11/10/2026
Family 543
Tomorrow we welcome Anna, Dom and beautiful Florence from Stourbridge in the West Midlands. Please join me in wishing them a lovely time away together in the cotswolds.
In September 2024, our little girl Florence began becoming poorly. For six weeks, her symptoms were suspected to be constipation. Then, on 18th November 2024, just after her first birthday, our world was turned upside down when we discovered that what we had been reassured was constipation was actually a 30cm tumour in her tummy, with disease affecting her spine.
Flo was diagnosed with high-risk, MYCN-amplified neuroblastoma.
Over the next 18 months, she endured eight cycles of chemotherapy, a 12-hour operation to remove her tumour, two rounds of high-dose chemotherapy, two stem cell transplants, 12 days of radiotherapy and six months of immunotherapy. She spent 297 days in hospital, including time in intensive care, where she needed ventilation. We watched our tiny girl endure more than any child ever should.
In April 2026, Flo completed her frontline treatment, and we are so, so grateful. Sadly, treatment left her with long-term complications, including heart disease (pulmonary hypertension) and lung disease. She came home on oxygen in December 2025 to complete her treatment, but a few weeks ago, she was finally able to come off it. A milestone we will never take for granted 🫶🏻
Flo continues to have scans every three months. She still has some residual disease, although she is stable, and we remain forever grateful for this, experiencing every day with her as a gift.
As she approaches her third birthday, Flo is home, enjoying being a little girl. She loves Peppa Pig, playing cafés and shops, seeing her friends and getting lost in imaginative role play. Watching her play, laugh and discover the world is everything. She is enjoying the life her little body has fought so hard for.
But finishing treatment doesn’t mean the fear is over. We are fighting to secure DFMO, a relapse-prevention treatment that could help reduce the risk of her cancer returning. The UK Expanded Access Programme closed just one week before Flo was due to become eligible, leaving us to fundraise to access it privately.
Our target is £100,000, and we have nearly £85,000 so far. We are so amazed by the support we have received along the way. 🤍
A huge thank you to the Ben Saunders Foundation for having us stay with you and giving us the opportunity to make special memories together as a family. These moments mean more to us than words can explain. ❤️