Rory is a soldier, he is also a Cystic Fibrosis sufferer who was born on 1st January 2013 ( that's right, a New Years Day baby!) 6lb 10oz. Rory needed emergency bowel surgery at just 10 hours old, he was in NICU for the first 3 weeks of life and fights symptoms on daily basis with medication and Physiotherapy. He has had a few ups and downs with further bowel obstructions and infections but overa
ll has fought hard and exceeded expectations and predictions. Rory carries 2 different mutations of the CF gene. Cystic fibrosis is an inherited disease caused by a faulty gene. This gene controls the movement of salt and water in and out of your cells, so the lungs and digestive system become clogged with mucus, making it hard to breathe and digest food. It affects most critically the lungs, and also the pancreas, liver, and intestine. The name cystic fibrosis refers to the characteristic scarring (fibrosis) and cyst formation within the pancreas. Difficulty breathing is the most serious symptom and results from frequent lung infections that are treated with antibiotics and other medications. There is currently no cure for cystic fibrosis but many treatments are available to manage it, including physiotherapy, exercise, medication and nutrition. Each week five babies are born with cystic fibrosis, and two people die. We decided to build this page for Rory, to spread awareness of CF and his story. We also want to use it to keep all his friends and family up to date and to share the amazing work Rory's Army have done and plan to do in the future. Who is Rory's Army??? You are...all of you amazing people who have taken an interest in Rory's story and supported us all as a family, thank you for joining our journey.
