Pacc The Parent Carers' Council is a forum for parent carers of children with additional needs in Brighton

This is the page for PaCC: A group for parent carers of children with additional needs and/or disabilities aged 0-25, living in Brighton & Hove.

The Nursing and Midwifery Council (NMC), set standards of education and training for nursing and midwifery courses and t...
05/08/2026

The Nursing and Midwifery Council (NMC), set standards of education and training for nursing and midwifery courses and they need to engage service users and their families where appropriate throughout the programme.

Would you like to get paid to provide your experience, knowledge and skills of children and young people’s healthcare?

They are seeking parents or carers engaged in your services whose children are or have been in receipt of health services would like to be part of this work.

The activities are quite varied but may include:
-Curriculum development
-Involvement with teaching, learning and assessment of students
-Student induction and preparation for practice learning
-Reviewing and participating in recruitment and selection events (open days, interviews etc)
-Quality assurance activities, e.g. taking part in and reviewing course re-approval events.

The university recruits service users as casual employees on specific contracts for up to 50 hours of paid activity per year, and will provide the training and induction required.

For more information please email: [email protected]

Lots of free events coming up in Brighton & Hove:
05/08/2026

Lots of free events coming up in Brighton & Hove:

Another great opportunity to join Amaze:
04/08/2026

Another great opportunity to join Amaze:

Amaze seeks SENDIASS Adviser (East Sussex)

Are you passionate about helping families with children and young people with special educational needs and disabilities (SEND)? This is a great opportunity to join our team at Amaze where your skills and expertise can make a lasting difference by helping families to know their rights, feel less alone and get the support they need.

You will need knowledge of SEND legislation (IPSEA Legal training Level 1+) and experience gained from previous employment or because you are a parent carer.

Find full details about the role and how to apply via our website: https://amazesussex.org.uk/news/amaze-seeks-sendiass-adviser-east-sussex/

Please note the role will be based in Amaze’s Eastbourne office (BN22) with some travel to Brighton office and outreach locations in East Sussex, and the option of some home-working. Hours will be 18-28 hours/week (please state your preferred hours in your cover letter).

The closing date for applications is 11.59pm Sunday 23 August and provisional dates for interviews are 1 and 2 September.

You are warmly encouraged to contact us for an information discussion about the role – email Liam Ryan [email protected] to arrange.

An opportunity to join Amaze:
04/08/2026

An opportunity to join Amaze:

Amaze seeks Finance Manager

Do you want to bring your financial management experience and knowledge to a charity which supports children, young people and families with special educational needs and disabilities (SEND)? Join our team at Amaze where your skills and expertise can make a lasting difference.

As Finance Manager, you will oversee Amaze’s financial operations, ensuring accuracy, compliance, and strong financial management, working 16-18 hours/week. Applicants should have significant relevant experience in a financial management position, alongside a commitment to Amaze’s organisational vision, mission and values.

Read more about the role via our website: https://amazesussex.org.uk/news/amaze-seeks-finance-manager/

The closing date for applications is 11.59pm Sunday 23 August and the provisional date for interview is Thursday 3 September.

You are warmly encouraged to contact us for an information discussion about the role – email Zoe Brinkworth, Head of Resources, [email protected] to arrange.

In case you missed it, a PaCC legend retired last week!
04/08/2026

In case you missed it, a PaCC legend retired last week!

Yesterday we said goodbye to Pacc's Engagement Coordinator, Paolo, seen here with some of his gifts. Paolo is retiring after 13 years with PaCC.

His work has changed over the years, highlights include running coffee mornings supporting hundreds of families across the city and outreach to diverse groups, building partnerships with community orgs ensuring all parent carers voices are heard. Always with a smile and immense care.

We’ll miss him a lot, enjoy your retirement Paolo, the office won't be the same without you!

When your child needed support, did services understand your family’s needs?Would you like to help to make support faire...
04/08/2026

When your child needed support, did services understand your family’s needs?

Would you like to help to make support fairer and more accessible?

Are you from an ethnic minority background?

Do you have a child with learning disabilities or complex needs?

Laura is conducting doctoral research exploring the experiences of parents and caregivers of children with learning disabilities and complex needs from ethnic minority backgrounds when seeking support for their child.

