16/09/2025
๐ ๐ณ๐ฟ๐ฒ๐ฒ ๐ผ๐ป๐น๐ถ๐ป๐ฒ ๐ฐ๐ผ๐๐ฟ๐๐ฒ ๐ณ๐ผ๐ฟ ๐ฎ๐๐ฝ๐ถ๐ฟ๐ถ๐ป๐ด ๐ฝ๐ฎ๐๐ถ๐ฒ๐ป๐ ๐ฎ๐ฑ๐๐ผ๐ฐ๐ฎ๐๐ฒ๐ - ๐๐๐ฎ๐ฟ๐๐ถ๐ป๐ด ๐ฎ๐ฎ ๐ฆ๐ฒ๐ฝ๐๐ฒ๐บ๐ฏ๐ฒ๐ฟ ๐ผ๐ป FutureLearn! ๐ฅ๏ธ
Are you a patient, representative, or carer interested in influencing genetic disease research design and healthcare delivery?
Sign up to secure your free place on our ๐ง๐ต๐ฒ ๐ฃ๐ผ๐๐ฒ๐ฟ ๐ผ๐ณ ๐ฃ๐ฎ๐๐ถ๐ฒ๐ป๐ ๐๐ฑ๐๐ผ๐ฐ๐ฎ๐ฐ๐ ๐ถ๐ป ๐๐ฒ๐ป๐ผ๐บ๐ถ๐ฐ๐: ๐๐ป๐ณ๐น๐๐ฒ๐ป๐ฐ๐ถ๐ป๐ด ๐ฅ๐ฒ๐๐ฒ๐ฎ๐ฟ๐ฐ๐ต, ๐๐น๐ถ๐ป๐ถ๐ฐ๐ฎ๐น ๐ฃ๐ฟ๐ฎ๐ฐ๐๐ถ๐ฐ๐ฒ ๐ฎ๐ป๐ฑ ๐๐ฒ๐ฐ๐ถ๐๐ถ๐ผ๐ป ๐ ๐ฎ๐ธ๐ถ๐ป๐ด online course, and begin your learning journey.
๐ฅ๏ธ ๐๐ฒ๐น๐ถ๐๐ฒ๐ฟ๐ฒ๐ฑ ๐น๐ถ๐๐ฒ ๐ผ๐๐ฒ๐ฟ ๐ณ๐ผ๐๐ฟ ๐๐ฒ๐ฒ๐ธ๐ through monitored forums, on the FutureLearn learning platform.
โฐ ๐ช๐ฒ๐ฒ๐ธ๐น๐ ๐๐๐๐ฑ๐ ๐ฒ๐
๐ฝ๐ฒ๐ฐ๐๐ฎ๐๐ถ๐ผ๐ป: three hours
๐ A ๐ฐ๐ฒ๐ฟ๐๐ถ๐ณ๐ถ๐ฐ๐ฎ๐๐ฒ ๐ผ๐ณ ๐ฎ๐ฐ๐ต๐ถ๐ฒ๐๐ฒ๐บ๐ฒ๐ป๐ is issued on successful completion of the course.
๐ง๐ต๐ฒ๐๐ฒ ๐ธ๐ฒ๐ ๐ฎ๐ฟ๐ฒ๐ฎ๐ ๐๐ถ๐น๐น ๐ฏ๐ฒ ๐ฐ๐ผ๐๐ฒ๐ฟ๐ฒ๐ฑ ๐๐ต๐ฟ๐ผ๐๐ด๐ต๐ผ๐๐ ๐๐ต๐ฒ ๐ฐ๐ผ๐๐ฟ๐๐ฒ:
โ
Confidence and advocacy skills development
โ
Building a communication and co-creation toolkit
โ
How to make real-world impact in the genomics ecosystem
๐ช๐ต๐ผ ๐๐ถ๐น๐น ๐๐ผ๐ ๐น๐ฒ๐ฎ๐ฟ๐ป ๐๐ถ๐๐ต ๐ฒ๐
๐ฝ๐ฒ๐ฟ๐ถ๐ฒ๐ป๐ฐ๐ฒ๐ฑ ๐ฝ๐ฎ๐๐ถ๐ฒ๐ป๐ ๐ฎ๐ฑ๐๐ผ๐ฐ๐ฎ๐๐ฒ๐, ๐ฎ๐ป๐ฑ ๐ฐ๐น๐ถ๐ป๐ถ๐ฐ๐ฎ๐น ๐ด๐ฒ๐ป๐ฒ๐๐ถ๐ฐ๐ถ๐๐๐?
๐ Jillian Hastings Ward MBE, Lead Educator and Independent Patient Advocate
๐ Jillian Banfield, Lead for Patient Partnership in Canadian Institutes of Health Research's Institute of Genetics (CIHR)
๐ Ai Ling Sim-Devadas, Patient Advocate and Personal and Public Involvement Practitioner
๐ Dr Michelle Bishop, Associate Director of Wellcome Connecting Science Learning and Training
This course is also suitable for researchers or scientists interested in learning more about how to include patient insights into research design. It's particularly useful for those who are also connected to advocacy networks through their research or clinical work.
๐ช๐ฎ๐๐ฐ๐ต ๐๐ต๐ฒ ๐ฐ๐ผ๐๐ฟ๐๐ฒ ๐๐ฟ๐ฎ๐ถ๐น๐ฒ๐ฟ ๐๐ผ ๐ณ๐ถ๐ป๐ฑ ๐ผ๐๐ ๐บ๐ผ๐ฟ๐ฒ!
https://youtu.be/cDZI_9Q39Ag?si=Jm2-KnivqoVpt-kT ๐ฝ๏ธ
๐ ๐ฆ๐๐ฎ๐ฟ๐ ๐น๐ฒ๐ฎ๐ฟ๐ป๐ถ๐ป๐ด ๐ณ๐ผ๐ฟ ๐ณ๐ฟ๐ฒ๐ฒ ๐ณ๐ฟ๐ผ๐บ ๐ฎ๐ฎ ๐ฆ๐ฒ๐ฝ๐๐ฒ๐บ๐ฏ๐ฒ๐ฟ: https://bit.ly/4npR6tR
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