Action for ME

Action for ME Providing support & holistic healthcare services to people of all ages affected by ME. Charity number: 1036419 / SC040452

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🧡 Come along to our End of Summer Drop-In on the Young People’s Forum for some FREE fun online! 🗓️ Date: Thursday 17 Sep...
03/09/2026

🧡 Come along to our End of Summer Drop-In on the Young People’s Forum for some FREE fun online!

🗓️ Date: Thursday 17 September
🕑 Time: 3.30pm-4.30pm
💻 Where: our Young People’s Online Forum

Our Peer Support Moderators will be hosting an online drop-in - an opportunity to message in real-time with other friendly forum users.

You can stay for as little or as long as you like, chat online with other Forum members, and our moderators will have a selection of games and quizzes for you to try as well!

You will need to be a member of our FREE Children’s and Young People’s Community and registered for the Action for ME online forum (which is also free) to participate.

Join our Young People’s Community here 👇
https://www.actionforme.org.uk/18-and-under/support-for-under-18/join-our-young-peoples-community/

The ME Local Network is holding its Annual Meeting and everyone is welcome! 🗓️ Date: Friday 4 September 🕑 Time: 12noon-1...
01/09/2026

The ME Local Network is holding its Annual Meeting and everyone is welcome!

🗓️ Date: Friday 4 September
🕑 Time: 12noon-1pm
📍 Where: online via Zoom

Sign up via the link below or scan the QR code 👇
https://us06web.zoom.us/meeting/register/C7tVMU2ERgmwKB4w1cXrQg

The ME Local Network works to strengthen mutual support between local ME support groups across the UK. It shares information and best practice and ensures grassroots voices are heard.

You can read more about the ME Local Network here 👇
https://mehub.uk/meln/

📢 Support for parents and carers of children with diagnosed or suspected ME.If your child’s school is struggling to unde...
27/08/2026

📢 Support for parents and carers of children with diagnosed or suspected ME.

If your child’s school is struggling to understand ME and the impact it has on your child, or if you’d like to know more about Individual Healthcare Plan (IHCPs), our Family Support service is here to help.

We can help identify and prioritise key issues, identify your options and next steps and provide you with information, guidance and resources to support your child.

We offer two support options to families:

· Accessing education in a needs-appropriate way for your child

· Working with professionals such as your child’s GP or social services.

One service user shared:

“It has been immensely helpful during a really stressful time. A lifeline when you feel like you’re drowning.”

You can find out more about our Family Support service, including how to access it, on our website 👇

https://www.actionforme.org.uk/supporting-you/our-free-support-services/family-support/

📢 Recording now available!We’re pleased to announce that the recording for the ‘You’re not imagining it: Long Covid, Me ...
26/08/2026

📢 Recording now available!

We’re pleased to announce that the recording for the ‘You’re not imagining it: Long Covid, Me and invisible illnesses in South Asian communities’ online event is now available!

This event was held in July, supported by Action for ME, and organised by South Asian Heritage Trust. It was hosted by BBC radio broadcaster Asma Yonnus with expert clinicians Dr Binita Kane and Dr Sanjay Gupta.

Watch the recording now 👇

https://www.youtube.com/watch?v=BOuPVTurJ0k

We know that living with ME can be hard, especially when you’re young, but our ME services for children and young people...
26/08/2026

We know that living with ME can be hard, especially when you’re young, but our ME services for children and young people are here to help 🧡

If you are a parent or carer of a young person with ME, they can join our Young People’s Community and connect with others who truly understand what it’s like to live with ME.

It’s free to join, open to anyone with ME aged up to and including 18, and being a member means that your young person will receive:

· Access to our fun, friendly online forum, moderated by our volunteer Peer-Support Moderators

· Our monthly e-magazine, Cheers, written by and for our community

· A birthday card every year, written by one of our lovely volunteers

We will also send them information about how to use our pen pal service and our buddy writer service for those with severe ME, with no expectation that you need to reply.

Visit our website to find out more information and registration form 👇

https://www.actionforme.org.uk/18-and-under/support-for-under-18/join-our-young-peoples-community/

*For young people aged under 16, we will need the permission of a parent or guardian to join, and their details as well as yours when you complete the registration form.*

📢 The next All-Party Parliamentary Group (APPG) meeting on ME will be held in September.🗓️ Date: 2nd September 2026🕑 Tim...
25/08/2026

📢 The next All-Party Parliamentary Group (APPG) meeting on ME will be held in September.

