Cardiomyopathy UK

Cardiomyopathy UK Cardiomyopathy UK is the specialist national charity for people affected by cardiomyopathy.

We provide support and information services, work to raise awareness of the condition, campaign for better access to quality treatment and promote research.

We were so proud of our London Landmarks team for their epic achievements this year – and we're delighted to say that ap...
10/06/2026

We were so proud of our London Landmarks team for their epic achievements this year – and we're delighted to say that applications to run the event for next year are now open! 🌟

As Naomi said: "One of the best days of my life, running surrounded by beautiful sights and uplifting crowds - all for Cardiomyopathy UK."

Feeling inspired? Visit our website to find out more 👉️ https://bit.ly/4alVZQo

It’s ! 🧡 This year’s theme is ‘Building Carer Friendly Communities’ – communities where people feel welcomed, included,...
09/06/2026

It’s ! 🧡

This year’s theme is ‘Building Carer Friendly Communities’ – communities where people feel welcomed, included, supported and understood.

Here at Cardiomyopathy UK, we know that cardiomyopathy affects more than just the people living with the condition – it affects family members, friends and partners too. That’s why all of our services are designed for the whole cardiomyopathy community – including carers.

If you’re supporting someone with cardiomyopathy, we want you to know that you’re part of our community too – and we’re here for you if you need us.

🤝 Our support groups welcome loved ones as well as people living with cardiomyopathy https://bit.ly/4uYOdUO

☎️ Our Heart to Heart peer support service can connect you with someone who understands what it’s like to care for someone living with cardiomyopathy https://bit.ly/3Q4Jtht

📚️ We have information and advice tailed especially for those in a caring role https://bit.ly/43kLeKt

This week, we want to say thank you to the carers in our community, and to acknowledge the hugely important role they play in helping people live well with cardiomyopathy every day. The support, encouragement and practical help you provide makes such a difference.

Find out more about events and activities Week

If you've been inspired this , why not take a look at the roles we have on offer here at Cardiomyopathy UK? Volunteers ...
05/06/2026

If you've been inspired this , why not take a look at the roles we have on offer here at Cardiomyopathy UK? Volunteers are a special part of our community, and we'd love to hear from you if you'd like to find out more!

Here's what some of our lovely volunteers say about their experience:

💬 "I am so enthused whenever I host a support group. The meetings are very rewarding and I truly feel that I'm making a difference to our people."

💬 "With the training and the support you get from the charity, it is not as daunting as you may think. Plus you get to meet all the other fabulous volunteers."

💬 "I almost cried during the training day... the charity has supported me immensely and immeasurably over the years."

The feeling's mutual – our wonderful volunteers make so much of our work possible, and we're so grateful for each and every one of them!

Find out more about our volunteering opportunities 👇️
www.cardiomyopathy.org/volunteer-roles

It's – a week for us to celebrate the kindness, generosity and community spirit of the volunteers who make so much of ...
02/06/2026

It's – a week for us to celebrate the kindness, generosity and community spirit of the volunteers who make so much of our work possible 🌟

Leading support groups, offering peer support through our Heart to Heart service, helping us campaign for better care and treatment, cheering our fundraisers on at challenge events, helping us post out information resources, and more – our volunteers are truly at the heart of Cardiomyopathy UK.

To each and every one of our volunteers: thank you for sharing your time and your talent to support the cardiomyopathy community. It means the world ❤️

Want to meet others affected by cardiomyopathy, or know someone who might? Our support groups are a great opportunity to...
01/06/2026

Want to meet others affected by cardiomyopathy, or know someone who might? Our support groups are a great opportunity to connect in a relaxed environment, whether in person or online.

See more information and joining instructions:

🌐 www.cardiomyopathy.org/supportgroups
📧 [email protected]

We're excited to announce that, in addition to our existing Catalyst Grant funding, we've partnered with the Arrhythmoge...
28/05/2026

We're excited to announce that, in addition to our existing Catalyst Grant funding, we've partnered with the Arrhythmogenic Cardiomyopathy Trust (ACT) to offer funding for research specifically into arrhythmogenic cardiomyopathy (ACM)! ❤️

ACT was set up to support research projects into the diagnosis and treatment of this condition, and we're delighted to have them on board.

Our Catalyst Grants are intended for researchers to test new ideas, develop proof-of-concept studies or gather data that could help them attract further investment from other sources. They help move us towards a future where everyone with cardiomyopathy lives a long and fulfilling life.

Find out more 👉️ https://www.cardiomyopathy.org/our-research-campaigns/understanding-more/researchers/research-grants

If you have a heart condition, you might find that the heat can affect your symptoms. So as the weather warms up, we're ...
22/05/2026

If you have a heart condition, you might find that the heat can affect your symptoms. So as the weather warms up, we're sharing our 10 top tips for staying safe and feeling well, whatever your plans 🌞

Check out our website for more information 👉️ https://bit.ly/4tQjYy2

This Sunday, 15 incredible supporters take on the world’s fastest zip line at Penrhyn Quarry in North Wales.Organised by...
21/05/2026

This Sunday, 15 incredible supporters take on the world’s fastest zip line at Penrhyn Quarry in North Wales.

Organised by superstar fundraiser Sarah, they expect to raise £3,500 - adding to the amazing £105,000 already raised for Cardiomyopathy UK by Martys Penny Bank! ⭐️

The Marty’s Penny Bank team from West Yorkshire are no strangers to fundraising challenges, having spent the past 15 years supporting Cardiomyopathy UK in extraordinary ways. Marty was diagnosed with cardiomyopathy before he was even born. Now, at almost 16 years old, he's doing incredibly well - and preparing to take to the skies himself at Penrhyn Quarry.

Sarah says: "The sun has promised to shine, and we can't wait to once again raise funds and awareness for a charity that's so close to our hearts."

Marty says: "I'm looking forward to taking on the world’s fastest zip line for Cardiomyopathy UK and I’m so pleased that we've raised over £100,000.”

A massive thank you to the Marty's Penny Bank team! We couldn't be prouder! ❤️

As comes to a close, we’d like to invite you to take a small step with us 💚 People affected by cardiomyopathy aren’t a...
16/05/2026

As comes to a close, we’d like to invite you to take a small step with us 💚

People affected by cardiomyopathy aren’t always aware of the support that’s available to them. Could you help us spread the word?

That might be mentioning Cardiomyopathy UK to a healthcare professional, sharing your experience in a conversation, or highlighting the support on offer in online groups or forums.

By doing this, you can help more people find support, feel less alone, and access the services and community that can make a real difference to mental health.

Together, we can help make sure no one has to navigate cardiomyopathy on their own.

🔗 https://bit.ly/49I9bPd

As continues, we’re celebrating the strength we find in connection 💚 Finding support, whether that’s in person or onli...
14/05/2026

As continues, we’re celebrating the strength we find in connection 💚

Finding support, whether that’s in person or online, can help us feel more understood and more able to navigate whatever life brings. That why here at Cardiomyopathy UK, we offer a wide range of support services, from one-to-one peer support to online social groups.

Find support 👉️ https://bit.ly/4tsu1cq

Being there for someone can be as simple as listening and allowing them to feel heard without judgement. Small moments of connection can make a real difference.

If it feels right, why not check in with someone, share a thought, or join a conversation this week? You never know what that connection might mean.

Address

75A Woodside Road
Amersham
HP66AA

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 4:30pm

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