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Liver Transplant - 26/6/18 and survivor of multiple bouts of sepsis, neutropenia and other assorted issues documenting life as being a chronic illness haver since the age of 16

In this latest episode of the never ending f'around, the doctor from 2 weeks ago rang me. Now whether it's because of pe...
11/06/2026

In this latest episode of the never ending f'around, the doctor from 2 weeks ago rang me. Now whether it's because of perseverance from peers on my behalf or the fact they seen a man at rock bottom who couldn't have more fight left, I don't know but my case is infront of the MDT tomorrow. It's most likely a no, again, but it seems something has changed. No circumstances have, I've met no one from the hospital or directly spoke to anyone so what's happened is beyond me. Interesting times ahead. Pic of Penny and Me the past weekend attached

A nice little letter of lies to wake up to this morning. Let's disect shall we?1 - Third graft? I am on the road to a se...
10/06/2026

A nice little letter of lies to wake up to this morning. Let's disect shall we?

1 - Third graft? I am on the road to a second transplant, not a third. To have such a basic fact completely wrong show the incompitance of a system we are supposed to believe we should trust

2 - My issue with being an inpatient stems from two things; The food and the fact I've had multiple lies given to me through the years whilst I've been in. I do not do well in an hospital environment at all. My last proper intreatment lead to a sucide idiation and serious thoughts on an o*erdose. I do not want to get to that, again.

3 - "we therefore arranged for an urgent MR1 and he declined" - I declined because I had less than 24 hours of notice of this appointment. I get that I'm unemployed but I have to travel 60+ to any sort of appointment and had no way of getting there due to such notice. No doubt "my fault" but this was stated to them and has been stated numerous times I need at least 48/72 hours on appointments.

4 - "8kg weight loss in 8 months" yet it was only to the part when you go to talk about my case this is all of a sudden an issue?

In all, (and i've not edited names out because they clearly don't respect me, the truth or my case), I'm being lied to and the writing which are "official" are being made out so the NHS has zero blame. I'm now at the point of complete paranoia of the whole saga that I'm going to record and upload all meetings and conversations to cloud and USB so that, if things get any more south, my loved ones can be the voice that tells of the corruption and poor practice I have bare witness to.

08/06/2026

One more follow to 300! What a journey

I didn't think that I'd need to make this post as I assumed most people humour grew with age but if you think that jokin...
08/06/2026

I didn't think that I'd need to make this post as I assumed most people humour grew with age but if you think that joking about a liver transplant (original post was taking the p**s out of a drug user who was stood Infront of a charity campaigning against illegal organ harvesting in china) is somehow "peak comedy", live a day when everything is to sh*te in my mind and then see if you want to make a mockery of it all. Absolute wetwipe.

05/06/2026

Despite my attempts to actually force myself to eat, I've somehow lost about 1.6 kilo in a week. I honestly can't understand how as I have been eating heavy meals, either in protein or carbs, to try to gain weight. The fact is, no traditional way to make me gain weight is going to work. I have both my bowel disease and liver to ensure that doesn't happen. I can only foresee or guess that I either take more steroids capsules or take some of that green Mary in order to eat more. Either way, I need to gain this weight somehow. I've eaten an entire foot long so far and I know I'll be eating more soon (usually a foot long is all I'd eat in a day if I had it,) but any attempts seem to do the opposite. I'm thankful the weather here has gone back to its usual miserable self, which I love, so I can get back in the mood to eat more but it just seems nothing is working

With Ben Askren – I just got recognised as one of their top fans! 🎉
04/06/2026

With Ben Askren – I just got recognised as one of their top fans! 🎉

Id like to publicly back and support Kelly Bossons call to use the world cup as a platform to advertise and create more ...
04/06/2026

Id like to publicly back and support Kelly Bossons call to use the world cup as a platform to advertise and create more awareness regarding the NHS Organ Donation NHS Blood and Transplant. I will even pledge that if this goes through, I will buy a kit and watch EVERY SINGLE ENGLAND MATCH this summer (I can't stand watching football). Let's make it happen!

Kelly Bossons wants fans to spend the break between matches registering their own decision.

Interesting find in the supermarketI found these down the bread part with the statement of 10g protein per wrap. Now, us...
03/06/2026

Interesting find in the supermarket

I found these down the bread part with the statement of 10g protein per wrap. Now, usually, a lot of these added protein things taste poorly but these taste like the exact normal ones. How they've done it? I do not know but I thought I'd share for all wanting to gain weight healthily and or those needing to add protein to their diet.

10/10 mucho Bueno oui oui

Just wow. For many in the MMA, he's mainly known for being on the receiving end of massive highlight reel knee knockout ...
02/06/2026

Just wow.

For many in the MMA, he's mainly known for being on the receiving end of massive highlight reel knee knockout by Masvidal but massive respect and admiration of the guts he has to come back to combat sports just over a year after a double lung transplant. I've seen less put someone on the shelf permanently and this guy is out here going back into combat sports, something he's dedicated the majority of his life to. Top props Ben Askren!

Ben Askren faces former UFC welterweight champion at RAF 11 in Milwaukee.

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