CLDF Families Team

CLDF Families Team Supporting families with children who have liver disease

When Matt, who has biliary atresia, underwent Kasai surgery as a baby, his parents were warned that his chances of survi...
12/06/2026

When Matt, who has biliary atresia, underwent Kasai surgery as a baby, his parents were warned that his chances of survival were slim. That was 35 years ago! Matt now leads a busy life and has some words of advice for young people growing up with a liver condition https://ow.ly/1Usb50Z8Sra

Are you - or do you know - a young adult with liver disease, who would like to chat to others in the same situation? Our...
10/06/2026

Are you - or do you know - a young adult with liver disease, who would like to chat to others in the same situation? Our 18-24 support group meets tomorrow, June 11, at 6pm and we'd love to see you there. To find out more, or for your link to join email [email protected]

Whilst liver disease symptoms in children vary, many parents will agree it can lead to a significant lack of sleep - in ...
09/06/2026

Whilst liver disease symptoms in children vary, many parents will agree it can lead to a significant lack of sleep - in children and parents alike! We've put together some information and guidance we hope will help https://ow.ly/I8Or50Z8QPk

We're delighted to confirm that odevixibat will continue to be available as a treatment for PFIC in Scotland. Thank you ...
08/06/2026

We're delighted to confirm that odevixibat will continue to be available as a treatment for PFIC in Scotland. Thank you to everyone who played their part in securing this. More here https://ow.ly/TGQZ50Z8Icv

A huge thank you to everyone who took part in Big Yellow Friday on March 13! You raised a fantastic £20K to support youn...
07/06/2026

A huge thank you to everyone who took part in Big Yellow Friday on March 13! You raised a fantastic £20K to support young people and families around the UK affected by childhood liver disease 🎉🎉https://ow.ly/Gq0050Z78hn

This , a big thank you to all of you who, like Rosie's mum Katie, have taken the time to share your experiences to hel...
04/06/2026

This , a big thank you to all of you who, like Rosie's mum Katie, have taken the time to share your experiences to help others https://ow.ly/aurA50Z77YS .You're helping us to make a real difference 🙏

Join us in congratulating Alice, who has biliary atresia and raised over £2,900 by running the London Marathon. She was ...
28/05/2026

Join us in congratulating Alice, who has biliary atresia and raised over £2,900 by running the London Marathon. She was following in the footsteps of her mum, Jess, who first ran the marathon for us 15 years ago!👏👏https://ow.ly/txEe50Z4f0v

Aaron is a resilience speaker and author from the USA who has biliary atresia. He's sharing his story here https://ow.l...
25/05/2026

Aaron is a resilience speaker and author from the USA who has biliary atresia. He's sharing his story here https://ow.ly/CLgS50Z1uSR, which he hopes will help anyone who is navigating a long term health condition. Thank you Aaron 🙏

Good luck to everyone who is running the Edinburgh Marathon tomorrow for British Liver Trust including Jack, who has set...
23/05/2026

Good luck to everyone who is running the Edinburgh Marathon tomorrow for British Liver Trust including Jack, who has set himself the challenge of it in under 2 hours 45, as a tribute to someone very special https://ow.ly/ztcl50Z1ulJ

Liam, a 21 year old music student, is loving life at Durham University and determined that his liver condition will not ...
19/05/2026

Liam, a 21 year old music student, is loving life at Durham University and determined that his liver condition will not define him. Thank you for sharing your story with us Liam https://ow.ly/cLNj50Z1uBF

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