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PRESS RELEASEBEATS FOR BREATH โ€“ 24-Hour Drumming Challenge Set to Make Noise for Pulmonary Fibrosis Across Northern Irel...
13/01/2026

PRESS RELEASE
BEATS FOR BREATH โ€“ 24-Hour Drumming Challenge Set to Make Noise for Pulmonary Fibrosis Across Northern Ireland
7 March 2026 | From 10am | Across Northern Ireland

Northern Ireland is being called to come together in rhythm, remembrance and hope as โ€œBeats for Breathโ€, a powerful innovative 24-hour drumming challenge, launches on 7 March 2026 from 10am, raising vital funds and awareness for families affected by pulmonary fibrosis.

Open to drummers of all ages, abilities and styles, โ€œBeats for Breathโ€ invites participants to drum solo, as a team, or as a relay, at home, in schools, clubs, community halls or venues of their choice. Schools and youth groups are especially encouraged to take part, with the flexibility to spread their 24 hours across several days. Please note registration for this event closes on Saturday 17th January 2026. Please register through the QR Code below:



The event is being spearheaded by Ali Brown, world-renowned endurance drummer and multiple Guinness World Records title-holder, who most recently achieved an astonishing 150 hours and 1 minute of continuous drumming, his third world record in endurance drumming, officially recognised by Guinness World Records and achieved in Lisburn.
But behind this incredible achievement lies a deeply personal mission. Ali lost his mother to pulmonary fibrosis in 2016, a devastating, incurable lung disease. Since then, he has dedicated his extraordinary talent to advocacy, awareness and fundraising using drumming not only as performance, but as a platform for change.

โ€œThis challenge is about far more than endurance,โ€ Ali said. โ€œItโ€™s about giving a voice to families living with pulmonary fibrosis, honouring those weโ€™ve lost, and bringing hope to those still fighting.โ€

Pulmonary fibrosis has a worse prognosis than many cancers, and Northern Ireland has the highest prevalence in the UK, yet the disease remains widely under-recognised and under-funded.

Every pound raised through โ€œBeats for Breathโ€ will support Pulmonary Fibrosis Northern Ireland (PFNI), the only charity dedicated solely to supporting people affected by the disease across Northern Ireland. PFNI provides support groups, respite facilities, education, advocacy and contributes to research, while standing alongside patients, carers and bereaved families across Northern Ireland.

The inspiration for โ€˜Beats for Breathโ€™ a 24 hour drumming challenge, comes from a family whose lives were shaped by music, and devastated by pulmonary fibrosis. George Cooney, a drummer from a musical family, who played in bands throughout the 70s, 80s and 90s. Along with his brothers, he dreamed of forming their own group, โ€œBand of Brothersโ€ to play free gigs for local charities, including hospices, cancer charities, and Chest Heart & Stroke.

In August 2019, George and two of his brothers played their final gig together. George performed for three hours while on oxygen. One month later, he was diagnosed with Idiopathic Pulmonary Fibrosis (IPF). He passed away on 3 November 2019.

At the time, just like most families who receive this devastating diagnosis, his family had never heard of pulmonary fibrosis and found little support. During lockdown, another brother, Johnny, was diagnosed with Idiopathic Pulmonary Fibrosis and later passed away. A third brother, Charles, was also diagnosed and sadly also died from the disease.

Through searching for help, the family connected with the pulmonary fibrosis community in Northern Ireland and were welcomed into Pulmonary Fibrosis NI [NIC 109094], where support, understanding and compassion were found during the darkest of times, and still continues to support the family.

It is from this journey of loss, and the healing power of music, that โ€œBeats for Breathโ€ was born.

โ€œPFNI supported me throughout my grief journey,โ€ Georgeโ€™s wife Donna said. โ€œThat is why I want this challenge to succeed, to raise awareness of this cruel, life-limiting disease and to make sure other families do not feel alone.โ€

โ€œBeats for Breathโ€ is designed as a cross-community, inclusive event, welcoming everyone, from seasoned drummers to complete beginners, united by one simple idea: make noise for hope.

