17/08/2026
📢 Research Study Update from the University of Cambridge - measuring hunger signals in PWS.
We're delighted to share an update from Dr Stephanie Brown and her team at the University of Cambridge.
“Thank you to everyone who has supported our study so far! Some of you may have first come across the study at the Drayton Manor or Edinburgh family events, and we're incredibly grateful for the interest and encouragement we've received from the PWS community.
Participants have been travelling to our Cambridge site to take part in the study, including both people with PWS and volunteers without PWS.
Thanks to this amazing response, we have now recruited enough volunteers without PWS. We're still looking for around 12 more people with PWS, aged between 18 and 40 years old, to reach our recruitment goal.
Every additional participant helps strengthen the study and will allow us to draw meaningful conclusions from the data, bringing us closer to improving our understanding of PWS.
The study involves two visits, about 3 hours long, each with a brain scan, a meal, some questionnaires and a blood test. All travel is covered by us, plus a participation payment of £100.
We hope this study will support the development of treatments for feelings of hunger in people with PWS.
Please get in touch with Dr. Stephanie Brown on [email protected]
Thank you for helping make this research possible.”
