CLDF Families Team

CLDF Families Team Supporting families with children who have liver disease

On , our thoughts are with all those parents who have lost a child of any age. Find out more about the services and su...
03/07/2026

On , our thoughts are with all those parents who have lost a child of any age. Find out more about the services and support available here https://ow.ly/ue4150ZjxIj

We're very pleased to hear that the MHRA have granted marketing authorisation for a drug to treat cholestatic pruritus i...
02/07/2026

We're very pleased to hear that the MHRA have granted marketing authorisation for a drug to treat cholestatic pruritus in patients with Alagille syndrome. We'll be following this process closely and will keep you updated. More here https://ow.ly/1PlN50ZjEwp

Happy Fathers' Day to all you dads - we hope you get spoiled today. And we're delighted to share the story of how Eloise...
21/06/2026

Happy Fathers' Day to all you dads - we hope you get spoiled today. And we're delighted to share the story of how Eloise's daddy really did go the extra mile! https://ow.ly/ZZeW50ZbRu5

Best of luck to Connor who will be running the Birmingham and Black Country half marathon next month in order to help ot...
19/06/2026

Best of luck to Connor who will be running the Birmingham and Black Country half marathon next month in order to help other young people with liver disease https://ow.ly/mtna50ZbPcZ

Join us in congratulating Irene Clarke who has been awarded the British Empire Medal in the King's Birthday Honours for ...
16/06/2026

Join us in congratulating Irene Clarke who has been awarded the British Empire Medal in the King's Birthday Honours for her services to fundraising and to the local community. After her grandson was diagnosed with liver disease 19 years ago, Irene, her husband Ken and her extended family have been committed to raising funds and awareness to support young people with liver disease. We're delighted to see her recognised in this way - well done Irene!👏 👏

Best of luck to Rachel who is taking on the stunning but demanding 50K North Yorks Ultra Challenge next weekend, in memo...
13/06/2026

Best of luck to Rachel who is taking on the stunning but demanding 50K North Yorks Ultra Challenge next weekend, in memory of someone very special

When Matt, who has biliary atresia, underwent Kasai surgery as a baby, his parents were warned that his chances of survi...
12/06/2026

When Matt, who has biliary atresia, underwent Kasai surgery as a baby, his parents were warned that his chances of survival were slim. That was 35 years ago! Matt now leads a busy life and has some words of advice for young people growing up with a liver condition https://ow.ly/1Usb50Z8Sra

Are you - or do you know - a young adult with liver disease, who would like to chat to others in the same situation? Our...
10/06/2026

Are you - or do you know - a young adult with liver disease, who would like to chat to others in the same situation? Our 18-24 support group meets tomorrow, June 11, at 6pm and we'd love to see you there. To find out more, or for your link to join email [email protected]

Whilst liver disease symptoms in children vary, many parents will agree it can lead to a significant lack of sleep - in ...
09/06/2026

Whilst liver disease symptoms in children vary, many parents will agree it can lead to a significant lack of sleep - in children and parents alike! We've put together some information and guidance we hope will help https://ow.ly/I8Or50Z8QPk

We're delighted to confirm that odevixibat will continue to be available as a treatment for PFIC in Scotland. Thank you ...
08/06/2026

We're delighted to confirm that odevixibat will continue to be available as a treatment for PFIC in Scotland. Thank you to everyone who played their part in securing this. More here https://ow.ly/TGQZ50Z8Icv

Address

Birmingham
B33JY

Website

Alerts

Be the first to know and let us send you an email when CLDF Families Team posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share