So whether you are a member of a rock band, Irish Trad band, school percussion team, marching band, community musician or a solo drummer, this challenge is open to everyone โ€“ all ages, styles and abilities are welcome.

โœจ How to get involved:
โ€ข Drum for 24 hours (this can be over a period of a week - solo, team or relay) Prerecorded drumming sessions can also be used if not available on the date.
โ€ข Choose your own venue or
o In Fermanagh, participants can locate at South West College, Erne Campus Central Hall, 1 Cornagrade Road, Cornagrade, Enniskillen Co Fermanagh BT74 6DU for the event. Ali Brown will be drumming throughout the night session from 11 pm, and a drum kit will be set up alongside Ali, for drumming enthusiasts to accompany Ali for part of the session.
o In Co Down, participants can locate at The Menโ€™s Shed, Dromore Road, Banbridge, BT32 4DU, where Stephen Mac host of โ€˜The Late Show with Stephen Macโ€™ on Bounce Digital Radio will be participating in the event.
โ€ข Get sponsored โ€“ Sponsor Forms or through the following link -
โ€ข Video or live-stream your performance
โ€ข Help make a real difference
๐Ÿ“… Event date: 7 March 2026 from 10am
๐ŸŒ Website: www.pulmonaryfibrosisni.co.uk
๐Ÿ“ฉ Enquiries: [email protected] | [email protected]
๐Ÿ‘‰ Registration available via QR code
๐Ÿ“… Deadline for Registration โ€“ 17th January 2026



As drumbeats echo across Northern Ireland, Beats for Breath aims to spark conversation, compassion and action, turning rhythm into recognition, and noise into much-needed support.
Letโ€™s make some noise for hope, awareness and compassion for the pulmonary fibrosis community.

To donate, please use the following link, and alternatively sponsor forms are available on registration.
https://pulmonaryfibrosisni.enthuse.com/pf/beats-for-breath-24hr-drumming

From everyone at Pulmonary Fibrosis NI thank you for your support throughout 2025. With your help we have been able to e...
29/12/2025

From everyone at Pulmonary Fibrosis NI thank you for your support throughout 2025. With your help we have been able to extend our respite facilities and help patients with this life limiting disease. Please consider continuing to support us through 2026 and together we can make a real difference in peoples lives

23/12/2024

Taken from PFNI, by Tom McMillan.

Merry Christmas and a very happy New Year to all our Facebook family.

Christmas is almost on us and another year comes to an end, it is important to remember all the wonderful and incredibly brave people who are not with us anymore.

Knowing them and being a part of their lives has been an absolute privilege for me.

Pulmonary Fibrosis NI has progressed so much during 2024 and it is thanks to our members, past and present for their support.

The dedication and hard work of our trustees and ambassadors should also be recognised. They are people who really care and give up so much of their time to help improve the lives of our pulmonary fibrosis community.

The support group and WhatsApp groups and social media presence continue to thrive and Iโ€™m delighted that we now have a group dedicated to helping family member who have lost a loved one to pulmonary fibrosis.

Our trustees, ambassadors and members have been seen in every corner of Northern Ireland during 2024, increasing awareness.

Our charity works with all the Health and Social Care Trusts, providing useful information packs, fans, etc. for all newly diagnosed patients and their carers.

We work with institutions, such as Queens and Ulster Universities. We are involved in research projects and also sponsor research projects.

We continue to strive to help as many sufferers of pulmonary fibrosis as possible and to make our presence felt not only in Northern Ireland but all around the globe.

We have a presence on the All Party Working Group for Lung Health in Northern Ireland and work with our MLAโ€™s on that group.

Our charity was invited to speak at an international ILD conference in 2024.

Pete the Pufflingโ€™s Brave Adventure, (Our Childrenโ€™s Book), is receiving international recognition.

