Lovely Little Lowie

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๐ŸŽ‰ A historic milestone for the CTNNB1 community ๐ŸŽ‰As this year draws to a close and Christmas lights begin to shine, we w...
23/12/2025

๐ŸŽ‰ A historic milestone for the CTNNB1 community ๐ŸŽ‰

As this year draws to a close and Christmas lights begin to shine, we want to pause and say the biggest thank you to the CTNNB1 Foundation.

The first CTNNB1 gene replacement therapy trial has officially begun. This represents years of research, collaboration, and unwavering advocacy, opening a new chapter of possibility for individuals and families affected by CTNNB1-related conditions. For so many families, this milestone represents more than science or research - it represents hope, belief, and the possibility of a brighter future for our children.

While this is just the beginning of the journey, itโ€™s a powerful step forward and a reminder of whatโ€™s possible when science, dedication, love and community come together. Hereโ€™s to progress, hope, and the future ahead.

A wonderfully festive wreath making workshop hosted by the wonderful Violet and Coral for Lovely_Little_Lowie ๐Ÿ’•So much c...
22/12/2025

A wonderfully festive wreath making workshop hosted by the wonderful Violet and Coral for Lovely_Little_Lowie ๐Ÿ’•
So much creativity, laughter, and beautifully handmade wreaths filled the space. Each one was unique and made with so much care. A huge thank you to everyone who joined and made the evening so special, and a huge thank you to Violet for her floristry flair!

A lovely coffee morning arranged and hosted by Lowie's wonderful grandparents has made a brilliant contribution to our f...
23/10/2025

A lovely coffee morning arranged and hosted by Lowie's wonderful grandparents has made a brilliant contribution to our fundraising. Thank you so much all who helped and joined! https://www.gofundme.com/f/only-a-gene-away

Autumn term is coming to a close and we have definitely been busy since September. Two consultant appointments at Great ...
23/10/2025

Autumn term is coming to a close and we have definitely been busy since September. Two consultant appointments at Great Ormond Street Hospital, one surgery under general anaesthetic, speech and language appointments, other health appointments, a birthday, and lots of fun in between. We have also managed to raise more funds for CTNNB1 Foundation through overwhelming generosity and support from individual donations from our family and friends, two non-uniform days held by our lovely local schools, and a wonderful coffee morning.

Here we go! A delicious brunch at the Kings Arms Berkhamsted with my brilliant friend Lauren for a catch up and a social...
07/09/2025

Here we go! A delicious brunch at the Kings Arms Berkhamsted with my brilliant friend Lauren for a catch up and a social media masterclass to get set up with our fundraising campaign for Lovely Little Lowie.

https://www.gofundme.com/f/only-a-gene-away

Address

147 High Street
Berkhamsted
HP4 3HL

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