Cambridge ME group

13/08/2026

The Royal College of Psychiatrists responded to our letter pointing out that the biopsychosocial emperor had no clothes and asking them to stop trying to cover up its nakedness.
We appreciate their courtesy in responding at presidential level. But they have answered none of the specific points we raised.
Read our letter and the RCPsych response here:

ME is a very neglected illness. Many medical professionals know little about it beyond being aware of something called ‘chronic fatigue syndrome’. This was the name given to it by psych…

07/08/2026

Ahead of tomorrow, we are launching the Severe ME Inquiry Report.

This inquiry, initially started by the APPG on ME, set out to examine the experiences of people living with severe and very severe ME. It found systemic failings across healthcare, social care, and education.

Around 1 in 4 people with ME have severe or very severe ME, and many experience stigma, prejudice and misunderstanding.

The inquiry found key themes that people with severe and very severe ME experienced, including inaccessible care, institutional prejudice and patchwork service provision.

The report sets out key recommendations for action, including establishing a national care framework for severe and very severe ME and mandatory training across health, social care and education.

You can read more and download the report on our website 👇

https://www.actionforme.org.uk/the-more-ill-you-become-the-less-care-you-receive-severe-me-inquiry-report/

We wish to say a huge thank you to all those who provided evidence and shared their experience for the inquiry. Thank you also to Tessa Munt, the APPG on ME, and the 25% ME Group for their support 🙏

26/07/2026

My 27-minute Medical Scandal Explainer video has now passed 300,000 views on YouTube.

YouTube’s AI summary has analysed over 3,100 comments.

16/07/2026

**Open letter to the Royal College of Psychiatrists**

Last month, the Royal College of Psychiatrists' annual Congress included a session presenting behavioural treatments for ME and Long Covid. Long Covid Advocacy and many co-signatories — including our group — wrote to the College objecting. The College's reply defended the session by appealing to the "expert use of the biopsychosocial model".

Together with the Suffolk Youth & Parent ME Support Group and the Bury & Bolton ME/CFS & Fibromyalgia Support Group, we have now sent a follow-up open letter to the College's President and Immediate Past President.

Our point is simple. The "biopsychosocial model" is a general way of thinking about illness, not a scientific theory. It cannot be tested, so it cannot lend support to specific treatments that *have* been tested and found wanting. When NICE reviewed the trial evidence in 2021, it rated the evidence for CBT and graded exercise as low or very low quality, and it now recommends against graded exercise for ME. Wrapping those rejected treatments in the language of the biopsychosocial model doesn't change the evidence — it just makes the weakness harder to see.

The letter was sent to the College by recorded delivery and email on 13 July, and is published in full here:

15/07/2026

Sarah is one of the therapists featured on our new directory (link in first reply) - take a look at her profile to learn more about her approach and experience.

13/07/2026

Isn’t it good to know that there are people fighting on our behalf? If you have severe or very severe ME, this is urgent. If you have moderate or mild ME, it’s about your future.

Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

13/07/2026

Forty years of the biopsychosocial ‘model’ of ME in one sentence.

Believing is easier when it pays. Like to***co executives before them, those whose careers and consultancies depend on the biopsychosocial ‘theory’ will keep believing in it — whatever the evidence says.