Action Cerebral Palsy

20/05/2026

Action Cerebral Palsy has responded to the Department for Education SEND Consultation. We are deeply grateful to the parents in our community who shared their time, personal stories, and lived experiences of the current SEND system. Their insights are vital in helping us understand how the proposed reforms might impact their children’s access to education.

Action Cerebral Palsy has submitted a response to the Government Consultation on the proposed SEND Reform: Putting Children and Young People First.

18/05/2026

Newcastle University is running a survey of parents/carers of children with additional needs, including children with cerebral palsy, and should take 10-15 minutes to complete.

The aim of the study is to explore the views of parents and carers of children with additional needs regarding the wording of a questionnaire to understand the best way to phrase the questionnaire.

Participation is voluntary and participants are not being asked to answer the questions. They will not need to provide any identifying or personal information. They will only be asked about their level of comfort with the questions being asked.

For more information, please scan the QR code or follow this link: https://nclpsych.eu.qualtrics.com/jfe/form/SV_42bXE7taoNXbKnk

07/05/2026

A new study into the lived experience of parents of children with cerebral palsy by a Leeds Beckett University postgraduate researcher to understand about how caregiving influences parent roles, routines and sense of identity. All information gathered will be anonymized, held in confidence, and for research purposes only.

06/05/2026

Tottenham Hotspur Foundation are delivering a new bespoke program for U16 young people who are diagnosed Deaf, Hearing Impaired or Cerebral Palsy.

This will run one Sunday once a month all welcome.

Tottenham Hotspur already have a Successful adult CP Team who take part in the National League.

10/04/2026

Join us for this exciting free webinar taking place 22 April, My Voice, My Story: Real-Life AAC Experiences. AAC users will share their lived experiences of discovering, developing, and expressing their voices through assistive technology during this 90-minute session, including time for Q&A.

Panellists Brooke Brown, Martín Bedouret, and Beth Moulam reflect on the role AAC plays in identity, autonomy, and connection. Moderated by 2026 Prentke Lecturer Mateo Moreno with Angela Standridge, this session is centred on lived experience and inclusive practice.

Date & Time: 22 April, 3pm ET/7pm GMT
CEUs: ASHA and IACET CEUs available
Registration: This webinar is free for all at www.atia.org/webinar

ASL interpreters and captioning will be provided. A recording of the webinar will be posted in the ATiA Learning Center within 24 hours of the event taking place.

https://www.atia.org/path-lms/?pathPage=%2Fatia%2Fcourses%2F132467&utm_source=Email&utm_medium=Email&utm_campaign=Prentke_AAC_Webinar

07/04/2026

We wanted to celebrate our newest fundraiser, Ste, and his incredible family, including his son Theo, who has recently been diagnosed with hemiplegia. Ste is going to be doing a charity skydive to raise funds for Action Cerebral Palsy this summer. Thank you, Ste, for choosing to support our charity.

Iʼm raising money to Action Cerebral Palsy. Support this JustGiving Crowdfunding Page.

07/04/2026

There is a new study just launched about Speech and Language Therapists' experiences and current practice in providing assessment and intervention to children with eating, drinkng and swallowing difficulties. If you are an SLT working in the practice area of Paediatric dysphagia/EDS /PFD, please find more about an anonymous online survey.

11/03/2026

Turning 18 shouldn’t mean losing support.
Too many young people with cerebral palsy fall off a healthcare “cliff edge” when paediatric services end — with no clear transition or adult specialist care.
GPs for CP is about building that bridge.


Image description:
Graphic titled “The ‘Cliff Edge’ at 18.” Text explains that many young people with cerebral palsy lose access to paediatric services at age 18 and often have no transition plan, adult specialist, or continued support. It states this gap leaves many adults with CP feeling abandoned by the healthcare system. The graphic says “GPs for CP is about building a bridge,” with a bridge illustration at the bottom and hashtags for the campaign.

09/03/2026

Tell us about the barriers you face in your everyday life 🚫

The Unfair Index: Designing a fairer future, launches today.

We need disabled people and unpaid carers of disabled children, young people and adults in the UK to share their real experiences with us, so we can understand where better design is most needed: https://bit.ly/TheUnfairIndex

When we say ‘disabled people’, we include neurodivergent people (for example, autistic, ADHD, dyslexic), people with mental health conditions, chronic illness, learning disabilities, sensory and physical impairments.

We want to hear from all of you.

The world is full of barriers for disabled people, because society isn't designed with everyone in mind. Those barriers can take away things that everyone deserves - freedom, confidence, opportunity.

But it doesn't have to be that way. Not if we design and build differently.

Together with our Lived Experience Advisors, we have designed our largest piece of research ever. Now we need you.

Image descriptions: A powered wheelchair user moving along on the paving outside with text: Share your everyday barriers, help design a fairer future.

22/01/2026

Please share!