Action for ME

05/11/2026

❔Are you registered with a GP in Scotland?

Share our Learn about ME webinar with them!

📢 We are hosting a Learn about ME webinar for GPs and Allied Health Professionals (AHPs) in Scotland!

They will learn more about Myalgic Encephalomyelitis (ME) and long Covid.

🗓️ Date: Thursday 12th November, 2026

🕑 Time: 6pm - 7pm

📍 Location: online via Zoom

They’ll also hear from other doctors and clinicians about what they need to know about these conditions to recognise them and treat them more effectively, and there will be an opportunity to ask questions!

Register here! They will need to have an NHS Scotland email address 👇

https://us02web.zoom.us/webinar/register/WN_hW1jaq61QNehcldpT4pldA #/registration

05/11/2026

📢 People with ME have waited decades for change. They cannot wait any longer.

Olympian and ME advocate Beth Dobbin appeared on Good Morning Britain to highlight the devastating impact of ME and demand urgent government action.

Her call for greater research investment and better care is now backed by 360 figures from across the sporting world.

Action for ME is adding its voice to that call. Government commitments must translate into meaningful action, investment and accountability.

Read more about Beth's campaign and our response 👇

https://www.actionforme.org.uk/beth-dobbin-and-hundreds-of-sports-figures-call-for-urgent-action-on-me/

02/11/2026

The cost of neglecting ME can no longer be ignored.

Join us for a webinar introducing our new report, The Cost of Neglect: Evidence from the 2026 Big Survey.

Nearly 5,500 children and adults shared their experiences. The findings show how people are being denied essential care, independence and dignity, with those most severely affected receiving the least support.

Hear key findings from Dr Katharine Cheston of Durham University and how our Chief Executive, Sonya Chowdhury, will use this evidence to push for change. There will also be time for your questions and views on what comes next.

📅 Thursday 26 November
🕒 3pm UK time
💻 Online via Zoom

Register: https://us02web.zoom.us/webinar/register/WN_EqV8vaCHSJeO-1gsiME8ww

A recording will be available afterwards if you can’t join live.

02/11/2026

People with ME deserve to be heard. Today, 360 sporting figures are standing alongside Beth Dobbin in calling for greater investment in ME research.

We welcome this support for Beth and everyone living with ME. For too long, people have faced a devastating illness with too little research and too few answers.

Alongside ThereForME, we’re supporting Beth’s campaign. We urge the Prime Minister to meet her and commit to the research funding people with ME urgently need.

Read the BBC coverage:

A total of 360 sportspeople sign a letter calling on the prime minister to meet Beth Dobbin and increase funding towards ME research.

30/10/2026

How can you find the right healthcare and wellbeing support for your child with ME?

Join our free family support webinar for parents and carers of children and young people with ME.
We’ll explore what specialist services might offer and how to build support around your child, including education, pacing and emotional wellbeing. There will also be time for questions.

📅 Thursday 26 November
🕓 4 – 5:30pm UK time (with a short break)
💻 Online via Zoom

Register here: https://us02web.zoom.us/webinar/register/WN_sT9-iHaNRPCrD35yzkK2oA

This webinar offers information to help you seek support for your child. It does not provide medical advice.

29/10/2026

Yesterday’s Budget brought some welcome help with energy bills, but no targeted investment in ME care or research.

1.35 million people in the UK live with ME or ME-like symptoms. They deserve proper care, research into diagnosis and treatment, and assessments that work for them.

We won’t stop pushing for it. 💙

Read our full response on our website. 👇
https://www.actionforme.org.uk/budget-2026-people-with-me-deserve-more/

28/10/2026

We know that living with ME can be hard, especially when you’re young, but our ME services for children and young people are here to help 🧡

If you are a parent or carer of a young person with ME, they can join our Young People’s Community and connect with others who truly understand what it’s like to live with ME.

It’s free to join, open to anyone with ME aged up to and including 18, and being a member means that your young person will receive:

· Access to our fun, friendly online forum, moderated by our volunteer Peer-Support Moderators

· Our monthly e-magazine, Cheers, written by and for our community

· A birthday card every year, written by one of our lovely volunteers

We will also send them information about how to use our pen pal service and our buddy writer service for those with severe ME, with no expectation that you need to reply.

Visit our website to find out more information and registration form 👇

https://www.actionforme.org.uk/18-and-under/support-for-under-18/join-our-young-peoples-community/

*For young people aged under 16, we will need the permission of a parent or guardian to join, and their details as well as yours when you complete the registration form.*

27/10/2026

People with ME deserve research that delivers better answers and effective treatments.

Former Team GB sprinter Beth Dobbin, who is mostly housebound with severe ME, is calling for greater government investment in research.

Together with ThereForMe, we’ve produced a briefing supporting her campaign and setting out three priorities for government:

✅ Close the £15 million funding gap for Sequence ME and Long Covid.
✅ Fund research addressing priorities identified by people with ME, carers and clinicians.
✅ Commit to a long-term roadmap for ME research and investment.

MPs can support Beth’s campaign by raising her call for increased research funding with the Prime Minister.
Read the briefing on our website and share it with your MP.

research

23/10/2026

😇 Our Christmas Angels project is back!

Now in its 16th year, this heartwarming project enables people with ME to send Christmas cards to each other via the Action for ME office. All it will cost you is the price of a card and a stamp.

Our Christmas Angels project is open to anyone with ME of any age living in the UK. If you’re aged 18 and under, you need to be a member of our Young People’s Community to take part, which is free and easy to join.

If you would like to send or receive a card from another person with ME this Christmas, or know someone severely affected who would appreciate a card, please complete our simple online form 👇

https://forms.gle/mTsJmwHsQUiS6PZE6

We ask that all cards arrive at our office by Monday 7th December 2026 to ensure we have time to process them and send them on.

You can also find out more about our Christmas Angels project on our website 👇

https://www.actionforme.org.uk/our-christmas-angels-project-is-back/

20/10/2026

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Thank you for your patience.