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The Pituitary Foundation (UK)

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The Pituitary Foundation (UK)

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www.pituitary.org.uk We’re The Pituitary Foundation. We believe that empowerment is crucial to living well with pituitary conditions.
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We’re a dedicated team offering practical, emotional and peer support to everyone living with or impacted by a pituitary condition, so they feel empowered and live with a greater sense of wellbeing. For over 25 years, we’ve been amplifying voices and striving towards positive developments for the pituitary community. We work alongside healthcare professionals, clinical research teams and specialist organisations to raise the profile of pituitary conditions, finding better solutions for everyone affected by these lifechanging illnesses now and in the future. So, we give guidance directly via our Support and Information Helpline and specialist Endocrine Nurse Helpline, as well as offering expert, up-to-date, online resources. This helps people navigate the UK healthcare system and gain the best clinical outcome possible. We won’t stop until everyone with a pituitary disorder is getting fair, timely, effective treatment and everyone in the pituitary community has their voice heard.

03/11/2026

On October 31st we brought our prolactinoma community together at Guy's Hospital, London, for our Prolactinoma Day.

During the day, we listened to informative talks by Dr Sue Jackson, an independent charted psychologist, professor John Wass, professor of endocrinology, Louise Breen, lead nurse in endocrinology at Guy’s and St Thomas’, and Jessica Buck, prolactinoma support group leader.

In particular, we would like to thank Jess and Louise for being so instrumental in organising this event. Thank you both for your incredible support. 🧡

Thank you so much to everyone that attended the Prolactinoma Day. We hope you found the day informative and supportive and we look forward to hosting similar Get-Togethers like these in the future.

02/11/2026

We think it's important that money is not a reason why people cannot attend our events.

We keep our ticket prices as low as possible, which means our in-person events are often run at a loss. This means that it's thanks to donations from our generous supporters that we're able to bring people together like this 🧡

If, like us, you think these events are worth supporting, please consider donating today. Thank you to all our amazing supporters - you keep us running!

Go to pituitary.org.uk/donate to make a donation

01/11/2026

November 1st is Acromegaly Awareness Day!

Acromegaly is a condition caused by too much growth hormone. Often this is caused by a benign (non-cancerous) tumour on the pituitary gland.

Acromegaly is a rare condition, with only around 4-6 people per million being diagnosed every year. This means about 1 in every 200,000 people will be diagnosed with acromegaly every year.

The diagnosis is often delayed as the symptoms develop gradually over time and people with the condition may not notice the changes. People may have had acromegaly for several years before the condition is recognised.

You can find out more about acromegaly on our website.

31/10/2026

As part of our Pituitary Awareness Month campaign, 'Symptoms in the Spotlight', Lily shares the story of her Cushing's diagnosis and how she manages her symptoms.⁠

"Looking back now, I can’t believe how unwell I was for so long. My baby was definitely what kept me going. As my health continued to deteriorate, I knew something wasn’t right and decided to push for a referral to see a private endocrinologist. I knew this was more than just a post-baby hormonal imbalance. Within a couple of weeks of meeting my endocrinologist, I finally had my diagnosis. It was a huge relief to know that I wasn’t going mad and that there was a reason for everything I had been experiencing, but it was also frightening to think about what the future might look like."
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Thank you so much for sharing your journey with us Lily. 🧡⁠
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To find out more about our campaign and read Lily's full story, visit our website. ➡️
https://www.pituitary.org.uk/community-stories/lilys-story-cushings-disease/
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30/10/2026

As part of our Pituitary Awareness Month campaign, 'Symptoms in the Spotlight', Cairenn shares the story of her prolactinoma diagnosis and how she manages her symptoms.⁠

"With a new job, routine and lifestyle to adjust to, the thought of my periods returning quickly fell to the bottom of my list of priorities as I settled into a new routine. During this time I remember being extremely tired and low energy, but put this down to a long commute for work.

After pushing the thought to the back of my mind for about a year, my mum who happens to be a nurse, encouraged me to contact my GP as she had concerns about the lack of menstrual cycle along with my tiredness. My GP pushed for blood tests to be completed with a focus on prolactin levels. When the results came back, a normal prolactin reading should be between 200-400, my level was over 6,000. An MRI was subsequently ordered and booked for a couple of weeks later. Then, on Christmas Eve 2024, just a week later, my GP called to explain that the MRI had shown a 9×7 mm tumour on my pituitary gland at the base of my brain."

