09/06/2026
If your child has a lower urinary tract problem associated with a genetic condition such as those mentioned in the post below, this is a great opportunity for you to help shape how clinical services and treatments are designed and delivered in the future.
Find out more and how to get involved here: https://survey.zohopublic.eu/zs/L4BxYe
❗️Closing date is Friday 12th June
Does your child have a lower urinary tract problem associated with a genetic condition?
For example:
🔵Post-urethral valves
🔵Bladder Exstrophy
🔵Cloacal Anomaly
🔵Vesico-ureteric reflux
🔵Prune Belly Syndrome
🔵Urofacial syndrome
🔵Omphalocele
🔵Non-neurogenic neurogenic bladder (Hinman syndrome)
If yes, we'd love for you to take part in the 2-3 discussion groups happening on Zoom over 6 months. It's your opportunity to help shape how clinical services and treatments are designed and delivered in the future, and you'll receive an hourly fee in recognition of your time.
Take a look at the attached flyer for more information and scan the QR code to get involved.