🗓️ Date: 2nd September 2026

🕑 Time: 1-2pm

📍 Location: Room T, Portcullis House

The meeting will discuss the initial findings of Action for ME’s Big Survey and explore what action members can take to redress the issues identified.

The APPG will also hold an Extraordinary General Meeting (EGM) to appoint a new Vice Chair as Jo Platt MP has been appointed as a Parliamentary Private Secretary (PPS) to the Prime Minister, Andy Burnham in July.

Ask your MP to attend! You can find out more and download a template letter to send your MP on our website 👇

https://www.actionforme.org.uk/the-next-appg-on-me-meeting-will-be-on-2nd-september/

📢 Parents and carers of children and young people with ME/CFS - last chance to register for our Family Support Webinar t...
25/08/2026

📢 Parents and carers of children and young people with ME/CFS - last chance to register for our Family Support Webinar taking place tomorrow!

🗓️ Wednesday 26th August 2026

🕑 4pm – 5:30pm

📍Online via Zoom

The webinar will be delivered by Keely, our Family Services Coordinator, and Juliet, our Information and Support Officer.

It will focus on working with your child’s school and Individual Health Care Plans (IHCPs), how to prep for meetings with your child’s school, what goes into IHCPs, exploring adaptions and provisions (reasonable adjustments) and important milestones.

To register for your place 👇

https://us02web.zoom.us/webinar/register/WN_c1y9VvcuQlO0gWydUzJbMg #/registration

Capacity for this webinar is capped at 20 places. If there are no places left available, you can still register via the same link to be sent our recording of the webinar by email.

Please note, this is our pilot webinar of the series, and we will be sending out feedback forms afterwards to shape future webinars.

📢 Have you registered for Action for ME's 2026 AGM? Our Annual General Meeting takes place online on Tuesday 22 Septembe...
24/08/2026

📢 Have you registered for Action for ME's 2026 AGM?

Our Annual General Meeting takes place online on Tuesday 22 September, 2pm–3pm.

Join CEO Sonya Chowdhury as we reflect on the past year, share updates on our work and look ahead to future priorities.

The AGM is open to all.

Register today: https://us02web.zoom.us/webinar/register/WN_2BAD42gBS8iyQIniXQ5iJw

📢Welsh Senedd Petition - Take urgent action so those with Severe Myalgic Encephalomyelitis in Wales are no longer left w...
21/08/2026

📢Welsh Senedd Petition - Take urgent action so those with Severe Myalgic Encephalomyelitis in Wales are no longer left without vital medical care.

Across Wales, service provision for people with ME remains inconsistent, often without medical guidance, particularly for those with severe and very severe ME.

We are sharing this petition to support the call for the Government to implement immediate and long-term support for those in desperate need, ensuring that people with severe and very severe ME can access evidence-based medical care.

To sign and share this petition, and read more 👇

https://petitions.senedd.wales/petitions/247069

⭐ ‘A Shattered Mosaic’ - one woman show about ME performed at the Camden Fringe ⭐On August 5, ‘A Shattered Mosaic’ , whi...
19/08/2026

⭐ ‘A Shattered Mosaic’ - one woman show about ME performed at the Camden Fringe ⭐

On August 5, ‘A Shattered Mosaic’ , which was written and performed by poet-playwright Jess, who has ME, debuted at the Hen and Chickens Theatre.

The 60 minute performance was an autobiographical show told in rhymed poetry. It weaved together spoken word and theatre, and stood as a love letter to poetry, art and the human ability to change direction when life doesn’t go as planned.

You can learn more about Jess and her theatre company on Instagram 👇

https://www.instagram.com/rubygemtheatre/

Jess, who was diagnosed with ME in 2024, is the daughter of Action for ME Trustee Beatrix, who is completing the Chiltern 50 Ultra Challenge in September to fundraise for Action for ME. Beatrix has already raised over £3,000!

You can read more about Beatrix’s fundraising here 👇

https://www.justgiving.com/page/beatrix-action-for-m-e-ultra-challenge

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Unit 2. 2 Streamline, 436-441 Paintworks
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