You will do a short meeting and then an online interview (60 minutes) and you will get a £15 voucher for taking part.

Too often, families face barriers that services do not fully recognise. If you would like to find out more or take part, please contact Laura McAllister: [email protected]

PaCC would like to encourage parent carers to take part in this survey closes at 5pm on Friday 28 August. Your feedback ...
16/07/2026

PaCC would like to encourage parent carers to take part in this survey closes at 5pm on Friday 28 August. Your feedback and thoughts are crucial to help improve the services listed below:

Sussex Community NHS Foundation Trust (SCFT) is developing its new Trust strategy and thinking about how they can improve their care for the future. As part of this work, they want to better understand the experiences of children and young people with SEND and their families.

They would like to hear what is working well, what could be improved, and what matters most to you when accessing their services. SCFT provides a range of services for children and young people, including Speech and Language Therapy, Occupational Therapy, Physiotherapy, Child Development Services, Health Visiting and School Nursing.

Your feedback will help them identify priorities, improve services, and ensure the voices of children, young people and families are at the heart of future developments.

Complete the survey here: https://survey.alchemer.eu/s3/91120828/Sussex-Community-Foundation-Trust-Strategy-2026

Thank you for helping shape better support for SEND families across Sussex.

The Schools Mental Health Service Summer offer is detailed in these fliers. In person and online sessions running throug...
16/07/2026

The Schools Mental Health Service Summer offer is detailed in these fliers.

In person and online sessions running throughout the holidays to talk about a mental health or wellbeing concerns. All are bookable on Eventbrite: https://www.eventbrite.com/cc/smhs-summer-2026-4842716

Opportunity for parents to be involved in a research project led by Sussex Partnership Foundation Trust (SPFT) and King'...
10/07/2026

Opportunity for parents to be involved in a research project led by Sussex Partnership Foundation Trust (SPFT) and King's College London (KCL).

With funding from the National Institute of Health and Care Research (NIHR), SPFT and KCL will be developing online mental health interventions for adults with intellectual disabilities. The intervention will utilise the power storytelling to help people feel more connected and hopeful about their mental health.

They will

Create a library of mental health stories told by people with intellectual disabilities * Develop an accessible web platform

Test the web platform to see if it is useable and helpful to people.

They are currently looking for parents and carers of adults with intellectual disabilities to join their lived experience advisory group alongside adults with intellectual disabilities and professionals. The advisory group meetings will be held quarterly. Meetings will be held in Brighton and in London. An hourly rate of £27.50 will be paid, plus travel and expenses.

Anyone interested is invited to contact:

Dr Tony Levitan, Senior Psychologist, SPFT - [email protected]

Brighton & Hove City Council is currently consulting on three School Streets schemes and we want to hear your views on o...
09/07/2026

Brighton & Hove City Council is currently consulting on three School Streets schemes and we want to hear your views on our proposals at:

Balfour Primary/Varndean School/Dorothy Stringer SchoolWest Blatchington Primary/Kings School

Woodingdean Primary

The consultations are open until 20 July. School Streets are designed to address issues on the roads around schools at drop off and pick up times, including congestion, illegal or unsafe parking immediately outside of school. Previous School Streets schemes in the city relied on signage to restrict vehicle access but there has been issues with compliance, undermining the scheme’s safety benefits. Brighton & Hove City Council is therefore strengthening its School Streets programme by introducing camera enforcement to improve safety during school drop-off and pick-up times.

Camera enforcement will provide a more reliable, long-term solution. It removes reliance on volunteers, ensures consistent restrictions, and improves compliance, helping to keep roads outside schools safer. The move aligns with Department for Transport guidance published in November 2024, which recommends camera enforcement for permanent School Streets and discourages long-term use of volunteers. By adopting this approach, Brighton & Hove will deliver School Streets that are consistent, fair, and effective in protecting children and improving road safety.

The consultation for each scheme can be found on the Your Voice consultation portal by following this link: https://yourvoice.brighton-hove.gov.uk/en-GB/folders/school-streets

Address

113 Queens Road
Brighton And Hove
BN13XG

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