Charlie Howson's Story

Charlie Howson's Story Charlie's rare condition, Basilar Invagination, has come with many challenges, but he NEVER GIVES UP!

After Charlie’s unexpected tracheostomy journey, we know only too well how terrifyingly daunting and scary this is for a...
14/07/2025

After Charlie’s unexpected tracheostomy journey, we know only too well how terrifyingly daunting and scary this is for any parent having to see their child go through this. For Charlie it’s been the most stressful period of his life so far. We couldn’t have got through it without Aisha and the amazing ENT department at B*H
Please take a second to read about how the wonderful staff support every child, along with their parents who are going through this journey and about Raki the Raccoon ❤️

We have donated £500 from the money raised from Charlie’s Never Give Up T-shirts to this inspiring cause hoping this will help towards supporting the care they continue to give ❤️ thank you to everyone that donated enabling us to do this. ###

‘At Birmingham Children’s Hospital Charity, we believe there’s always more we can do for our sick kids and that’s why we will always strive to do more for our patients and families. It’s our mission to raise the vital funds needed to make a real difference to all who use our hospital. Your support empowers us to take innovative approaches to treating some of the sickest children in the UK. Your fundraising enables us to make our hospital feel just like home. Your donations will help us improve our tracheostomy service focusing on the child, parents and families experience and journey. Tracheostomies are life saving artificial airways . We have created a B*H tracheostomy mascot 'Raki the raccoon'. The money raised will enable us to give each child a Raki the raccoon soft toy with it's own tracheostomy , as well as an information booklet for child , parents and families. In time we aspire to develop a supoort network for our children and families, including organising family fun days to bring our children and families together. Any money raised over our target will go towards new ideas all focused on improving the child, parent and family experience.’https://www.justgiving.com/fundraising/Raki-raccoon-tracheostomy?utm_medium=FR&utm_source=CL

❤️
13/04/2025

❤️

🥹 Well as Charlie’s certificate says, his ‘tracheostomy journey has ended’ 👏🏼 and we are now home and back to our new no...
11/04/2025

🥹 Well as Charlie’s certificate says, his ‘tracheostomy journey has ended’ 👏🏼 and we are now home and back to our new normal! I don’t think it has sunk in for any of us yet ❤️

We cannot thank you all enough for the encouraging words, loving messages and positive thoughts and prayers for Charlie over the past 18 months 🥰 we are so grateful to each and everyone who has followed our journey, I don’t think we could have done it without you all!! Huge thanks goes to Birminghams ENT department who have looked after us so well too ❤️

Now for a big bottle of this 🍾 , probably some happy tears, and a good nights sleep in our own beds 😍

Night 1 without trachy - Sleep study completed ✅👌🏼💪🏼ENT Doctors were pleased with the results and so we were allowed off...
10/04/2025

Night 1 without trachy - Sleep study completed ✅👌🏼💪🏼

ENT Doctors were pleased with the results and so we were allowed off the ward to enjoy the sunshine/fresh air and a bit of shopping ....... "without the trachy bag and suction machine !!!!"🙌🏼🙌🏼☀️😎

Back in later for the last sleep study tonight and fingers crossed home on Friday 🙏🏼

What a journey.... NGUC ❤️

After 550 days... The Trachy is OUT!!! Photo timeline below 💪🏼✨✨Struggling for words but wanted to share our amazing new...
09/04/2025

After 550 days... The Trachy is OUT!!! Photo timeline below 💪🏼✨✨

Struggling for words but wanted to share our amazing news with you all..... Lots of tears here (not Charlie he was as cool as ever) ........NGUC ❤️❤️❤️

💥 Unbelievable update 💥- ❤️NGUCTRACHY OUT DATE CONFIRMED!!!The amazing ENT team at B*H have confirmed that we can go for...
19/03/2025

💥 Unbelievable update 💥- ❤️NGUC

TRACHY OUT DATE CONFIRMED!!!

The amazing ENT team at B*H have confirmed that we can go for decannulation in April. Charlie will undergo a series of sleep studies over 3 nights to confirm a regular breathing pattern in preparation for trachy removal 🙏🏼🙏🏼

Charlie's smile was beaming and Mum and Dad are still in shock!!

Few more steps to go 💪🏼 thank you for all your support and well wishes... We feel the love and so does Charlie 🥰 never give up x

Watch this space!!!!!

Fantastic trip to Wembley with the boys ⚽ not the result we wanted but that's football.... congratulations to Newcastle ...
17/03/2025

Fantastic trip to Wembley with the boys ⚽ not the result we wanted but that's football.... congratulations to Newcastle a totally deserved win and superb support 🏆👏🏼👏🏼👏🏼 Charlie is back in Birmingham Children's Hospital tomorrow for our follow up debrief after his endoscopy last month....... Positive vibes required 🙏🏼🙏🏼🙏🏼 ❤️ NGUC YNWA

Charlie has been doing great recently and he seems more confident since the positive news following the endoscopy at B*H...
14/02/2025

Charlie has been doing great recently and he seems more confident since the positive news following the endoscopy at B*H. Small steps but gives us all hope 💪🏼❤️ Football and top bins with my lad ... Great times and precious memories ⚽ NGUC YNWA

❤️ Charlie meets the Liverpool legend David Fairclough 👌🏼
14/01/2025

❤️ Charlie meets the Liverpool legend David Fairclough 👌🏼

❤️ Charlie had the absolute pleasure of meeting Isaac at Anfield on Sunday! Two of the bravest boys in one photo, one th...
07/01/2025

❤️ Charlie had the absolute pleasure of meeting Isaac at Anfield on Sunday! Two of the bravest boys in one photo, one thing is for sure these boys will never walk alone with all the love and support they so deserve.
The Liverpool family is the best ❤️

What can we say… it’s been a pretty big day today 🥹❤️🙏🏼 the bravery this boy shows astounds us everyday, taking it all i...
04/09/2024

What can we say… it’s been a pretty big day today 🥹❤️🙏🏼 the bravery this boy shows astounds us everyday, taking it all in his stride as ever. Anyone that knows us will know what a struggle and fight we have had to get Charlie back to school with a tracheostomy, but today he did it 💪🏼 it’s nearly been a whole year since he was last at school…. taking it very much day to day but such a massive step forward for him and us x ❤️

💜🧡🩷 Charlie’s Never Give Up T-shirts still going strong!! 💪🏼 Thank you Claire Wragg and co for supporting and thinking o...
25/08/2024

💜🧡🩷 Charlie’s Never Give Up T-shirts still going strong!! 💪🏼 Thank you Claire Wragg and co for supporting and thinking of Charlie 🙏🏼❤️🙏🏼 ###x

Address

5 Rowchester Court Whittall Street
Birmingham
B46

Alerts

Be the first to know and let us send you an email when Charlie Howson's Story posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organisation

Send a message to Charlie Howson's Story:

Share