Thank you so much for sharing your journey with us Cairenn. 🧡⁠
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To find out more about our campaign and read Cairenn's full story, visit our website. ➡️
https://www.pituitary.org.uk/community-stories/cairenns-story-prolactinoma-diagnosis/

29/10/2026

As part of our Pituitary Awareness Month campaign, 'Symptoms in the Spotlight', Renee shares the story of her Cushing's disease diagnosis and how she manages her symptoms.⁠
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"My name is Renee Brown and I was diagnosed with a pituitary tumor in 1992. Like many people with Cushing’s disease, my journey has been long, complicated, and filled with both challenges and victories.

My symptoms began with many of the classic signs of Cushing’s disease: rapid weight gain, acne, hair loss, easy bruising, and many of the other symptoms that so many of us know all too well. At the time, I didn’t understand what was happening to my body, but eventually I received my diagnosis." ⁠
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Thank you so much for sharing your journey with us Renee. 🧡⁠
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To find out more about our campaign and read Renee's full story, visit our website. ➡️
https://www.pituitary.org.uk/community-stories/what-id-say-to-others-decades-after-my-cushings-diagnosis-renees-story/

28/10/2026

Throughout this year's Pituitary Awareness Month campaign, 'Symptoms in the Spotlight', we have been shining a light on the emotional impact of pituitary conditions. ⁠
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We know that maintaining good mental wellbeing while living with a pituitary condition can be challenging. As well as supporting you with the clinical side of navigating a pituitary condition, we’re also here to support your mental and emotional wellbeing. 🧡⁠
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Our website's psychological wellbeing hub houses all our psychological support offerings. Here you’ll find publications, articles and videos designed to help you understand and support your own psychological wellbeing.⁠
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We have also partnered with Rareminds to provide individual counselling, or group therapy sessions, for anyone diagnosed with a pituitary condition. You can find more information on this on our Psychological Support hub.⁠
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You can find our Psychological Support hub on our website.➡️ https://www.pituitary.org.uk/information/psychological-support/
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27/10/2026

Throughout this October's Pituitary Awareness Month campaign, 'Symptoms in the Spotlight', we have been shining a light on some of these symptoms to raise awareness of their impact and provide information to help you manage them.

In this post our pituitary community shares why Pituitary Awareness Month is important to them. 🧡

26/10/2026

Join us to learn from consultant endocrinologist Ben Loughrey!
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Event details:⁠
📅 Thursday 5 November, 2026
🕢️ 6pm till 7pm⁠
💻️ Online, via Zoom⁠
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In this session we'll be joined by Ben Loughrey, consultant endocrinologist, honorary senior lecturer Queen Mary University of London and visiting scholar Queen’s University Belfast. In 2025 Ben was awarded a Society for Endocrinology Leadership and Development award which aims to recognise and nurture emerging talent in endocrinology to become the future leaders of the specialty.

Ben will be speaking about how to live well with acromegaly. His talk will cover a patient’s acromegaly journey from diagnosis to post operation. Ben will discuss strategies to manage acromegaly in these pre and post operation stages.
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To get your ticket now, please visit our website. ➡️⁠
https://www.pituitary.org.uk/event/living-well-with-acromegaly-ben-loughrey/
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Tickets are free of charge but we encourage donations to cover costs and ensure we can continue offering events like these. 🧡

26/10/2026

As we approach the end of October, we want to thank you for your continued support so far throughout this year's Pituitary Awareness Month campaign, 'Symptoms in the Spotlight'. 🔦

We hope you have found the information and resources shared throughout the month so far useful in helping you feel more empowered to manage the symptoms associated with your pituitary condition. 🧡

Over this last week of October, we will be sharing tips and advice our pituitary community has shared throughout the month and continuing to raise awareness of the long-term, often hidden symptoms that can be hard to manage day-to-day.

It's not too late to get involved in our campaign! We know that the people most qualified to talk about how difficult these symptoms are, are the people living with them.

For that reason, if you have any tips or advice for how you manage your symptoms, let us know in the comments of our social media platforms! You can also tag us in your own posts on social media about how you manage symptoms by using the hashtag .

For more information on our 'Symptoms in the Spotlight' campaign, visit our website. ➡️
https://www.pituitary.org.uk/campaign/symptoms-in-the-spotlight/

Address

Brunswick Court, Brunswick Square
Bristol
BS28PE

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+441173701333

Website

http://www.pituitary.org.uk/

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