Bridgend PDA Support by Lucy Johnson

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Bridgend PDA Support by Lucy Johnson Hi
I'm Mrs Autson - Lucy. We hope by sharing we can support others navigate on their journey whatever stage they are at.

Local support for families and carers experiencing anxiety, school avoidance, and possible Pathological Demand Avoidance, with their young people, due to neurodivergent conditions in Bridgend, South Wales. I am sharing our journey of understanding our children's school avoidance, anxiety, diagnosis of ASD, ADHD, and what that all means for us navigating life! The PDA (Pathological Demand Avoidance/Pervasive Drive for Autonomy) is strong in our house, as our youngest has a need for autonomy over his life. We won't have all the answers, but we can listen.

I'll be at Bridgend Carers Centre tomorrow morning.
03/06/2026

I'll be at Bridgend Carers Centre tomorrow morning.

Hello 👋🏻 I feel I need to apologise for the lack of interaction from the page recently. I started a new job in December,...
06/03/2026

Hello 👋🏻

I feel I need to apologise for the lack of interaction from the page recently.

I started a new job in December, after being out of regular work for 4 years, and its taken a bit of adjusting to - along with going through a divorce last year.

So there have been lots of change behind the scenes that myself and the children have been getting to grips with.

I'm working as a Parent Carer Support Worker at Bridgend Carers Centre for a short while, and I have been running my support groups there.

I guess I just wanted to let you all know I'm still about, just a bit busier than the last few years!

Please reach out if you need to.

Silly pic of my dog putting herself back to bed in the mornings, to hopefully make you smile 😊

07/11/2025

DWP has launched an expression of interest to join the steering group of the Timms Review. The group will provide strategic direction, shared decision-making, and overall leadership for the Review. Applications close on 30 November 2025.

This is so true of our PDAer. His current timetable at school is a Monday, Wednesday and Friday, with a day off in-betwe...
04/11/2025

This is so true of our PDAer. His current timetable at school is a Monday, Wednesday and Friday, with a day off in-between to compensate for the "overstretch" on those days (I really like the overstretch theory!). Although the reality is, those three days are usually an overstretch most weeks.

This can be applied to all areas of life, family days out, special occasions, eating, drinking, washing, being spoken to. They can all cause a build up of overstretch.

What causes overstretch in your life?

23/10/2025

Emotionally based HOME avoidance (EBHA)
(A flipped perspective) ❤️

Bobby is 8. Bobby is suffering from EBHA.
He is dysregulated in school every single day - anxious, hiding, crying, pleading not to go home.

He often clutches his stomach - the pain is constant. Teachers know it’s stress-related, but they can’t do anything. Sometimes, during his meltdowns, he hurts himself. Not because he’s “naughty” or “attention-seeking,” but because nobody listens to him and he’s so frustrated. He’s even started pulling his own hair out.

School know that being at home makes Bobby physically and mentally sick, but the parents keep insisting he’s fine there. Has the parent not heard of masking?

Staff have explained to the parents that something is very wrong - that Bobby needs help desperately, as a child being chronically stressed like this isn’t normal.
The parents reply, “Look, Bob’s fine when he’s with us. The problem is with YOU. You’re doing something very wrong. You need to train your staff better - maybe go on a course on how to look after him properly.”

It breaks the staff. They start wondering if they are the problem.

Sometimes, his teacher refuses to send him home.
For a few minutes, Bobby is happy. He can breathe. He thanks the teachers who care for him.

But then the parents arrive - angry - dragging him back to the car, reminding the school they are “breaking the law” and could be prosecuted if they don’t comply. Bobby screams, reaching out for the staff, red-faced and terrified.
The parents look back at them and say, “He’s fine!”

The school is now in turmoil. Staff who want to protect him feel powerless. His only brief moments of relief are cut short. He’s trapped between the one place that feels safe and the people who are supposed to protect him.

Now, during the day, Bobby lashes out at all his trusted teachers.
He can’t verbally explain why things are so bad at home - he has suspected SEN and difficulties communicating his feelings - but his body tells the story: hyperventilating, vomiting, chronic nausea, sleep disruption, intense anxiety.

Surely his body language is enough proof?
Why won’t the parents listen? Are they blind?

Teachers are desperate to keep him safe in school, but instead, he is dragged home daily - kicking, screaming, begging for help - while his parents tell him to “just stop” and “be more resilient, like your mates.”

This continues for an entire year.
Nobody really gets to the bottom of it.
School begs for assessments to unpick the barriers, but the parents refuse - making up excuse after excuse.

Eventually, Bobby goes silent.
He’s diagnosed with depression at eight years old.
His face is gaunt. He’s lost weight due to the nausea. He has joint pain and feels numb.
He no longer kicks or cries - because it doesn’t work.
He doesn’t smile anymore.
He doesn’t play anymore.
He’s still pulling his hair out.
He has said he wants to die.

Now imagine the safeguarding and social care referrals if this were a real scenario.

If a child showed this level of distress, the response would be immediate, right?
Because the child’s safety would be the priority.

And yet - because it’s neurodivergent children struggling with EBSA - the blame falls on the parents.
Every. Single. Time.

This is Emotionally Based School Avoidance (EBSA) in its most cruel form.
It happens to thousands of families - and I wouldn’t wish it on anyone.

It makes me sick (not just because of what kids like Bobby endure) but because of the systemic failures that allow this to happen. The system literally blames parents instead of safeguarding children.

It ignores chronic stress, anxiety, and EBSA, and it punishes the very people trying to protect their child.

Recovery is possible, it can take a long time.
When my son went through this, I told his school:

“As his mother, I have a duty to safeguard his mental health. I will not physically touch his body in order to get him into school.”

That was the beginning of his glorious recovery.
We were lucky his school were good as gold. But the stories I’m hearing are heartbreaking. If you need help navigating this - then message me anytime.

Remember, Section 7 of the Education Act 1996 states “the education provided must be suitable for a child’s age, ability, aptitude, and any SEND they may have”

Love,
Leigh x

I'll be at Bridgend Carers Centre this Saturday morning if anyone would like to pop in for a chat about anxiety, their n...
07/10/2025

I'll be at Bridgend Carers Centre this Saturday morning if anyone would like to pop in for a chat about anxiety, their neurodivergent children, school avoidance or anything else that might be related!

Really pleased to see demand avoidant profiles being mentioned on BBC One this evening.
06/10/2025

Really pleased to see demand avoidant profiles being mentioned on BBC One this evening.

17/09/2025

All parent carers are welcome tomorrow for our monthly drop-in. Come along for a cuppa and chat 😊

02/09/2025

“Struggling with the return to school?”

“A neuro-affirming webinar to ease the back-to-school transition.”
Joanne Riordan has created a free webinar to support families whose children are neurodivergent with the return to school. Support for families navigating the return to school from someone who truly gets it.

You can sign up here 👉 [https://www.drjoanne.co.uk/resources?utm_campaign=c8cf7209-6f10-4b2c-a61c-ec98fbbfee96&utm_source=so&utm_medium=mail&cid=d454b45b-5a09-40f0-b7fe-7df80af43f0c ]

This is separate from the webinar on executive functioning in the upcoming PDA Space Summit, where Joanne will be sharing her insights on supporting executive functioning skills to function, in lower demand ways.

Two brilliant opportunities to learn from Joanne one you can access now, and one coming this September at the 6th PDA Space Summit.





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Bridgend
CF311HD

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