Cambridge ME group

16/10/2026

https://www.facebook.com/share/1GS5QQE87n/?mibextid=wwXIfr

Forwarded from the Bristol ME Support Group

Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.

13/10/2026

https://www.theguardian.com/society/2026/oct/13/women-autoimmune-conditions-psychological-misdiagnosis-cambridge-study

In brief: researchers at Cambridge and the University of East Anglia, led by Dr Melanie Sloan, surveyed over 6,600 people with autoimmune diseases such as lupus and rheumatoid arthritis. About a third of the women said they had been told their symptoms were psychosomatic, compared with about a fifth of the men. The women also waited much longer for a diagnosis.

The study doesn't look at ME directly. But it does point to women with hard-to-diagnose conditions being significantly more often wrongly told their illness is psychological or psychosomatic. Conditions without visible signs or a clear-cut test fared worse, and ME has neither. Many of us will recognise the pattern.

Cambridge University study suggests stark gender divide in misdiagnosis, with women also waiting longer for treatment

28/09/2026

George Monbiot's concise summary of the position that ME is in.

The Telegraph and Suzanne O'Sullivan FYI.

https://www.facebook.com/share/v/19z4otvuBB/

06/09/2026

We’re delighted to see a forceful response to the intellectually vacuous and dishonest patient-blaming promulgated by O’Sullivan and promoted by The Telegraph.

24/08/2026

I think anyone undertaking the grinding, exhausting work of advocating for people with ME knows just how Anil feels. We do it because we revolt against the grotesque injustice of our situation.

I'm not a patient advocate. I'm not an activist. I'm just a patient that shares out of sheer desperation as much about my disease, or rather the whole s**t show circus surrounding it, so I can hopefully, one day, return to a more normal life. While raising awareness for ME also keeps me busy, I

13/08/2026

The Royal College of Psychiatrists responded to our letter pointing out that the biopsychosocial emperor had no clothes and asking them to stop trying to cover up its nakedness.
We appreciate their courtesy in responding at presidential level. But they have answered none of the specific points we raised.
Read our letter and the RCPsych response here:

ME is a very neglected illness. Many medical professionals know little about it beyond being aware of something called ‘chronic fatigue syndrome’. This was the name given to it by psych…