Pulmonary Fibrosis NI is the only pulmonary fibrosis charity in the devolved nations and the only charity to offer respite at two separate centres.

We will continue to work hard, for and with you and my promise to you is that we will always be there for each and everyone of you.

At Pulmonary Fibrosis NI we cannot promise you sunshine but we can promise to stand beside you no matter how hard it rains.

27/09/2024

๐—ฃ๐—ฎ๐—ถ๐—ป๐˜ ๐—ฏ๐˜† ๐˜๐—ต๐—ฒ ๐—ฃ๐—ถ๐—ป๐˜๐˜€ โ€“ ๐—ถ๐—ป ๐—ฎ๐—ถ๐—ฑ ๐—ผ๐—ณ ๐—ฃ๐˜‚๐—น๐—บ๐—ผ๐—ป๐—ฎ๐—ฟ๐˜† ๐—™๐—ถ๐—ฏ๐—ฟ๐—ผ๐˜€๐—ถ๐˜€ ๐Ÿ’•

We have teamed up with Paint by the Pints & Jawbox Gin, in aid of a very special cause. We were approached by Aisling McDermott, whose dad was diagnosed with Pulmonary Fibrosis a number of years back- a disease where there is scarring of the lungs, which makes it difficult to breathe.

Proceeds will be donated to Pulmonary Fibrosis NI ๐ŸŽจ

Each ticket includes:

- All art supplies
- Your first drink

The event runs from 8 - 10pm in our Upstairs Lounge on Friday 25th October, followed by Live Music in the Main Bar ๐ŸŽถ

Tickets are available here- https://tinyurl.com/5xs3aayd

September is Worldwide pulmonary Fibrosis awareness month and I will be taking part in the biggest Half marathon in the ...
05/09/2024

September is Worldwide pulmonary Fibrosis awareness month and I will be taking part in the biggest Half marathon in the world thsi coming Sunday. I will be travelling over to Newcastle Upon Tyne to take part in the Great North Run. Not only will I be raising awareness of Pulmonary Fibrosis but will be raising funds to help Pulmonary Fibrosis NI continue the hard work it carries out throughout Northern Ireland where it supports patients and carers that have been diagnosed with this terrible disease. You can help me with this by giving me a wee donation to help me on my way, and trust me i need all the help I can get lol. This is the link where you can donate direct to this amazing charity.

I hope it's not as wet this year as it was last year!! (it's not me in the picture)

https://ajbellgreatnorthrun2024.enthuse.com/pf/ian-simpson-jimmyb

Tomorrow is the Day to be in Moneymore. The open Garden event is taking part between 11am and 4pm. The weather has been ...
02/08/2024

Tomorrow is the Day to be in Moneymore. The open Garden event is taking part between 11am and 4pm. The weather has been kind this week for gardeners so hopefully the grounds will be in fantastic form. Please show your support. All proceeds going to Pulmonary Fibrosis NI

Here is the link to what is the world's first book that explains Pulmonary Fibrosis in a way that children can understan...
15/06/2024

Here is the link to what is the world's first book that explains Pulmonary Fibrosis in a way that children can understand.

Pulmonary Fibrosis is a chronic, life limiting, progressive lung disease that affects over 2000 people in Northern Ireland. There is no cure for Pulmonary Fibrosis, and very limited treatments. The typical life expectancy from diagnosis is 3-5 years which is worse than many cancers. Originally set u...

๐ŸŠโ€โ™‚๏ธ The amazing Daniel is taking on the incredible feat of swimming the North Channel from Donaghadee to Portpatrick in...
11/06/2024

๐ŸŠโ€โ™‚๏ธ The amazing Daniel is taking on the incredible feat of swimming the North Channel from Donaghadee to Portpatrick in aid of Pulmonary Fibrosis NI.

If you would like to donate to Daniel and read a little bit more about his story, follow the link below!๐Ÿ’œ

Help Daniel Smyth Swimming raise money to support Pulmonary Fibrosis NI

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