Jessie May

18/06/2026

What do you think of when you hear the words "children's palliative care"?

For many parents, it's a phrase that brings fear and uncertainty. But as Jessie May mum Kelly explains, once she understood what children's palliative care really meant, she saw it as a source of support, comfort and reassurance.

For Children’s Hospice Week, Kelly and her Jessie May nurse, Ash, sat down together to share an honest conversation about the realities of children's palliative care and the difference it makes to families every day.

Read their story here: https://jessiemay.org.uk/talking-palliative-care-with-jessie-may-nurse/

A real conversation between a parent and a Jessie May nurse about what Children's Palliative Care really means.

17/06/2026

Every childhood deserves to be rich in joy, love and shared memories.

That’s how Her Royal Highness The Princess of Wales opens her message in support of Children’s Hospice Week, and it’s something we couldn’t agree more.

Every day, at Jessie May, we support children with serious illness and their families to live as fully as possible.

17/06/2026

What does home mean to you?

When we asked some of the children we support at Jessie May to answer that question , their responses were full of the things many of us would recognise: family, comfort, favourite places, pets, laughter, and love.

Home means something to all of us.

For families caring for a child with a life-limiting condition, it means all these things, and more. That place of safety and peace in an uncertain world.

At Jessie May, that's why we provide hospice care at home.

We know how important that space is. Our nurses step into families' homes not to disrupt them, but to support them. To provide expert care where children feel safest. To give families breathing room. To help make difficult days a little easier.

This Children's Hospice Week, we're celebrating the importance of home care and the families who trust us to share that space with them.

Because as these wonderful drawings remind us, home isn't just where we live.

💜 It's where our hearts are.

16/06/2026

Do you think you know what children's hospice care is?

Many people hear the words "children's palliative care" and think it's only about end-of-life care.

The reality is so much more than that.

It's about helping families make memories. It's about laughter, friendship, respite, advocacy, expert nursing care, emotional support, and helping children live as well as possible, for as long as possible.

This Children's Hospice Week, we're asking for one simple thing:

**please share this video.**

The more people who understand what children's hospice care really is, the more awareness we can raise for the children and families who rely on it every day.

Thank you to Freya, Zeniah, Michaela and their families for helping us tell this story 💙

Want to learn more? Visit our Children's Hospice Week campaign page to read family stories, hear from the families we support, discover what hospice-at-home care means, and find out how you can get involved with Jessie May.

🔗 https://jessiemay.org.uk/childrens-hospice-week-2026/

Together, let's challenge misconceptions and show the world what children's hospice care really means.

Together for Short Lives

15/06/2026

Today we're proud to join organisations across the UK in marking the start of Children’s Hospice Week 2026.

Children’s hospices provide vital support which helps thousands of families of children with serious illnesses live as well as possible as they navigate their child’s life, death and bereavement. Yet while demand for services continues to grow, funding is not keeping pace.

At Jessie May, we know the difference specialist hospice-at-home care can make. It means expert nursing care, emotional support, advocacy, respite, and helping families make the most of every moment together.

Over the coming week, we'll be sharing family stories, nurse perspectives, and real examples of the impact children's hospice care has on families across Bristol and the surrounding areas.

We hope you'll follow along, share these stories, and help us raise awareness of why this care is so important.

Read more about Children’s Hospice Week and what we have planned this week:
https://jessiemay.org.uk/childrens-hospice-week-blog/

13/06/2026

A quick reminder that we're still recruiting for two roles at Jessie May:

• Area Fundraiser
• Care & Team Around the Family Administrator

If you've been thinking about applying, or know someone who might be interested, there's still time to find out more.

These are fantastic opportunities to join a charity that supports children with life-limiting conditions and their families across the South West, whether through building community support or helping our care teams deliver the very best service.

Read the full job descriptions and apply via our careers page:

https://jessiemay.org.uk/my-dashboard/careers/

Please share with your networks and help us find the right people to join Team Jessie May.

This is more than a job, and we're more than a hospice.

11/06/2026

💙 As part of National Carers Week, we're sharing Abir's story.

Abir is Bassel's full-time carer. Every day, she manages complex medical needs, hospital appointments, sleepless nights and the constant worry that a common cold could become something far more serious.

"You just get on with it. You don't have a choice. But it's exhausting. You have to be strong all the time."

Please follow the link to read the full story, and follow our page to learn how you can support local families like these.

Read more: https://jessiemay.org.uk/the-hidden-danger-of-everyday-viruses-for-children-like-bassel/

For most families, a winter cold means a few days at home with tissues, warm drinks, and extra cuddles. For two‑year‑old Bassel and his mum Abir, a simple

11/06/2026

This National Carers Week, we're highlighting the experiences of parent carers supporting children with complex medical needs.

For Abir, caring for her son Bassel means managing seizures, medication, feeding support, hospital admissions and the ever-present risk that an everyday virus could become life-threatening.

Like many unpaid carers, she carries immense responsibility while advocating for her child and navigating a complex healthcare system.

Her story demonstrates why practical respite, emotional support and specialist hospice-at-home care are so important for families facing these challenges every day.

Read Abir and Bassel's story: https://jessiemay.org.uk/the-hidden-danger-of-everyday-viruses-for-children-like-bassel/

09/06/2026

💙 "It’s not just a break, it’s the support, the information, the company, the understanding. They’ve been with us through everything."

As part of National Carers Week, we're sharing Sam's story.

For nearly 16 years, Helen has cared for her son Sam, who has complex medical needs. Alongside the challenges of round-the-clock care, she's faced isolation, uncertainty and some incredibly difficult moments.

In this powerful story, Helen shares how Jessie May's hospice-at-home care has supported their family through it all.

Read Sam's story: https://jessiemay.org.uk/sams-story-hospice-at-home-care/

08/06/2026

📢 We're Hiring!

Are you looking for a rewarding role where you can make a real difference to local families?

We're currently recruiting for two exciting opportunities at Jessie May:

💜 Care & Team around the Family Administrator
💜 Area Fundraiser

Join our passionate team and help us continue providing specialist nursing care, respite, and emotional support to children with life-limiting conditions and their families across the South West.

If you're organised, motivated, and want your work to have a meaningful impact, we'd love to hear from you.

Find out more and apply here: https://jessiemay.org.uk/my-dashboard/careers/

Please help us spread the word by liking, sharing, or tagging someone who might be interested.

This is more than a job, and we're more than a hospice.