The Pseudo Obstruction Research Trust was founded in February 2006 to fund research into Chronic Intestinal Pseudo Obstruction by Sue Stewart and Sonia Frost, who met in The Royal London Hospital whilst their daughters were receiving treatment. P.O.R.T was formed in memory of Emily Jasmine Frost (21.03.03-07.05.05), Sonia's daughter, who sadly passed away from complications of CIPO aged only two.
We've since broadened our research to include Severe Dysmotility and a common complication of these conditions, Intestinal Failure. To date, P.O.R.T has funded £850,000 of research with more projects in the pipeline. We've supported hundreds of people over the years, supporting those with CIPO or Dysmotility themselves, parents of those with these conditions and other family members. Become a part of today and help us fund research to save and change lives. What are Chronic Intestinal Pseudo Obstruction (CIPO) and Severe Dysmotility? Both are conditions of the digestive system caused by problems with the nerves and/or muscles of the gut, leading to disordered or absent movement of food, fluid and air through the digestive tract. They cause symptoms including abdominal pain, abdominal distension (bloating), high-volume vomiting, nausea and constipation and/or diarrhoea. They often leave people unable to eat normally, requiring enteral feeding into the stomach or small bowel, but in severe cases can require Total Parenteral Nutrition (TPN), feeding directly into the bloodstream. Patients often undergo surgeries, such as to place feeding tubes or central lines or the formation of a stoma called an Ileostomy. The pain can be extremely debilitating and necessitate the use of strong painkillers. As a last resort, patients may be referred for a bowel or multi-organ transplant, but this is really not a cure and comes with a lot of risks and potential complications. Go to our website for more information www.port-charity.org.uk
