat lying beside her, to a pair of soft, well fitting trousers!

Deze dag begon met een spiritueel gesprek met het roodborstje op de schutting, één om met zeer blije gevoelens op terug te kijken! Prachtig hoe zo’n diertje je wijs aan kan kijken. Dankbaar ben ik …

23/06/2026

Video: Dr Judith Bellmann-Strobl talks about the therapeutic approach of B-cell/plasma cell depletion in ME/CFS, noting different subsets of patients. e.g. a case series involving inebilizumab—a CD19-directed monoclonal antibody.

[13 mins] Dubbed into English

Dr. Judith Bellmann-Strobl presented the therapeutic approach of B-...

23/06/2026

Where would I want to be, if I could?

"I would prefer to be in the hands of a team of specialists and practitioners today who quickly lead me and all other PAIS patients to a carefree healthy life in their own quiet clinics with rest areas." Plus to be hugged, without it hurting.

Naar aanleiding van de post gisteren over het project 𝐈 𝐖𝐨𝐮𝐥𝐝 𝐁𝐞 𝐇𝐞𝐫𝐞 𝐈𝐟 𝐈 𝐂𝐨𝐮𝐥𝐝, ontvingen we deze ontroerende bijdrage die we anoniem plaatsen:Met ME zou ik het liefst vandaag nog in de handen zi…

23/06/2026

MERUK highlights German research which has developed 2 new questionnaires/ measurement scales to measure levels of activity and participation in children and young people (CYP) with ‘post-acute infection and vaccination syndromes and/or ME/CFS’.

A team of researchers, including Uta Behrends who has previously worked on an ME Research UK-funded project, have developed new tools to measure levels of activity and participation in children and young people (CYP)with 'post-acute infection and vaccination syndromes and/or ME/CFS'. In their paper,...

23/06/2026

Cort Johnson gives an overview of the presentations at the PolyBio symposium which suggest that investigators need to explore the tissues more deeply, and in particular, determine if pathogens persist in them and are driving long COVID and ME/CFS.

Geoff’s Narration The GIST   The 2026 PolyBio Spring Symposium – Pt I One way to gauge the health of a field is by the number of conferences/symposia it supports. From the looks of things, the long–COVID and ME/CFS fields are moving up: The International ME/CFS conference – May 7-8 […]

23/06/2026

Cort Johnson explores the presentations at the PolyBio symposium which suggest that investigators need to explore the tissues more deeply, and, in particular, determine if pathogens persist in them and are driving long COVID and ME/CFS.

Geoff’s Narration The GIST   The 2026 PolyBio Spring Symposium – Pt I One way to gauge the health of a field is by the number of conferences/symposia it supports. From the looks of things, the long–COVID and ME/CFS fields are moving up: The International ME/CFS conference – May 7-8 […]