Rare People - the Research Charity

03/07/2026

25th June 2026 was Rare Chromosome and gene disorder awareness day 🧬 we made this video to explain what a rare chromosome or genetic disorder is. was set up fund research to help people living with these conditions.

29/05/2026

Help Ellen Robinson raise money to support rare people - the research charity

08/05/2026

Massive congratulations to Dawn and Simon who completed their 200mile walk for Rare People raising a fantastic £2350 and counting 👏👏 Thank you 🙏

17/04/2026

Tomorrow Dawn and Simon start their 200mile walk for Rare People - the Research Charity their Grandaughter has Desanto Shinawi Syndrome and they are walking a mile for every person with the condition!
You’ve got this 💪🚶🚶‍♀️
https://www.justgiving.com/page/dawn-fearn-1

12/04/2026

Thank you to everyone fundraising for during Brighton Marathon weekend 💪🏃 a fantastic effort from our runners! And also a thank you to Portland Villas street party for supporting us 🎉

01/04/2026

Thank you ITV News Meridian for covering Frankie's story and the story of Rare People- the Research Charity. We hope that this new technology - using AI to find medicines that can be repurposed to treat rare genetic conditions- may one day change many lives. Rare shouldn't mean no hope!

Watch the latest from ITV News - Frankie Galloway was born with an extremely rare brain condition that only 200 patients in the world have. Her father has set up his own charity 'Rare People'.

27/03/2026

❤️ 130k raised so far!!! 🎉 this is enough to fund the first half of a trial for a rare condition ⭐️⭐️Thank you 🙏 for the runners, the cake sales, the Morecambe Prom walkers, the party-goers, the Christmas light shows, the raffles, auctions and all those that attended the launch night… without you all this would not be possible ❤️ we still have a long way to go- but this is the start of something big! Together we can change the lives of those living with Rare Genetic developmental conditions! official event photos