Batten Fighters Forever

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Batten Fighters Forever Juvenile Batten Disease is one form of rare inherited disorders affecting the nervous system. Batten Fighters Forever is a registered charity in the UK.

This Page is about BFF's charity activities and sharing elements of The Hover family & Robbie’s fight against Juvenile Batten Disease (CLN3) in order to raise awareness. Beginning in childhood, it causes rapid vision loss, seizures, thinking difficulties, loss of speech, loss of movement and premature death. There is currently no cure or treatment for Juvenile Batten Disease. This page is about the activities of the BFF Charity as well as providing insights into Annabelle and Robbie’s fight against Juvenile Batten Disease (CLN3). Our family quest is to give the children the best possible life, to focus on fund raising and support other children facing this disease. Annabelle chose the name “Batten Fighters Forever” because it’s abbreviation is BFF which also stands for ‘Best Friends Forever”. This very much captures her brave spirit and the need for us to stick together in the fight ahead. Please donate via facebook or visit battenfightersforever.com

💜 Sassy Walk 2026 - a day to remember! 💜We are so excited to share these wonderful photos from the day, created byRachel...
07/10/2026

💜 Sassy Walk 2026 - a day to remember! 💜

We are so excited to share these wonderful photos from the day, created byRachel Cooper (Ember & Light Photography) Thank you, Rachel, for helping us celebrate such a special event!

With perfect weather, beautiful coastal views and plenty of Sassy spirit, it was a day full of laughter, determination and friendship. Familiar faces came together, new friendships were formed, and our amazing walkers made every mile count.

👑 Congratulations to our Sassiest Walker, Ellie Strange ,walker number 23, who was also the first to finish the 21km route!

💜 Our incredible super sibling, Georgie Hover, was the first to finish the 21-mile route. A wonderful sister to Annabelle and Robbie, she made us all so proud.

🍦 Our Sassy Seasiders enjoyed the coastline, with a few well-earned ice creams along the way!

🐟 And the delicious fish and chips from Moby Micks went down a storm, the perfect treat after all those miles.

To every walker, volunteer, sponsor, donor and supporter: thank you for making the day so special. Together, we celebrated Annabelle’s legacy, raised awareness of Batten disease and helped support families affected by it.

Enjoy looking through the photos, tag yourself and your walking friends, and share your favourite memory in the comments. 💜

The walk may be over, but it is not too late to donate! Please help us turn those incredible efforts into practical support for families:

https://www.peoplesfundraising.com/fundraising/bff-sassy-walk-2026-general-donation-page

💜 Introducing our Sassiest Walker 2026 — Ellie! 💜A huge congratulations to the fabulous Ellie, who completed the full 21...
04/10/2026

💜 Introducing our Sassiest Walker 2026 — Ellie! 💜
A huge congratulations to the fabulous Ellie, who completed the full 21km Sassy Walk Challenge Route in true Sassy style!

Ellie brought determination, energy and plenty of colour to the day, and we are so proud of her for taking on such an incredible challenge. Completing 21km is an amazing achievement and being crowned our Sassiest Walker makes it even more special. 👑💜

The Sassy Walk was a truly wonderful event, filled with support, laughter, purple, friendship and an incredible sense of community. Every walker, volunteer, sponsor and supporter helped make the day so memorable while raising awareness of Batten disease.

It is not too late to support our amazing walkers and the families who benefit from the funds raised. Every donation, however small, helps make a real difference.

Please donate via the Sassy Walk fundraising page:
www.peoplesfundraising.com/fundraising/bff-sassy-walk-2026-general-donation-page

Well done, Ellie — you truly are the Sassiest Walker! 💜

Today would have been our beautiful Annabelle’s 21st birthday - her heavenly 21st. 💜There is no easy way to put into wor...
28/09/2026

Today would have been our beautiful Annabelle’s 21st birthday - her heavenly 21st. 💜

There is no easy way to put into words how much we miss her. We think of her every day: her courage, her determination, her sparkle and the incredible legacy she continues to leave behind.

Annabelle named our charity Batten Fighters Forever ,BFF, because she wanted to raise awareness of Batten disease and help other families facing the same challenges.

We know she would have been so proud of every single person who took part in this year’s Sassy Walk. Proud of the walkers who took on the challenge, the volunteers who gave their time, the businesses and sponsors who supported us, and every person who donated, shared a post or cheered from the sidelines.

The Sassy Walk was filled with love, laughter, determination and the community spirit Annabelle inspired in so many people. Every step taken was for her, for Robbie and for all families affected by Batten disease.

Happy heavenly 21st birthday, our darling Sassy. We hope you know how loved you are, how missed you are, and how proud we are to carry on your legacy.
Forever our girl. Forever fighting. 💜

www.peoplesfundraising.com/fundraising/bff-sassy-walk-2026-general-donation-page

Great job done by the wonderful MobyMicks Mobile Fish and Chips Catering team. All the walkers enjoyed their fish n chip...
27/09/2026

Great job done by the wonderful MobyMicks Mobile Fish and Chips Catering team.

All the walkers enjoyed their fish n chips, the perfect end to the perfect day.

26/09/2026

💜 Siblings walk their own journey too. 💜
When a child has Batten disease or additional needs, the impact is felt by the whole family, including brothers and sisters.

Siblings can grow up with extra worries, responsibility, appointments, changes to family plans and emotions that other children may not always understand. They often show incredible patience, compassion and strength, while quietly carrying their own feelings too.

Young siblings of disabled children can have more worries and responsibilities than their peers, which is why their experiences deserve recognition and support.

Today, we are so incredibly proud of our Georgie.

Georgie has always been an amazing sister to both Annabelle and Robbie. She loved Annabelle fiercely, and she continues to be a wonderful, caring and encouraging big sister to Robbie.
In this video, Georgie is leading the Challenge Route, showing the same determination, kindness and strength that makes us proud every single day.

She is walking for her sister, for her brother and for every family affected by Batten disease.

We are so proud of you, Georgie. 💜

Please show Georgie some love in the comments and, if you can, sponsor her and all our incredible walkers.
Every donation helps Batten Fighters Forever provide practical support to families living with Batten disease.

www.peoplesfundraising.com/fundraising/bff-sassy-walk-2026-general-donation-page

SassyWalk2026 EveryStepMakesADifference

26/09/2026

💜 Siblings walk their own journey too. 💜
When a child has Batten disease or additional needs, the impact is felt by the whole family, including brothers and sisters.

Siblings can grow up with extra worries, responsibility, appointments, changes to family plans and emotions that other children may not always understand. They often show incredible patience, compassion and strength, while quietly carrying their own feelings too.

Young siblings of disabled children can have more worries and responsibilities than their peers, which is why their experiences deserve recognition and support.

Today, we are so incredibly proud of our Georgie.

Georgie has always been an amazing sister to both Annabelle and Robbie. She loved Annabelle fiercely, and she continues to be a wonderful, caring and encouraging big sister to Robbie.
In this video, Georgie is leading the Challenge Route, showing the same determination, kindness and strength that makes us proud every single day.

She is walking for her sister, for her brother and for every family affected by Batten disease.

We are so proud of you, Georgie. 💜

Please show Georgie some love in the comments and, if you can, sponsor her and all our incredible walkers.
Every donation helps Batten Fighters Forever provide practical support to families living with Batten disease.

www.peoplesfundraising.com/fundraising/bff-sassy-walk-2026-general-donation-page

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