CMTUK

09/10/2026

What actually is CMT?

It’s a question more people need to be able to answer!

Charcot-Marie-Tooth disease is an inherited condition affecting the peripheral nerves. It can impact muscle strength, sensation, mobility and everyday life, but it doesn’t look the same for everyone.

With more than 130 types, there’s a lot to understand

So, this CMT Awareness Month, we’re breaking down the basics and helping more people get to know CMT

Swipe through to learn more, then share this post to help spread the word

Together, we can build a world where more people understand CMT and everyone living with it knows they’re not alone

Find out more at cmt.org.uk

08/10/2026

October is a busy month for the CMTUK community!

From friendly get-togethers and online support groups to activity weekends for our younger members, there are plenty of opportunities to connect, share experiences and meet people who understand

Whether you’re living with CMT, supporting someone who is, or part of our wider community, there’s a place for you

Fancy joining us? Take a look at what’s coming up this October and find an event for you👇

🔗 https://www.cmt.org.uk/events/month/

We’d love to see you there!

06/10/2026

Get in touch with us asap, if you would like to join us at the end of the month! 👋

We have had a last-minute space become available for our CMT Kids Weekend at the end of the month!

Get in touch asap if you would like to come along, dm us or send an email to [email protected] for more info 😊

(This spot is also open to any siblings or friends of those already attending)

03/10/2026

CMT doesn’t stop at borders, and neither should awareness!

We’re proud to be partnered with the European CMT Federation (ECMTF)

ECMTF brings together CMT organisations from across Europe, creating opportunities to collaborate on awareness, research, better care and support for people living with CMT

For us, being part of that wider CMT community is a brilliant opportunity to share knowledge, raise our voices and work together towards a better future for everyone living with CMT

Find out more at ecmtf.org

01/10/2026

October is here, which means it’s time to talk about CMT!

Today marks the start of CMT Awareness Month in the UK, a month dedicated to helping more people understand Charcot-Marie-Tooth disease, the challenges it can bring, and the importance of support, community and research 💙

And this October is a little extra special for us...

CMTUK is celebrating 40 years! 🎉

From a small support group founded in 1986 to a national charity supporting more than 2,000 members, so much has changed over the past four decades - but our reason for being here hasn’t

To make sure people living with CMT know they’re not alone

To provide information, support and a community that understands

And to keep raising awareness of a condition that many people have still never heard of

We’re also launching our campaign this month, giving our amazing community and supporters a chance to help us mark 40 years in a very special way 👏

Keep an eye out for more information coming soon!

Throughout October, we’ll be sharing stories, information, ways to get involved and plenty of moments from our 40-year history

Whether you live with CMT, know someone who does, support CMTUK, or are hearing about CMT for the very first time, we’d love you to be part of Awareness Month

Let’s get people talking about CMT, let’s raise awareness, and let’s start the next 40 years together

Find out more at cmt.org.uk

23/09/2026

👉 What is CMT?

It's one of the most common inherited neurological conditions, yet so many people have never heard of it.

CMT, or Charcot-Marie-Tooth disease, affects the peripheral nerves, the ones that carry messages between the brain and the muscles. Over time this can affect how the hands and feet work, and it looks a little different for everyone.

Stay with us this October as we share more about CMT and the people living with it.

👉 Learn more: CMT.ORG.UK

22/09/2026

CMTUK cards are here, and they carry a little more than season's greetings! ✨

Every card you send helps us support people living with CMT and their families across the UK. Every card that lands on a doormat is a gentle way of sharing our story, helping more people understand a condition that so often goes unseen.

✨ £4.50 each plus postage. A small and lovely way to support our CMT community.

👉 To order yours, just give us a call on 01202 474203.

CMTUK is a donation-based charity 🩵 Every card, every donation and every kind word helps us be there for people living with CMT.

18/09/2026

This morning we heard from another wonderful supporter taking on the London Marathon for CMTUK 🏃‍♀️

Gabriella is running the 2027 London Marathon for a very special reason: her dad, who lives with CMT.

Living with CMT can mean daily challenges, from fatigue and nerve pain to loss of balance and reduced hand dexterity, and there is currently no cure. That's exactly why Gabriella is running, and why every mile matters.

We are so grateful to her for taking on 26.2 miles to raise funds and awareness for families like her own.

Thank you, Gabriella, and thank you to everyone who supports CMTUK 💙

👉 Support Gabriella: link in the comment

17/09/2026

Another wonderful fundraiser to introduce you to! 🎨

Artist Sophie Hannah Walker has launched her exhibition, SABBATICAL, a collection of colourful canvases you can explore in a lovely virtual gallery. The exhibition is now live, with every piece for sale from just £25 for a mini embroidered canvas, and 10% of any profit will go to CMTUK.

We are so grateful to Sophie for choosing to support our work through her art. Every purchase helps us support families living with CMT and raise awareness of this often misunderstood condition.

Whether you treat yourself, find a gift, or simply take a look around the gallery, you'll be supporting a wonderful cause 💚

🖼️ View the exhibition: sophiehannahwalker.com/sabbatical
(Instagram: )

Thank you, Sophie, and thank you to everyone who supports CMTUK!