CDG UK

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CDG UK Registered Charity Number 1191342.

The national charity supporting those affected by Congenital Disorders of Glycosylation, supporting patients and families, raising awareness and raising funds for this currently incurable group of disorders.

18/05/2026

Your condition does not define who you are on this . If you have any motivation for anyone struggling today, put it in the comments 💙

💚Today on CDG Awareness Day, we are proud to share something incredibly powerful — a research proposal written by a CDG ...
16/05/2026

💚Today on CDG Awareness Day, we are proud to share something incredibly powerful — a research proposal written by a CDG family raising three children affected by one of the rarest CDG subtypes, ALG2-CDG. 💚

Behind every rare diagnosis is a family fighting for answers, understanding and hope for the future.

Families are not only caring, advocating and navigating daily life with CDG — they are helping shape the future of research itself.

Today, we honour the voices, determination and resilience within our community.

Because every subtype matters.
Every family matters.
And every step towards research brings hope.

Address

Meadow
Bromsgrove
B61

Telephone

+447745323011

Website

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