CMTUK

25/03/2026

Fingers crossed, you can still nominate now!

25/05/2025

🌍✨ ECMTF at in Edinburgh – A Meaningful Milestone! ✨🌍

The European Charcot-Marie-Tooth Federation (ECMTF) was proud to participate in the 2025 Peripheral Nerve Society Annual Meeting, held May 17–20 at the Edinburgh International Conference Centre.

This global gathering brought together leading researchers, clinicians, pharma companies, and advocates in the field of peripheral nerve disorders. ECMTF was honored to contribute to the dialogue on Charcot-Marie-Tooth disease and inherited neuropathies, and to connect with the international community and lab partners working toward better care and cures.

🙏 A heartfelt thank you to everyone who stopped by our booth, shared insights, and supported our mission. Together, we’re making strides for the CMT community across Europe and beyond, establishing significant partnership with all the stakeholders❣️

📷 In the picture, right to left:
✔️ Simon Bull for CMTUK
✔️ Alexandre Hoyau for CMT-France
✔️ Filippo Genovese for ACMT Rete per la Charcot Marie Tooth

18/09/2024

Alan Newham is taking on an Ironman this weekend. It's an incredible challenge and we wish him all the best. You can support him here or just send him a message of support.

Iʼm raising money to Support CMTUK. Support this JustGiving Crowdfunding Page.

19/08/2024

Help us when you shop with 7,000+ brands. Join now.

06/08/2024

Not long now until our CMT Big Kids Weekend 🥳

We’re so excited and there are only a few spaces remaining - so get booked in now!

If you’re a young adult (18-30ish) with CMT, come and join us for a weekend full of climbing, canoeing, caving, archery, abseiling, laughs and chats with people who get exactly what you are going through!

20th - 23rd September, in the beautiful Lake District

The total cost to join us is a minimum £150 donation, and due to the high demand a non refundable deposit of £50 is required to reserve your spot

The deadline for getting your final payment in the 15th August, 2024 - don’t forget to include your name in the bank reference ⏰

Send us a message to book your place, or for more information! We can’t wait 🤩

18/12/2023

We are looking to see if Facebook can transfer everyone over to the new page. Once that is resolved this one will be deleted.

In the meantime we ask everyone to Like and Follow the new page and leave this one.

The link to the new page is https://www.facebook.com/CMTUK2 (it’s the one with 1K followers)

Supporting people living with Charcot-Marie-Tooth Disease (CMT)

27/11/2023

As of 31st December 2023 this page will be removed. Please like and follow our new CMTUK page CMTUK

UPDATE: We are looking to see if we can transfer everyone over to the new page. Once that is resolved this one will be deleted.

In the meantime we ask everyone to Like and Follow the new page and leave this one.
The link to the new page is https://www.facebook.com/CMTUK2
Don't miss our posts with the latest news from CMTUK the dedicated charity for people living with Charcot Marie Tooth Disease.

Supporting people living with Charcot-Marie-Tooth Disease (CMT)

09/11/2023

Everyone As of 31st December 2023 this page will be removed. Please like and follow our new CMTUK page CMTUK

Don't miss our posts with the latest news from CMTUK the dedicated charity for people living with Charcot Marie Tooth Disease.

31/10/2023

27/10/2023