FPWR UK - Foundation for Prader-Willi Research UK

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FPWR UK - Foundation for Prader-Willi Research UK

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FPWR UK was founded in 2010 by parents of children with PWS.

14/10/2026

Check out our website shop for all of our FPWR UK merchandise... From PeeWee hoodies, to magnets, from notepads to PeeWee plushies there is something for everyone, and all money raised from merch via the shop goes towards research! Its a win win all round! 🩵🦒

13/10/2026

On Sunday, the amazing Louise Shaw ran the Chester Marathon for FPWR UK to raise money for PWS research designed to help her beautiful neice: Georgia's future. So far, she has raised over £1300!! 🏃‍♀️
Please join us in congratulating her for this incredible feat and thank you for your support! 💙🦒

12/10/2026

Here we have something to make you smile for a Monday morning, in todays then and now! We have Elsie! the first photo is her at 2 months and the second is her at nearly 2 years! 😊
Her Mummy said that she wish she could have shown herself just how happy and well she is doing now back when they first got her diagnosis.

The idea of the then and now is to share positivity to those who are new in their PWS journey, when everything seems scary and bleak - we thought it would be nice to share just how amazing People with PWS are! If you would like to help us share please send us your photos. 💙🦒

11/10/2026

We still have some spaces left for our Halloween Bonus Ball!! 👻

£2 per name and be in with the chance of winning £50! And £50 heads towards FPWR UK Research!
The winner will be announced on Halloween 🎃

🎃

10/10/2026

Louise Shaw is running the Chester Marathon for FPWR UK this weekend. She is fundraising for research in the hope of the future for her beautiful smiley neice - Georgia!
Please join us in wishing her the best of luck!

You can also donate to her via her JustGiving page!

09/10/2026

This is something that could give hope to all the newer parents who are just starting to navigate their life with a PWS diagnoses. Could you send us your 'then' and 'now' pictures so we can share just how amazing people with PWS are! How they acheive, their pure strength. 💙
We all remember those first days when everything is unknown and scary, and we thought it would be nice to share some hope and love 🦒

08/10/2026

Today is World Sight Day 👀👓

We'd love to hear from our community:

Has your loved one with PWS experienced vision difficulties? Have glasses, patching or surgery helped?

Share your experiences in the comments and help support other families.

07/10/2026

Our Administrator has just under 2 weeks until she takes on the Great South Run! 10 miles along Southsea Seafront for FPWR UK and to research that hopefully will one day help her Tommy 🏃‍♀️

Do you know?! On our website we have loads of events that you can register for? Like the Great South Run? Why not take a look for new challenge next year? 🤔🤔🤔

06/10/2026

This week, our little PeeWee is in Toroto up the CN Tower! Aren't the views so impressive!
We all hope you have an amazing time in Canada!

Are you going on any trips? Could PeeWee take a little space in your suitcase? Why not take him along with you! We love seeing where he ends up!

05/10/2026

OUR CHRISTMAS CARD WINNERS!!! 🦒🥰💙

Under 12: We have Thomas, Age 6! ⛄
Over 12: We have Eleanor, Age 17! 🎄

Thank you to all our participants! We have all really loved seeing all your creativity! 🎨
And a special thank you to our independent judge! Vikki Williams! 💙

Address

Po Box 1356
Bradford
BD55DX

Telephone

+447547620949

Website

http://www.fpwr.org.uk/

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